
15/08/2025
Meet Gabrielius, a cheerful 12-year-old and the biggest Messi fan we know.
He was diagnosed with RDEB, a skin condition that causes severe blistering and scarring at birth and has been cared for by Great Ormond Street Hospital ever since.
“The first two years were really hard as you had to watch him constantly – even rubbing his eyes could cause painful blistering.” Says mum, Jolita. “He couldn't even tell us how much pain he was in or where he was hurting.”
Currently there is no effective treatment for RDEB, but a new research trial run by clinicians at GOSH has found a way to improve the symptoms for some children like Gabrielius.
While he still can’t do all the things most kids can, taking part in the trial meant Gabrielius found his wounds healed faster and was able to sleep through the night much more.
“I was excited to see if the trial could improve my condition so I could do more of things I enjoy like playing football and spending time with my friends.” Says Gabrielius.
You can find out more about the clinical trial and the treatment opportunities it’s opened up on the GOSH website.
[Image descriptions:
1 Gabrielius stands on a beach holding a brightly-coloured bodyboard.
2 Gabrielius playing kick-ups with a football on the beach.
3 Gabrielius poses in front of a lake during a hike.
4 Gabrielius poses for the camera in front of the Eiffel Tower.]