Keeping up with Keira

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Keeping up with Keira

Keira is our amazing daughter who fights every day against cerebral palsy. We raise funds continually for therapy, equipment and for her every day needs.

Please follow her on her amazing journey where she continues to show cerebral palsy who's boss! Keira Marilyn is my amazing daughter who just turned 14 on 7th of Jan 2022. Keira has HIE this means her brain was starved of oxygen at birth. She also has Cerebral Palsy - Spastic Quadriplegic Dyskinetic this means that all four of her limbs are affected and she has involuntary and unorganised movements and the spasticity causes her limbs to be stiff. Keira also has a diagnosis of epilepsy. Despite her every day challenges Keira is one of the happiest little girls you would meet, her smile will brighten the darkest of your days. She communicate using her Tobii eye gaze communication device and will make you laugh if you give her a chance. Like many children using assistive technology it takes time for her to respond but she will if the person gives her a minute or two! It is important to not see a child as their disability but to just see them as every other person in the world. Keira often gets upset when people ask me questions for her as she is more than capable of nodding or shaking her head for yes and no or using her eye gaze to respond. She loves music and navigates her way through you-tube independantly finding her weekly/monthly "sounds" she mostly loves listening to Coldplay, Arctic Monkeys, Ed-Sheeran, Harry Styles, The Cure and Pink Floyd. I believe some of these she likes and may remember from me listening to when she was in my belly! We will enjoy concerts together I know we will! Follow her on instagram to also keep up to date with her teenage antics!!

25/03/2026

School shenanigans 🤪 Messy paper mache, cooking, shopping, shredding, the list goes on...... School can be fun 😁 Just why does it have to start soooooooo early when I'm in my cosy bed 🤣

18/03/2026

A few pics of me enjoying my last year of school 😮‍💨💓 I will definitely miss school, but BIGGER and better to come, just wait and see.........

07/03/2026

❤️🌟🌠🤩❤️

02/03/2026

This is the face of "get me back home in my cosy bed, please." 😆 Frame Running Season has started 👌

28/02/2026

Another fantastic afternoon at Pamis Inclusive Art 🎨 club ✨️ We absolutely love the end of the month so we can get arty and messy. Today was definitely less messy than last month 😆 Spring is on its way 🌷🌼🌺🌻⚘️🥀🌸

19/02/2026

Busy busy little me! I keep telling Mum and Dad that I can't wait to finish school, but all said and done, I think I'm going to miss it. I think the reason I tell myself that I don't like it is because I hate getting up out of my cosy bed in the morning. Who's idea was it to make school so early?

06/02/2026

Very productive couple of weeks at school 💖 Can't believe it's Miss Keiras last year at school 😢 Navigating next steps is very overwhelming, finding a placement that meets all of her physical needs as well as mental and emotional needs is hard. We have been extremely lucky with school in Spain and here, having it close to where we live. All adult services that Miss Keira loves are outside our catchment area. Don't worry 😉 I'm advocating my bahooty off to get the right place/places for our amazing girl 💖 Stay tuned........

31/01/2026

Another fantastic afternoon at Pamis Inclusive Art 🎨 ❤️ When you end up with paint on your face, hands, floor, and clothes, you know it's been a good day 😆

25/01/2026

Fresh juice ✔️
Fresh blended food ✔️

Juice today is beetroot, pineapple, ginger, orange, cucumber, and carrot.

Food is broccoli, potato, spinach, turmeric, garlic, and olive oil.

What we put in our body is important, especially in the winter months with all the bugs going around. Hope everyone had a great weekend and hugs for those going through anything at the moment 💛

24/01/2026

A bit of badminton 🏸 this morning with mum and Auntie Pinz ❤️ followed by an afternoon chilling in bed watching TV, then a little sitting watching Deal or No Deal with the oldies 👩‍🦳🧑🏽‍🦲 A good Saturday ❤️

21/01/2026

Weekend walks with my absolute favourite person in the world 🌎 My little brother 💙 He makes walks fun because mum and dad are boring!!

07/01/2026

18 years of loving you ♥️ You are indeed the most amazing little lady and we are so proud to call you our daughter ❤️ Keep shining ✨️ Keep being you, perfect just as you are ♥️

Address

Almondvale Avenue
Livingston
EH54 6QX

Website

https://www.sullivansheroes.org/projects/keiras-big-build/

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