Our Story
In 2004, a group of families who had lost children and young people to primary bone cancer came together. They wanted to tackle head-on the fact that there was virtually no accessible bone cancer information, and practically no funding for research into this disease.
Determined not to accept the status quo, the families pooled funds they had already raised, and together with guidance from Professor Ian Lewis (Consultant Paediatrician and Adolescent Oncologist at St James's University Hospital, Leeds) the Bone Cancer Research Trust was registered in 2006.
The first research grants were awarded in autumn 2006. The charity's original logo was designed to show that two of the most common forms of primary bone cancer - osteosarcoma and Ewing sarcoma - tend to affect children and young people, and tend to start in the long bones of the arms and legs.
Today, the Bone Cancer Research Trust funds pioneering research into all forms of primary bone cancer and ensures that information and support are available for patients of all ages whilst raising national and international awareness of this devastating disease.