12/04/2025
Morning every one, my appointment with Dr Karri went very well last Wednesday 9th of April.
My consultation appointment was at Kinvara hospital in Rotherham and we stayed at Rotherham central travel lodge which is only an 8 minuet drive to the hospital.
I wouldn't advise walking it because it's up hill and we knew my mobility scooter wouldn't make that hill.
There is free carparking at the hospital, reception staff are very friendly and I was made a cappuccino on arrival and toilets are in the reception.
Travel lodge carpark is normally a chargeable fee but the machine is broken so we didn't have to pay to park.
Dr Karri is very compassionate and very informative, he will answer any questions and put your mind at rest.
I was informed by a MLD therapist I had Lipoedema in my full arms (early stages), however Dr Karri said my arm shape is down to age related skin sagging and poor muscle tone, it's certainly not enough to be given this location.
I was told I may have some Lipoedema fat in my lower tummy but not enough to be given this location to.
I have been reassured, now I'm 50 and only started getting symptoms over the last two years, progression is unlikely providing I keep my weight down and maintain a healthy diet.
I informed him I plan to stay on a low dose of MJ and the plan is to try and keep my hormones stable.
Because I'm suffering from chronic pain all the time, I'm surprised to be diagnosed stage 1 and I'm type 3 (just my legs).
Dr Karri said although my Lipoedema will cause discomfort and some heaviness, my main source of pain is likely to be down to fibromyalgia, chronic hip pain due to tendonitis on my greater trochanteric joint, including small labral tears and I suffer chronic pain in my pelvis and over my p***c bone so that is something underlying and not Lipoedema related.
It was easier for a Lipoedema diagnosis because my ribs are easily felt and my torso caves in, my hips have always been wider than my waist since my youth and my legs are column shape with some cuffing at the ankles and I mentioned I've never had toned legs even at 8-9st, also I was very active as a teenager with lots of walking and horse riding up to age 20 and yet I wore sizes 10 tops and size 14 jeans, I just assumed I had my nans tree trunk legs.
I have lost 1st and 13lbs and now weigh 10st 3lbs, I'm 5ft 3 and thanks to MJ the appearance of my legs have improved and they feel lighter, however the pain is constant and sleeping at night is a challenge.
I sleep with a soft pillow under each arm and a soft thinner pillow under my knees as I cannot sleep on either side so I have to sleep on my back.
I'm also suffering from chronic pelvic pain and severe pain on my p***c bone so another thing I need ruling out is HEDS/EDS and Pelvic Congestion Syndrome.
I have nearly all the symptoms of PCS which fit and a tilted uterus so it looks like I'm having to continue to beg for more answers because the NHS do so little and the help we so desperate need has to be private now or risk waiting years and continue being ignored, suffering further complications.
I have been waiting for a pain clinic appointment since August 2024.
Anyway I know I could be in a far worse situation and that I'm grateful so I apologise for moaning.
I have been told Liposuction surgery is too early and it's more beneficial from stage 2 and if my pelvis and hips are causing severe pain, these issues need tackling first.
If I do go down the surgery route, it can be done in one operation and will be approx. 3L removed.
A consultation with Dr Karri is £250, book travel lodge in advance for the best prices, although premier Inn is in a nicer area.
Rotherham central travel lodge do have their own mini bar and café serving food although I scooted to the Bluecoat Wetherspoons for cheap meals and it is a nice pub.
Rotherham town is tidy but I wouldn't recommend walking around at night, but the area is clean and locals very friendly.
There is a cinema next to the travel lodge, not that we used it but its an option if your dragging someone along with you and they wanted to be entertained for a couple of hours.
Anyways I will take a photo of my wonderful 'Lippy' legs that have carried me for 50 years and show case my stretch marks and scold marks from hot water bottles.
Although I best dry my underwear first though, it's still in the washing machine! 😎
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