The Chronic Collaboration

Home
United Kingdom
London
The Chronic Collaboration

A new resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equity.

04/03/2023

The Chronic Collaboration has decided to return with another protest, in the wake of the sheer number of people with ME seriously ill in hospital, or dying.

So, a brief run-down of our protest , over the NHS's treatment of and - or lack of. We'll be at Old Palace Yard, opposite parliament, on Weds 8 March at 12:30pm. You won't be able to miss us.

HOWEVER, what if you can't make it?

You can obviously still get involved.

1. We're livestreaming it onto socials
2. Send us your photo & we'll put you on the stream
3. Tweet from 12:30pm on the day

We know most people won't be there. But if you can be online, its perfect. So, what are we doing?

We have three demands of people who currently have some sort of power in this equation: the APPG on ME, the HSC select committee & obvs the DHSC.

On the day, tweet at these people. Tell them your story. Use . Let's go .

17/09/2021

Welcome to the Chronic Collaboration.

It has been created in response to the recent refusal of NICE to publish the long-awaited ME guidelines. Many people with ME would like to protest this decision along with the years of medical neglect & mistreatment they have faced due to the psychologisation of ME after the scientifically flawed PACE trial, part funded by the Department for Work and Pensions.

Not only has this caused medical abuse in patients with ME, it’s having a huge impact on the treatment and further investment of many other patient groups: from people living with chronic pain and medically unexplained symptoms (MUS) to fibromyalgia and long Covid. There are literally ‘Millions Missing’ globally and thousands of disabled people with ME in the UK who are desperate for their voices to be heard, represented and just taken seriously in many cases. Our group, and this protest, aims to do that.

So, on Monday 20 September at 1pm, us, members of the ME community, their families and allies will be holding an emergency peaceful protest outside NICE HQ in Stratford (2 Redman Place, London, E20 1JQ) over its delay in publishing the new guidelines for treatment of this chronic disease.

If you can attend - please do.

If you can't - email us a photo and we will display it on the day. Send it to hello(at)thechroniccollaboration.com

You can also send us a two minute or less video with your personal thoughts on NICE delaying publication of the guidelines. Use www.wetransfer.com and our email address to send these.

Get involved on social media. Use and .

The time to resist is now. Enough is enough.

Address

London

Website

http://www.thechroniccollaboration.com/

Alerts

Be the first to know and let us send you an email when The Chronic Collaboration posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.