Bone Cancer Research Trust

Bone Cancer Research Trust The Bone Cancer Research Trust is the leading charity dedicated to fighting primary bone cancer.

Our mission is to save lives and improve outcomes for people affected by primary bone cancer through research, information, awareness and support.

The Royal Parks Half Marathon ballot is open! If you’re lucky enough to get a place, we’d love you to run in support of ...
27/01/2026

The Royal Parks Half Marathon ballot is open! If you’re lucky enough to get a place, we’d love you to run in support of Bone Cancer Research Trust 🧡

There are two ways to get involved:
- Charity place runner – places available with a £30 registration fee and a minimum fundraising target of £350. We’ll support you every step of the way.
- Secured a ballot place? Join and raise whatever you can to help change lives of those affected by bone cancer.

Every mile you run goes towards funding vital research and improving outcomes.

Together, we can make every step count 💙🧡

The ballot closes on Friday 6th February, apply now: https://ow.ly/F2gQ50Y4efl

January is a time when the post-Christmas slump hits, cold weather and darker days can feel especially heavy.  We’d love...
23/01/2026

January is a time when the post-Christmas slump hits, cold weather and darker days can feel especially heavy.

We’d love to bring a little brightness to your day and a chance to switch off, so we’re offering £20 cinema or theatre vouchers! 🎞️

Who can apply?
- Children, teens & young adults (up to 25) who are UK residents receiving treatment or follow up care for primary bone cancer or tumour

18+ can apply for themselves. Under 18? A parent or carer can apply for you!

Apply here and find out more: https://ow.ly/XhW650Y18Xk

If you have any questions or ever need support our Support & Information Service is here for you:
0800 111 4855 📞
Support@bcrt.org.uk ✉️

22/01/2026

We’re giving a big to everyone who took part in and supported the London City Voices Choir Christmas concert in early December 🎶

Thank you, Euan and Laura Liddle, for all your unwavering support, for coordinating the collection and for continually championing the cause. Huge thank you to Laura for doing an amazing half time speech too!

Euan’s place of work, STRABAG UK Environment Team, chose the Bone Cancer Research Trust to support as its charity of the year partner because of his young daughter, who has Ewing sarcoma.

A special shoutout goes to his colleague, Tom Farmer, a tenor in the choir and the person responsible for nominating the charity during the London City Voices Christmas concert.

We’d also like to thank Richard Swan, choir Director, and the entire London City Voices Choir for sharing their exceptional talent and making the evening so special.

Thank you as well to Marcelle Hornshaw from the SCS Joint Venture team and her husband Derek, and to Lynn McCloghry and all at Eversage Associates for their generous contribution.

Together, you raised an incredible £4,063 in support of Bone Cancer Research Trust.

We’re so grateful to everyone involved for their amazing generosity. It sounds like a wonderful evening was had by all and it will help to drive our vital research and provide support to people affected by primary bone cancer 🧡

Feeling inspired? Visit https://ow.ly/6jxH50VhaOL to request your FREE digital tool kit!

Photography credit:
- Caro Swan SwanAround Photography
- Matty Swan

Thank you to Mission Darts for your continued support of the The Ethan King Fund for Ewing Sarcoma Research 🧡We're so gr...
22/01/2026

Thank you to Mission Darts for your continued support of the The Ethan King Fund for Ewing Sarcoma Research 🧡

We're so grateful to Olly Croft’s family for their generosity and for supporting The Ethan King Fund through the sale of the Olly Croft Limited Edition Darts.

Ethan was diagnosed with Ewing sarcoma in 2018, at just nine years old, and over the next seven years he faced many rounds of treatment and surgeries but sadly passed on 13th March 2025, just weeks before his 16th birthday.

Support by clicking the link below:

Mission are delighted to extend their partnership with The Ethan King Fund for Ewing Sarcoma Research as its official charity partner.

Looking for a new adventure in 2026?! We have plenty of challenges that can take you around the world - experience somet...
20/01/2026

Looking for a new adventure in 2026?! We have plenty of challenges that can take you around the world - experience something new this year and help those affected by bone cancer 🧡

- Trek the Sahara Desert 10th - 17th September 🐪
- London to Paris Cycle - 9th - 13th September 🇫🇷
- Sponsored Skydive - throughout the year! 🪂
- Snowdon Sea to Summit Trek - 6th - 7th June 🏔️
- London to Amsterdam Cycle - 5th - 7th June 🚲

Make some life-changing memories and sign up - https://ow.ly/LpLr50Y0aqh

Everyone has their own purpose and story about why they choose to run the TCS London Marathon for Bone Cancer Research T...
19/01/2026

Everyone has their own purpose and story about why they choose to run the TCS London Marathon for Bone Cancer Research Trust. Here is Laura’s story.

I’ll be standing on the start line of the London Marathon 2026 carrying far more than just the miles ahead of me. When I was 16, I lost my mum to cancer — a loss that changed my world forever.

Just two years later in 2006, at 18, cancer came for me too. I was diagnosed with bone cancer in my leg, Ewing sarcoma, and everything I thought my life would be was suddenly put on hold.

The next 18 months were the hardest of my life. I went through relentless chemotherapy and radiotherapy, followed by life-changing surgery where half of my fibula was removed. The tumour had destroyed a nerve so badly it had to be taken too, leaving me with permanent foot drop. There were moments when I didn’t know if I’d ever walk again.

It was incredibly hard not having my mum by my side – for the appointments, for hospital visits and even the good moments. I felt guilty that my journey was different to my mum's. My treatment finished in 2008 and I was in remission in 2013 when I was 24.

My older sister took on more responsibility during the time she was grieving. She’s always believed in me and after experiencing the London Marathon herself she knew it would be a once in a lifetime opportunity for me.

The thought of taking on a marathon felt impossible. Thanks (I think?) to my sister entering the ballot on my behalf, I was given this chance.

When I started training, I couldn’t even run 1km without having to stop. I would fall over training (much to the humour of a passing bus driver!) questioning what I was even doing.

Yet here I am — and despite the fear, the doubt, and the physical challenges I carry with me every day, I’m determined to keep going.

I’m running for my mum.

I'm running for my family who had to put up with my emotions through my treatment (and every day since!)

I’m running for the frightened 18-year-old who didn’t know if she’d ever walk again, let alone run.

I’m running for everyone facing bone cancer right now.

Thank you from the bottom of my heart for standing with me. (And my wonky leg) 💛

If you’re inspired by Laura’s story and have secured your own ballot place in the 2026 TCS London Marathon, we would love for you to join our team. Find out more: https://ow.ly/ft1Y50XZCCt

We’re excited to share that we are speaking at the next GP Community of Practice webinar on the 21st January, 1-2pm, in ...
16/01/2026

We’re excited to share that we are speaking at the next GP Community of Practice webinar on the 21st January, 1-2pm, in collaboration with Macmillan Cancer Support and Cancer Research UK!

The topic will be primary and secondary bone cancers, and we have two speakers representing the primary bone cancer community:

Silvia Kraft, Policy & Awareness Officer at Bone Cancer Research Trust, through discussion with the Chair of the session will share information about the Bone Cancer Research Trust, our strategic pillars, and how we work with healthcare professionals to raise awareness of primary bone cancer.

Dr Meena Rafiq, GP & Principal Clinical Research Fellow at UCL will also share information on primary bone cancer and how to spot signs and symptoms.

Please share this post within the community and your wider networks to encourage more GPs to sign up and attend 🧡

If you're a GP, you can sign up here: https://ow.ly/S6RG50XXhQR

15/01/2026

A huge well done to all our amazing 2025 skydivers who all enjoyed a once in a lifetime experience and raised an incredible £20,346 to help those affected by primary bone cancer 🪂

Take the leap in 2026 and join for a thrilling 10,000-foot tandem skydive. Your efforts are going towards saving lives and improving outcomes 🧡

Sign up here: https://ow.ly/6E5u50XW7kn

14/01/2026

£1 million cancer research investment announced!

A new £1 million research project, funded by Children with Cancer UK in collaboration with the Bone Cancer Research Trust, will drive the development of next-generation immunotherapy for Ewing sarcoma, a form of primary bone cancer which has seen little improvement in survival rates for over 30 years.

In this video, Liv Schurer shares her sister Liberty’s heartbreaking journey with Ewing sarcoma.

Despite enduring toxic chemotherapy, limb-salvage surgery, radiotherapy and a stem cell transplant, Liberty sadly passed away just two weeks after her 14th birthday.

Through collaboration between the two charities and a network of scientists in the UK and China, led by Professor Wenhui Song at UCL, this cutting-edge research aims to deliver safer, more effective treatments and bring new hope to future patients and families affected by this rare cancer, so they don’t have to go through what Liberty and her family did.

Watch the moving video and read more about the project at: https://ow.ly/CBSV50XWEgU

Push yourself this year and take on an Ultra Challenge to support life saving bone cancer research in 2026!We have a var...
12/01/2026

Push yourself this year and take on an Ultra Challenge to support life saving bone cancer research in 2026!

We have a variety of challenges for you to join:

- Thames Path Ultra Challenge - 12th - 13th September 🥾
- Peak District Challenge - 4th - 5th July 🌳
- North Yorkshire Ultra Challenge - 20th - 21st June 🧡

Until 31st January you can get 50% off your place when choosing a full sponsorship package! Use code 'HELLO2026'

Sign up here - https://ow.ly/L48c50XVz1I

It's the new year and our amazing supporters have started strong with fundraising this   👇1. Huge thanks to Denise, who ...
09/01/2026

It's the new year and our amazing supporters have started strong with fundraising this 👇

1. Huge thanks to Denise, who held her annual craft stall at the Horsell Christmas Fair, raising vital funds in support of Flora’s Fund 🎄🧡

2. Massive thanks to Lesley, who finished off a year of fundraising with a wonderful bake sale at Broadstone Library, raising funds for adamantinoma research in support of the Liz Clarke-Saul Fund 🧁🍰

3. Lee Morris kicked off his year of fundraising for the Rhodri Jones Memorial Appeal by completing an epic 50-mile park run! Huge thanks Lee and the runners from 3M Gorseinon Road Runners who joined him 🏃🧡

4. Massive shoutout to the incredible Cadey-Paige Butler who got in the ring to take on an Ultra White Collar Boxing match, raising a fantastic amount 🥊🧡

5. A huge thank you to Peter for taking the leap and completing an incredible skydive for Freddie’s Future! What an amazing achievement! We’re so grateful for your support🪂

6. Thank you so much to Diana, who raised a fantastic amount by holding a bake sale in her army mess hall 🧁🪖

7. Alistair and Grant held their Christmas Lights BGP Fundraiser again this year and raised an incredible amount for Liberty's Legacy in memory of Gavin Russell 🧡✨

Feeling inspired? Visit https://ow.ly/6jxH50VhaOL to request your FREE digital tool kit!

Got your eye on the Great North Run? Why not make it even more meaningful 🏃 The Great North Run ballot is now open until...
07/01/2026

Got your eye on the Great North Run? Why not make it even more meaningful 🏃

The Great North Run ballot is now open until midnight on Sunday. If you’re successful, you can choose to run for the Bone Cancer Research Trust and help change the lives of those affected by bone cancer while taking on this iconic half marathon.

We’ll support you with:
- Fundraising tips and resources
- A cheer squad on the day
- The knowledge that every mile makes a difference

Apply now and, if you get a place, give it real purpose 🧡

Sign up here - https://www.greatrun.org/events/great-north-run/

Address

Leeds

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Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

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Our Story

In 2004, a group of families who had lost children and young people to primary bone cancer came together. They wanted to tackle head-on the fact that there was virtually no accessible bone cancer information, and practically no funding for research into this disease.

Determined not to accept the status quo, the families pooled funds they had already raised, and together with guidance from Professor Ian Lewis (Consultant Paediatrician and Adolescent Oncologist at St James's University Hospital, Leeds) the Bone Cancer Research Trust was registered in 2006.

The first research grants were awarded in autumn 2006. The charity's original logo was designed to show that two of the most common forms of primary bone cancer - osteosarcoma and Ewing sarcoma - tend to affect children and young people, and tend to start in the long bones of the arms and legs.

Today, the Bone Cancer Research Trust funds pioneering research into all forms of primary bone cancer and ensures that information and support are available for patients of all ages whilst raising national and international awareness of this devastating disease.