Fibromyalgia Friends Together

15/01/2026

Our first in person meeting of 2026 - Happy New Year! - https://mailchi.mp/144fb95d4b80/hear-more-about-boccia-at-our-20th-of-october-meeting-17996542

06/12/2025

Update on the UK Government's Personal Independence Payment Review

More detailed information on our website here: https://fibro.org.uk/1521-2/

The UK government has changed the scope of the PIP review to include current claimants. This could impact many people with fibromyalgia who rely on PIP for essential daily living support.

The Organise Network is collecting views from those affected.
Have your say here:
👉 https://the.organise.network/surveys/pip-review-campaign-plan?utm_source=organise&utm_medium=email&utm_campaign=blast1116350

Your experience matters — and it can help ensure the voices of people with fibromyalgia are heard. 💜

Many people in our community rely on Personal Independence Payment (PIP) to help manage the additional costs of living with fibromyalgia — including travel to medical appointments, heating, mobility aids, and daily living support.

13/11/2025

https://mailchi.mp/459410b17dd8/newsfibroorguk

At this meeting we will talking about some tips for life at this time of year which can be tough for many. This will include having a group discussions about the ways in which to deal with the pressure, strain and stress that comes from planning for Christmas.

16/10/2025

https://mailchi.mp/797f2e9a3b19/hear-more-about-boccia-at-our-20th-of-october-meeting

Shape Our Future: We'll be handing out a survey for members. Our volunteer team will explain how your feedback is essential to help us secure grant funding.

08/10/2025

Ever felt like your brain is in a fog?
For those living with fibromyalgia, fibro fog is a very real and frustrating symptom that affects memory, focus, and clarity.

Our latest infographic breaks down what fibro fog is, what can trigger it, and gentle ways to cope — because understanding it is the first step toward compassion. 💜

Fibro fog doesn’t define your intelligence or worth — it’s a symptom, not who you are.

Save, share, and remind someone they’re not alone in this. 🌿

04/10/2025

Come and visit us at Bright Hope for our next Connection Cafe.

The perfect place to meet old and new friends, we offer a warm welcoming inclusive environment.

1-3 pm- Free to attend

📌Talbot Lane, Swannington, LE67 8QT

11/09/2025

Monday 15th September 2025- Part 2 of our Staying Safe Online course 💻 -

Whether it’s shopping, staying in touch with loved ones, or managing health information, we all spend time online. But the internet also comes with risks. This session will give you easy, step-by-step tips to protect yourself and your information — no technical skills required!

14/08/2025

Our next meeting is on Monday 18th August 2025 -

Our next meeting is on Monday 18th August 2025. Please note: We can access the space between 12pm and 3pm - therefore, we cannot enter the building before this time, as there are other sessions going on within the building.

30/07/2025

Day 30: A Message to Others

💌 What would you say to someone newly diagnosed with fibromyalgia? Your voice could be exactly what someone needs to hear today.

29/07/2025

Day 29: Looking Back on the Challenge

📅 You’ve made it this far! What have you learned, remembered, or shared during this month?

28/07/2025

Day 28: Dreaming Ahead

🌈 What do you hope the future holds — for you, or for the fibromyalgia community? Hope is powerful.

27/07/2025

Day 27: Celebrating Small Wins

🎉 What’s a small but meaningful win from this week? You deserve to celebrate every single one.