Bone Cancer Research Trust

09/11/2025

We have charity places available for the 2026 Irish Life Dublin Marathon! 🚶

The public ballot opens 12 November, with results announced later in the month, but you don’t need to wait to get started!

Why join us?
- Unlimited support from 🧡
- Experience a warm Irish welcome running 26.2 miles through Ireland’s capital 🇮🇪
- Help fund vital research and support for those affected by primary bone cancer

Apply today: https://ow.ly/bRqt50Xouhv

08/11/2025

Congratulations to Georgie, who was crowned Good Morning Britain's Young Fundraiser of the Year at The Pride of Britain Awards ⭐

After being diagnosed with Ewing sarcoma at 15 years old following intense leg pain, Georgie underwent 54 rounds of treatment which included chemotherapy and radiotherapy.

Determined to make a difference and support people like her, Georgie gave out cards to her fellow patients at the Beaston West of Scotland Cancer centre - affectionately known as ‘pocket hugs.’

She went on to fundraise over £55,000 and even met with Prime Minister Sir Keir Starmer to advocate for bone cancer patients and discuss the Rare Cancers Bill, which the Bone Cancer Research Trust is proudly supporting.

Read more about Georgie’s achievements: https://ow.ly/O2ve50XnC6y

NHS Greater Glasgow and Clyde

Teenage cancer survivor who has raised more than £55,000 for others meets her hero Margot Robbie and gets another big surprise

07/11/2025

This week, we were proud to join patients, policymakers and members of the Cancer52 community in Westminster 💼

The event provided a valuable opportunity to highlight the work of cancer charities across a range of projects, enabling us to learn from each other and strengthen our collective efforts to improve outcomes for patients.

We were honoured to present on the National Sarcoma Awareness Project and our long-term and late effects project, showcasing the awareness work we're committed to delivering for our community 🧡

Thank you to Kyowa Kirin International for supporting this important event.

07/11/2025

Check out what our amazing fundraisers have been up to this 👇

1. Euan Liddle held and amazing Firewalk recently for his colleagues at STRABAG, plus friends and family in support of Lola and the other children they met in hospital affected by bone cancer 🧡

2. A big thank you to Matt who took on the Run Leicester Festival and raised an amazing £950 for the Ewing's Sarcoma Research Trust Special Fund, in memory of his friend Billy 🧡

3. Thank you to Michael, who ran the Irish Life Dublin Marathon dressed as a bone! Michael raised a fantastic £6,878 in support of his niece 🧡

4. Stewart Fletcher completed another epic 12hr charity live stream, raising a fantastic amount for the Papa Fletch Memorial Special Fund 🎮🧡

5. Rebecca and her team raised an incredible amount for Love Beth with a week of Halloween antics in memory of her niece Beth 🎃🕷️🕸️

Feeling inspired? Visit https://ow.ly/6jxH50VhaOL to request your FREE digital fundraising pack!

06/11/2025

Early diagnosis saves lives 🧡

That's why, in Bone Cancer Awareness Week (6-12 October 2025), we travelled to Wales for the Royal College of General Practitioners Conference - bringing over 2,000 healthcare professionals together from across the UK.

At our stand, we shared educational resources designed to help GPs and future doctors spot the early signs and symptoms of primary bone cancer 🩺

We were encouraged by the enthusiasm of resident doctors and medical students to take part in the National Sarcoma Awareness Project in 2026, and encouraged by clinicians identifying red flags such as bone pain that worsens at night.

Read more: https://ow.ly/yuil50XmjHV

05/11/2025

BIG NEWS from our research community 🔬

We’re proud to welcome eight new members to our Independent Scientific Advisory Panel (ISAP)🧬✨

These incredible experts bring world-leading knowledge in bone cancer biology, clinical research and genomics – helping to ensure that every project we fund has the greatest possible impact for our patients.

We’re also thrilled to share that Professor Steven Clifford from Newcastle University has been appointed as the new chair of ISAP, succeeding Professor Pam Kearns.

Learn more: https://ow.ly/OBTO50XiWbj

Photo credit: Newcastle University, UK.

04/11/2025

We are so inspired by our amazing TCS London Marathon team for 2026! 🧡

There are so many incredible reasons that people have chosen to run for the charity and we’re sharing some of those stories.

My name is Caroline.

I am running the London Marathon for my husband Richard who was first diagnosed with chondrosarcoma in 2014, when he was just 17 years old.

Richard’s chondrosarcoma was at an advanced stage in his left humerus, with a tumour developing on the outside of the bone. The only treatment available to him was to remove the bone and if he’d been diagnosed two years earlier, they would have had to amputate his arm.

He was the 4th person in the world at the time to have a full endoprosthetic replacement of his humerus.

Thanks to his treatment at the The Royal Orthopaedic Hospital, Birmingham, Richard's scans came back cancer free for the next 10 years.

In summer of 2024, Richard broke his left forearm playing football and the bone wouldn’t heal, later revealing a smaller chondrosarcoma. The team in Birmingham removed the cancerous bone and replaced it with part of his right fibula, with a metal plate holding it all together.

In his most recent scans in May 2025, Richard again showed no signs of cancer in his arm or chest.
In both cases, we are aware that Richard's treatment was only possible because of the research that had gone before. It could so easily have turned out differently for him.

That's why I'm running the London Marathon for Bone Cancer Research Trust - to help those with chondrosarcoma and other types of bone cancer to get the best possible treatment.

If you have secured your own Ballot Place in the 2026 TCS London Marathon, we would love for you to join our team. Find out more: https://ow.ly/F9EX50XmpoP

01/11/2025

The Black-Tie Charity Ball in memory of Jordon Wilson was back with a bang this year 🥂

Held at Hogarths Hotel & Restaurant, this annual event raises vital funds in memory of Jordon, who sadly passed away in 2018 after being diagnosed with Ewing sarcoma.

A huge thank you to everyone who attended and donated so generously, you helped to raise an incredible £12,040!

Special thanks to Jayne, Paul, and the entire team for organising such a fantastic evening and to everyone who made the night so memorable.

The funds raised will go towards the Jordon Wilson Tribute Fund, a Special Fund of the Bone Cancer Research Trust, supporting vital research into Ewing sarcoma 🧡

Feeling inspired? Head over to our website to request your FREE fundraising pack: https://ow.ly/YYS350XkNZb

31/10/2025

We wanted to say a huge thank you to all our fantastic supporters who Baked for a Breakthrough in October, during Bone Cancer Awareness Week! 🧡

The Royal National Orthopaedic Hospital NHS Trust Team, Jason and his family, Charlie and her colleagues at Four Agency, Professor Susan Burchill at The Leeds Institute of Medical Research at University of Leeds, Professor Allie Gartland and her researchers and our very own office team.

Together you helped raised an amazing £693.40, with more expected over the next few weeks!

We would love to get some more bakers on board, so grab your pinny and mixing bowl and sign up to Bake for a Breakthrough 🧁

Ready, steady, bake: https://ow.ly/PO7v50Xkv9v

31/10/2025

Too often, where you live decides the care you get.

This results in delayed diagnosis, unequal access to treatment, and a postcode lottery that leaves many behind.

The Sarcoma Data Partnership Programme, led by Professor Sandra Strauss at UCL and UCLH - University College London Hospitals NHS Foundation Trust, hopes to change that.

By analysing NHS England data, her team will pinpoint gaps - bringing us towards care that doesn’t depend on your postcode 📍

Sally from Norfolk, who was treated for chondrosarcoma, said: “This research gives me hope that others won’t face the same delays I did.”

With your help, we’re making patient care faster and fairer for patients in England 🧡

Visit: https://ow.ly/7oCo50XfBg9

This work is jointly funded by the Bone Cancer Research Trust and Sarcoma UK.

30/10/2025

We’re giving a huge to everybody who attended The Black and White Charity Ball in memory of Brandon Hackett 🧡

The evening brought together Brandon's family and friends to remember him on what would’ve been his 24th birthday. An incredible £4,000 was raised on the evening for the Bone Cancer Research Trust and Teenage Cancer Trust!

Special thanks to Clare for organising such a fabulous evening, and to everybody who attended and donated so generously on the night 💃🕺

Feeling inspired? Visit https://ow.ly/wvI250VxWSx to request your FREE digital fundraising pack!

30/10/2025

How can we create better care for primary bone cancer (bone sarcoma) and soft tissue sarcoma patients?

This is the question driving the Sarcoma Data Partnership Programme, led by Professor Sandra Strauss at UCL and UCLH - University College London Hospitals NHS Foundation Trust

By exploring gaps in NHS England data, Professor Strauss’s team will uncover where care falls short to make it faster, fairer and more consistent 📈

In this video, Professor Strauss explains how exploring data could help speed up change.

This pioneering project is jointly funded by the Bone Cancer Research Trust and Sarcoma UK 🧡

Find out how data can transform patient care: https://ow.ly/xB2450XfB6l