FND Ashfield & Notts Support Group

18/03/2026

To everyone.

17/03/2026

Poem of the day
Today im on my Mental Health Course
I will need to listen and not talk so much, or i might lose my voice
I'll use my knowledge to help me and lots of others
I hope you'll benefit from it like it will with my Mother
You're never too old to learn & grow
Boost the brain cells and make your halo glow

17/03/2026

I think i will have a go at making this for sure and will also help with my osteoarthritus in my hands whilst the Lavendar relaxes the senses.

You won’t believe the instant calm from this purple sensory dough… pure hand magic! 💜
Thousands of parents and adults swear by it for stress-works like a charm at home.
Flour + salt, stir in water + oil, tint purple, add lavender drops… knead 10 min to soft bliss.
That velvety texture + soothing scent slows you down effortlessly. For you or the kids? 💜

16/03/2026

Forgot i did this Positive Daily Thoughts Jar
Im going to decopage it and put a nice lid on it and fill it with daily affirmations.
Why not try making yours out of used jar, box etc?
Try to write down at end of the day so you can shut off.
On a piece of paper at least 1 thing that's either stressing you out, causing tension, something thats made you feel good, something funny about the day, anything that you feel you need to offload.
Then put a date and fold up and put in the jar and forget about it for the rest of the day.
Let the notes build up for a while in the jar, then feel free to revisit them and reflect, see if all is better now, things improved, laugh about them and date again and put how you feel now, then pop back in jar and carry on till you fill it, then can always start a new jar.
Hope this helps. Ill show you my jar when its finished.

16/03/2026

This is so true from what i've been through and still going through with health,. I definetly look at life differently, treasure every moment, treasure what i do have and who i have in my life and a determination that what i suffer with i can use to help others and spread awareness of

16/03/2026

I think i might make it a mission to do a poem a day for as long as can find the words. Let me know if you enjoy.
Heres todays

When you're feeling all alone and you think no one cares
Remember i'll be there for you, i will always be there
Share you thoughts, your feelings, i wont judge, i will listen
I wont disapear, i wont gasslight, i wont go missing
Be like your guiding angel, your shoulder to cry upon
To make you feel better, to laugh and smile like you once shone.


Nic Cope The FND Diane Maz

16/03/2026

Brilliant video, helpfull website, great supprt for me to explain when i can't, when im low in energy , quicker and easier to explain my conditions. Start building your cards up or just the one and hope these cards help you explain to others too.



FND Ashfield & Notts Support Group

16/03/2026

Anyone that wears a , lanyard i also attach my Stickman Communications Ltd card to it as well which gives me reassurance when im out. There are so many diffetent communication cards to use and at a great low price.
Check out the website Stickman Communications by Hannah Ensor

16/03/2026

This is exactly what i had a few weeks ago, 4hrs in a & e, a week to recover, very frightening, i honrstly thought i was having a heartattack which combined with having and i didn't feel well at all. Always get checked out if your unsure, rest, be kind to yourself.

16/03/2026

Spot on words.

MY NAME IS FIBROMYALGIA 💜❤️

Hi. My Name is Fibromyalgia, and I'm an Invisible Chronic Illness.
I am now velcroed to you for life. Others around you can't see me or hear me, but YOUR body feels me.

I can attack you anywhere and anyhow I please. I can cause severe pain or, if I'm in a good mood, I can just cause you to ache all over.

Remember when you and Energy ran around together and had fun? I took Energy from you, and gave you Exhaustion. Try to have fun now!

I also took Good Sleep from you and, in its place, gave you Brain Fog. I can make you tremble internally or make you feel cold or hot when everyone else feels normal.

Oh, yeah, I can make you feel anxious or depressed, too.

If you have something planned, or are looking forward to a great day, I can take that away, too. You didn't ask for me. I chose you for various reasons: That virus you had that you never recovered from, or that car accident, or maybe it was the years of abuse and trauma. Well, anyway, I'm here to stay! I hear you're going to see a doctor who can get rid of me.

I'm rolling on the floor, laughing. Just try.

You will have to go to many, many doctors until you find one who can help you effectively. You will be put on pain pills, sleeping pills, energy pills, told you are suffering from anxiety or depression, given a TENs unit, get massaged, told if you just sleep and exercise properly I will go away, told to think positively, poked, prodded, and MOST OF ALL, not taken as seriously as you feel when you cry to the doctor how debilitating life is every day.

Your family, friends will all listen to you until they just get tired of hearing about how I make you feel, and that I'm a debilitating disease. Some of they will say things like "Oh, you are just having a bad day" or "Well, remember, you can't do the things you use to do 20 YEARS ago", not hearing that you said 20 DAYS ago. Some will just start talking behind your back, while you slowly feel that you are losing your dignity trying to make them understand, especially when you are in the middle of a conversation with a “Normal" person, and can't remember what you were going to say next!

In closing, (I was hoping that I kept this part a secret), but I guess you already found out... the ONLY place you will get any support and understanding in dealing with me is with Other People With Fibromyalgia. ♥️💜