28/02/2026
“Although he lost a lot of himself by losing his ability to walk, he’s found his own ways to do some things. I think everything he’s been through has made him extra hilarious.” Elise, Trey’s proud mum. 🩵
This Rare Disease Day, we’d like to introduce you to Trey. He’s just one of 12 people in the world living with a rare type of muscular dystrophy.
After suddenly becoming unwell last January, Trey went into multiple organ failure and was placed on life support. His only chance was a heart transplant.
Trey was added to the urgent transplant list and six days later received a life-saving heart transplant here at Great Ormond Street Hospital.
“Trey was such a superhero. His body took to the new heart so well with not a single sign of rejection. We’re so thankful that we’re still in the same position today.”
He still needs regular check-ups with his favourite nurses but we're pleased to share Trey’s attending school part-time and enjoys gaming.
[Image descriptions:
1 Trey with a therapy dog on his lap.
2 Trey smiling sitting in his wheelchair and holding a piece of cake.]