Bone Cancer Research Trust

Bone Cancer Research Trust The Bone Cancer Research Trust is the leading charity dedicated to fighting primary bone cancer.

Our mission is to save lives and improve outcomes for people affected by primary bone cancer through research, information, awareness and support.

26/07/2025

We want to give a huge to the incredible family, friends, and wider community who came together in memory of Miles Stockwell, who sadly died from osteosarcoma on New Year’s Eve 2022, following his diagnosis at the end of the previous year.

The heart of the weekend was the U14 and U20 roller hockey tournaments, with teams travelling from across the UK and abroad. The action was fast, furious, and full of excitement, played in the best sporting spirit.

Miles played roller hockey from the age of 4 to 13, and it was incredibly moving to see his original U13 team reunite as Team Miles and go on to win the tournament! What a powerful tribute.

From the roller disco and food vans to the classic cars, face painting, and crafts, the atmosphere at Herne Bay Rink Hockey Club was electric. The weekend truly reflected Miles’ spirit: fun, fearless, and bold.

To every player, coach, referee, timekeeper, volunteer, and supporter, thank you. Your passion and generosity helped raise over £5,000 for the Team Miles Forever Fund, supporting vital research and families affected by primary bone cancer.

This fund is a lasting reminder to be a bit more like Miles every day and this weekend was a beautiful celebration of that legacy.

To find out more about the Team Miles Forever Fund, please visit: https://ow.ly/jX3B50Wv94S

My name is Megan. Last year I was working in marketing, going on city breaks, and living life to the full. Then, in Febr...
25/07/2025

My name is Megan.

Last year I was working in marketing, going on city breaks, and living life to the full.

Then, in February 2025, I was diagnosed with chondrosarcoma.

I spent nine months pushing for answers. I was almost turned away from A&E because I "didn't look unwell enough."

One nurse listened, and this could've saved my leg.

If you're a young person like me, don't be afraid to advocate for yourself. Push for answers and be persistent 🧡

If I hadn't gone back again and again, I may not be walking today.

Primary bone cancers, like mine, are underfunded and poorly understood. Please donate towards life-changing research: https://ow.ly/X5lv50Wv8MW

Learn more: https://ow.ly/kfU650WtaTI

25/07/2025

Check out what our amazing fundraisers have been up to this 👇

- A HUGE congratulations to the Liverpool University Boat Club on completing their epic cycle from Liverpool to Henley-on-Thames in just three days! Thank you for all the incredible fundraising and awareness raising you’ve done – you’re all amazing! 🚴🧡

- A huge thank you to the wonderful Wimborne Orchestra for choosing the Liz Clarke-Saul Fund as their good cause at their Summer Concert earlier this month. Thanks to the incredible generosity of the audience, a fantastic amount was raised in support of the fund. We’re so grateful for your support 🎶

- Sending a big shout out to Ken Hanson and team for organising and hosting a Quiz for Mary’s Fund at Worlebury Golf Club. 66 fabulous quizzers took part and a fantastic amount was raised for Mary 🧡

- A big well done and thanks to Dan for running his first 10k and raising a fantastic amount for Freddie’s Future!

Feeling inspired? Visit https://ow.ly/6jxH50VhaOL to request your FREE digital fundraising pack!

😊

25/07/2025

We are delighted to announce that the Rhodri Jones Memorial Appeal, a special fund of the Bone Cancer Research Trust, has donated an incredible £16,000, taking Rhodri’s Fund to a phenomenal £250,000 🎉

This incredible milestone is especially poignant today, as Rhodri would have turned 40 years old.

Rhodri was a bright light in the lives of everyone who knew him, full of fun, laughter, and a wicked sense of humour. A proud Welsh speaker, a natural leader, and a passionate sportsman, he had time for everyone and could light up any room with his cheeky smile.

At just 20 years old, Rhodri passed away from osteosarcoma. Since then, his family, friends, and community have been committed to raising awareness and fund vital research. From marathons and triathlons to concerts and community events, every penny raised has brought us closer to a future where no family has to face what Rhodri’s did.

Thank you to everyone who has supported the Rhodri Jones Memorial Appeal over the years. Your generosity, energy, and love keep Rhodri’s spirit alive and make a real difference in the fight against bone cancer 🧡

To find out more about the Rhodri Jones Memorial Appeal, please visit: https://ow.ly/62tI50WuJq5

Take the leap of a lifetime this September! 🪂Join across the UK for a thrilling 10,000-foot tandem skydive and help fu...
23/07/2025

Take the leap of a lifetime this September! 🪂

Join across the UK for a thrilling 10,000-foot tandem skydive and help fund life-saving bone cancer research 👩‍🔬

For a limited time you can get 50% off your registration fee 🧡

Nottingham - Saturday 13 September
Lancaster - Saturday 20 September
Brackley - Sunday 28 September

No experience needed, just plenty of adrenaline! 🤩

Secure your spot today and make a difference to the lives of bone cancer patients at: https://ow.ly/ewsg50VCgWH

New Ewing sarcoma research! We are pleased to share exciting news from the University of Birmingham, where researchers a...
22/07/2025

New Ewing sarcoma research!

We are pleased to share exciting news from the University of Birmingham, where researchers are exploring the protein PRMT5 as a new target for Ewing sarcoma treatment.

By blocking PRMT5, they hope to stop cancer cells surviving rapid growth stress without harming healthy cells.

With drugs that block PRMT5 activity (inhibitors) already being tested for other cancers, this study could open doors for Ewing sarcoma patients — offering new treatments with fewer side effects and better outcomes 🧡

Learn more: https://ow.ly/alaU50WrHvK

22/07/2025

A massive well done to Ben Phelps, who took on the incredible challenge of cycling nearly 1,000 miles from Land’s End to John O’Groats in memory of his daughter, Beth, who died from Ewing sarcoma just before her 13th birthday.

Ben’s dedication and strength throughout this journey have been truly inspiring. He camped out most nights, connected with other bereaved families, and met some incredible people affected by bone cancer along the way 🚲

Thanks to the kindness and generosity of so many, Ben has raised over £13,000 (and counting!) for Love Beth, a Special Fund of the Bone Cancer Research Trust—which is just amazing!

A heartfelt thank you to everyone who donated, cheered him on, offered a bed for the night, or helped in any way along the route. Every bit of support, big or small, has made such a difference 🧡

If you would like to read more about Beth’s story, please visit: https://ow.ly/Ms1550Wt8bZ

Here’s some amazing from Barbara Dunphy, who has been supporting Bone Cancer Research Trust for nearly 22 years!Barbar...
21/07/2025

Here’s some amazing from Barbara Dunphy, who has been supporting Bone Cancer Research Trust for nearly 22 years!

Barbara, who’s in her 90s, crochets handmade creations including pups, ducks and even peacocks, in memory of her grandson, Joseph Thompson, who passed away from osteosarcoma in 2003.

Joseph’s family are one of the founding families of Bone Cancer Research Trust and Barbara has been knitting and crocheting all these years to help support the charity and keep Joseph’s memory alive.

Even on holiday Barbara will continue to support the charity, raising funds and awareness of osteosarcoma to help find better outcomes and kinder treatments.

Thank you so much Barbara for your unbelievable dedication 🧡

Feeling inspired? Visit https://ow.ly/wvI250VxWSx to request your FREE digital fundraising pack!

19/07/2025

Our goes to the amazing Christy, who completed the incredible National Three Peaks Challenge this month ⛰️

Christy first took part in one of our virtual dog walking challenges with her beloved Lucy and was inspired by her amazing friend Sarah to take on another!

Despite the adverse weather conditions, Christy rose to the challenge with a smile on her face and to date has raised £1,250 for Bone Cancer Research Trust 🧡🎉

We are so proud of you, Christy, well done for taking on this epic challenge!

Are you inspired to take on the peaks or fancy a challenge closer to home, get involved with our events and challenges here - https://ow.ly/K81750WrNTy

Take a look at some of our favourite moments from past Bone Cancer Balls — a night of entertainment and extraordinary ge...
18/07/2025

Take a look at some of our favourite moments from past Bone Cancer Balls — a night of entertainment and extraordinary generosity 💃

From non-stop dancing to unforgettable moments of joy, these snapshots capture the true spirit of the . It isn’t just a fantastic event — it’s a night that makes a real difference for bone cancer patients 🧡

This year, we’re doing it all again on 15th November — and you won’t want to miss it!

Tickets are on sale now — join us for an unforgettable evening in support of life-saving bone cancer research: https://ow.ly/795050VuFbP

A huge good luck to David and friends (Jolly Boys in Europe) who are taking on the Two Ball Beach Rally Route - driving ...
17/07/2025

A huge good luck to David and friends (Jolly Boys in Europe) who are taking on the Two Ball Beach Rally Route - driving an old banger from the UK to Barcelona 🚗

David was diagnosed with Ewing sarcoma when he was 8- years-old in 1987, nearly 40 years later he wants to raise money for Bone Cancer Research Trust to help find kinder treatments and ultimately a cure.

The team restored an old car in our infamous blue and orange to raise awareness of primary bone cancer and set off today from Castle Bromwich on their epic journey!

Thank you all for taking on this amazing challenge to support bone cancer patients and their families 🧡

Could a blood test detect Ewing sarcoma relapse?In a new study led by Professor Martin McCabe, researchers are investiga...
15/07/2025

Could a blood test detect Ewing sarcoma relapse?

In a new study led by Professor Martin McCabe, researchers are investigating whether hidden clues in blood could help predict survival — and even detect relapse before it appears on scans.

This groundbreaking project could transform how Ewing sarcoma is monitored by enabling early detection and more personalised care 🧡

Funded in partnership with CCLG: The Children & Young People’s Cancer Association and Great Ormond Street Hospital and Charity, this investment is a step towards better futures for patients and their loved ones.

Read more: https://ow.ly/kZeh50Wp4Ux

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Our Story

In 2004, a group of families who had lost children and young people to primary bone cancer came together. They wanted to tackle head-on the fact that there was virtually no accessible bone cancer information, and practically no funding for research into this disease.

Determined not to accept the status quo, the families pooled funds they had already raised, and together with guidance from Professor Ian Lewis (Consultant Paediatrician and Adolescent Oncologist at St James's University Hospital, Leeds) the Bone Cancer Research Trust was registered in 2006.

The first research grants were awarded in autumn 2006. The charity's original logo was designed to show that two of the most common forms of primary bone cancer - osteosarcoma and Ewing sarcoma - tend to affect children and young people, and tend to start in the long bones of the arms and legs.

Today, the Bone Cancer Research Trust funds pioneering research into all forms of primary bone cancer and ensures that information and support are available for patients of all ages whilst raising national and international awareness of this devastating disease.