Triple Stroke Survivor

06/04/2026

Getting comfortable going to sleep and staying comfortable during sleeping can be tricky with central after stroke pain syndrome.. my way is sleeping on the unaffected side and put a semi soft pillow between your knees to keep the affected knee elevated from dropping on to the mattress. This position all night can make your unaffected hip ache, so try to roll onto your back a couple of times during the night if you wake up. I also have a pillow under my affected arm as if I'm cuddling the pillow, which helps keep my arm elevated... try it and see if it helps 😴

24/03/2026

Here I go again! For my new followers.
7 years ago this week, my life changed once again. I had a stroke, leaving me with neurological, psychological and physical effects. My stroke was an ischemic stroke, a blood clot in my brain stem. This effect my left side from head to toe. I suffer with a severe chronic pain condition called central pain syndrome, nerve damage and altered sensations. Because of the stroke I also have brain damage, which shows itself in several ways.. Fatigue, I can't concentrate on more than one thing, I stumble over words, I can't deal with stresses of any kind and I'm far more sensitive and emotional than before. My life long chronic pain condition isn't curable nor totally controllable.
I have come to terms with this stroke and my other two. I've adjusted and adapted to my post stroke life. Fully medicated and with my hidden disability I'm a stroke survivor, thankful for being alive.. People see me, happy and smiling, unaware of the suffering everyday.
Please be kind to people, as we don't know what their stories are behind the smiles.

21/11/2025

I'm furious with Herefordshire Council right now.

Some of you will remember the media coverage back in July when Council backed my motion to get Herefordshire in the running for advanced manufacturing and modern defence investment. The administration was asked to prepare a prospectus and send a formal letter to Ministers.

Since then I've chased and chased and four months later we find out the letter was never sent and the prospectus is still stuck in draft.

And this week the Government has announced the first areas for its new “factories of the future”. Thirteen places chosen with over a Billion pounds of investment in the pipeline. Our neighbours in Monmouthshire, Shropshire and Worcestershire all included. Herefordshire isn’t even on the list ... we didn't even give ourselves a fighting chance. I honestly cannot articulate my frustration!

This is exactly what we warned would happen. When you fail to act, you get left behind. Residents lose out on skilled jobs, apprenticeships and long-term investment because this administration couldn’t deliver the most basic actions ... it's just not good enough.

They Conservative administration keep talking about 2026 being their big “Year of Delivery”. On the evidence so far, 2025 has been their year of total non-delivery.

If the administration won’t fight for Herefordshire, I will. Our county deserves far better than missed chances and slow motion leadership.

21/11/2025

Ohhh the cold weather!! It's no good for my CASP!! leggings under everything from here on !!
Does anyone else have the same problem 😕

16/10/2025

Here's my story. Written a year ago, but I have a few new followers, so I thought I'd share again as I approach my 16th anniversary since my first stroke.. Im still surviving/living😊

Before my stroke a 44, I was living in Hereford a working, married mum of 2. I had been rushing around a lot.

21/08/2025

So, I recently had a stay in hospital, with pneumonia, tried to sleep (unsuccessfully) on a green plastic recliner chair.. with 2 sheets, as the room had air con.. but wasn't on and windows that were sealed shut! Go figure !!
While I chatted with a senior Dr, we got talking about all my ischemic strokes.. he asked, "did anyone ever find out why you had them and what caused them", "umm no" I, replied. He said he would look into it for me! I wait with interest.. I've heard nothing as yet.. but I'm interested to find out xx

07/07/2025

How is everyone coping with the heat! Other than enjoying it! 😅.
I seem to get lots of cramping in my stroke side during hot spells. So, very, very painful. My foot, my calf and my thigh! Anyone else have any tips please 🙏
It can go on for what seems like hours. 😬. Just come back from Greece, where it seem to happen most nights 🤨

25/03/2025

6 years ago today I survived an ischemic brain stem stroke, which has left me with CASP and brain damage, I will be for ever grateful that I survived, if my clot had been 1mm either way I would not have made it to my 60th birthday, last week. My nerve pains forever reminding me how lucky I am to be here.

05/01/2025

Shout out to my newest followers! Excited to have you onboard! Ahmed Yomba Finoh, Carmen Matache, Liz Buttolph, Bernadette Murray, Caroline Lightfoot, Joanne Gallagher, Ian Templeman

Feel free to ask me anything about my strokes, I'll try to help if I can

05/01/2025

https://differentstrokes.co.uk/stories/alisons-story-conversion-disorder-stroke-at-44/?fbclid=IwY2xjawHnjRJleHRuA2FlbQIxMQABHVlHehl4wpsQUA9j7ixDBISbdJfHnB2lvT56_wrR6rzbCvCUJejO3crNZw_aem_9juNGDHjdxH3LycAnUC1IA

Before my stroke a 44, I was living in Hereford a working, married mum of 2. I had been rushing around a lot.

29/10/2024

Today, is World Stroke Day.

You may have seen it being talked about on TV today. Especially that strokes dont just happen to old people. My first stroke happened when I was 44, then 54 then 56 and all before old age. I found, along with thousands of other young stroke victims, that online was and is the best form of support and information. Great at sign posting and socialising with other stroke survivors.

I may have disabilities, but I don't feel disabled. I'm luckier than so many (if you can call it lucky). The power of positive thinking. ✨️ To all stroke warriors.. keep going ❤️