Behçet's UK

Behçet's UK Caring for all affected by this rare, complex and lifelong condition.

Do you want to cut down on your Christmas card list this year? 🎄 Send e-cards instead and donate the cost of cards and s...
27/11/2025

Do you want to cut down on your Christmas card list this year? 🎄 Send e-cards instead and donate the cost of cards and stamps to Behçet's UK!

Start sending e-cards today through DontSendMeACard.com 👉 https://www.dontsendmeacard.com/ecards/charities/behcets-uk/christmas

There are various designs available, including Behçet's UK logo baubles.

Thank you to everyone who already uses Don't Send Me A Card to support Behçet's UK ❤

[Image Description: Illustration shows a happy Father Christmas sitting on a chimney on a snowy rooftop, looking at a laptop on his lap, and holding a paper list in one hand. Text reads 'Send Christmas eCards and donate the cost of cards and stamps!'. Beneath the illustration is the logo of Don't Send Me A Card].

Don't forget, if you’d like to order our Christmas cards and/or merchandise, to ensure that your order gets to you in ti...
26/11/2025

Don't forget, if you’d like to order our Christmas cards and/or merchandise, to ensure that your order gets to you in time for Christmas we ask that you order before Thursday 4 December, and send your payment by Monday 8 December.

We can accept orders after this date but cannot guarantee your order will get to you in time for Christmas. 🎅

Order on our website by filling in the order form. https://behcetsuk.org/merchandise/

You will then receive an invoice (usually the next working day), which will contain details on how to pay.

Thank you to everyone who has already ordered. Our cards and merchandise help to raise both funds and awareness. ❤

[Image Description: Close-up photo of a round Behçet's UK enamel pin badge on a Christmas jumper. The badge features our red tulip symbol with the words 'Behçet's UK. Rare. Complex. Lifelong. around it].

Vice-chair Catherine O'Hara is hosting a support group meeting via Zoom on Tuesday 9 December 2025 at 7pm - 8:30pm for a...
25/11/2025

Vice-chair Catherine O'Hara is hosting a support group meeting via Zoom on Tuesday 9 December 2025 at 7pm - 8:30pm for any adults affected by Behçet's and living in Scotland.

Meeting topic: General meeting
This session will be a general support group meeting, where everyone can chat and ask questions. Catherine will guide the discussion based on your input.

Note: We do not offer medical advice. This meeting is to signpost you to information available online and discuss what works for others to encourage conversations with your own medical team about symptoms and treatment. Any discussions are anecdotal and must be treated as such.

If you are interested in joining this meeting, please visit our Behçet’s Support Group page and complete the online registration form by 11:30am on Tuesday 9 December 2025. https://behcetsuk.org/support-groups/

[Image Description: Photo shows a cup of coffee next to a laptop and a notepad and pen on a wooden table. Text says “Behçet’s Scotland Support Group Meeting. Tuesday 9 December 2025 at 7pm - 8:30pm via Zoom”]

Don't forget, Behçet’s UK Trustee Fionnuala McKinley, is hosting the first online support group for spouses and partners...
24/11/2025

Don't forget, Behçet’s UK Trustee Fionnuala McKinley, is hosting the first online support group for spouses and partners of people living with Behçet’s next week on Monday 1 December 2025, 19:00 – 20:30.

“When a partner develops a long-term chronic illness like Behçet’s, it affects more than just the person living with the condition. Family, friends, and co-workers may feel the impact, but often the greatest effect is on their spouse or partner.”
Fionnuala McKinley, Behçet’s UK Trustee

This group provides a safe and supportive space for anyone living in the UK whose spouse or partner has Behçet’s to share their thoughts and connect with others in similar situations who understand what they’re going through.

The group is open to spouses and partners (18+) of people living in the UK who have been diagnosed with, or are seeking a diagnosis of, Behçet’s.

Meeting topic: General meeting
This session will be a general support group meeting, where everyone can chat and ask questions. Fionnuala will guide the discussion based on your input.

How to join
If you are interested in joining this meeting, please visit our Behçet’s Support Group page: https://behcetsuk.org/support-groups/ and complete the online registration form by 11:30am on Monday 1 December 2025.

[Image Description: Close-up photo of a cup of coffee next to a laptop. Text reads 'Behçet's Spouse and Partner Support Group Meeting. Monday 1 December 2025 at 7pm - 8:30pm via Zoom'].

Nominations for the 2026 Members Award are now open! ⭐️The Behçet’s UK Members Award was created to recognise:The contri...
20/11/2025

Nominations for the 2026 Members Award are now open! ⭐️

The Behçet’s UK Members Award was created to recognise:
The contribution of individuals who, have been instrumental in supporting, and improving the quality of life, independence, and dignity of anyone in the Behçet’s UK Community.

Find out more and nominate someone on our website: https://behcetsuk.org/buk-members-award/nominate/

[Image Description: A digital illustration of two spotlights shining on to a glass award which is engraved with the Behçet’s UK logo, and the words “Members Award 2026 – Your nominee?” on it. Below the digital image it says “Behçet's UK Members Award 2026”].

📢 The 2025 Behçet's Quality of Life Survey will close tomorrow, Thursday 20 November!Working in association, the Behçet’...
19/11/2025

📢 The 2025 Behçet's Quality of Life Survey will close tomorrow, Thursday 20 November!

Working in association, the Behçet’s Patients Centres and Behçet’s UK launched the 2025 Quality of Life Survey for patients and members diagnosed with Behçet’s. This will be familiar to the longer-term Behçet’s UK members and patients of the Behçet’s Centres of Excellence, as it is very similar to the questionnaire from 2020.

The 2025 Behçet’s Quality of Life Survey is an online survey; not only will that keep costs of producing the survey to a minimum, it will also allow for the results to be analysed and made available much quicker.

To access the survey, please follow the link below.

https://survey.alchemer.eu/s3/90808107/2025-BEH-ET-S-QUALITY-OF-LIFE-SURVEY

Thank you 🙌

[Image Description: Close-up photo of someone holding an iPad. Text says '2025 Behçet's Quality of Life Survey'. The logos for Behçet's Patients Support and Behçet's UK are shown at the bottom alongside the words 'Working in association'].

📢 SUPPORT GROUP MEETING THIS EVENING 📢Don't forget, Behçet’s UK Chair, Tony Thornburn, is hosting a new Men’s Behçet’s S...
18/11/2025

📢 SUPPORT GROUP MEETING THIS EVENING 📢

Don't forget, Behçet’s UK Chair, Tony Thornburn, is hosting a new Men’s Behçet’s Support Group Zoom this evening, Tuesday, 18 November 2025, 19:30 – 21:00. This group is for any men affected by Behçet’s living in the UK.

Meeting topic: General meeting
This session will be a general support group meeting, where everyone can chat and ask questions. Tony will guide the discussion based on your input.

If you are interested in joining the meeting, please email Tony via info@behcetsuk.org

[Image Description: Close-up photo of a man holding a cup of coffee whilst on his laptop. Text says 'Men's Behçet's Support Group Meeting. Tuesday 18 November 2025 7:30pm - 9pm via Zoom'].

Behçet’s UK Trustee Fionnuala McKinley, is hosting the first online support group for spouses and partners of people liv...
17/11/2025

Behçet’s UK Trustee Fionnuala McKinley, is hosting the first online support group for spouses and partners of people living with Behçet’s on Monday 1 December 2025, 19:00 – 20:30.

“When a partner develops a long-term chronic illness like Behçet’s, it affects more than just the person living with the condition. Family, friends, and co-workers may feel the impact, but often the greatest effect is on their spouse or partner.”
Fionnuala McKinley, Behçet’s UK Trustee

This group provides a safe and supportive space for anyone living in the UK whose spouse or partner has Behçet’s to share their thoughts and connect with others in similar situations who understand what they’re going through.

The group is open to spouses and partners (18+) of people living in the UK who have been diagnosed with, or are seeking a diagnosis of, Behçet’s.

Meeting topic: General meeting
This session will be a general support group meeting, where everyone can chat and ask questions. Fionnuala will guide the discussion based on your input.

How to join
If you are interested in joining this meeting, please visit our Behçet’s Support Group page: https://behcetsuk.org/support-groups/ and complete the online registration form by 11:30am on Monday 1 December 2025.

[Image Description: Close-up photo of a cup of coffee next to a laptop. Text reads 'Behçet's Spouse and Partner Support Group Meeting. Monday 1 December 2025 at 7pm - 8:30pm via Zoom'].

If you missed our 2025 Conference and AGM, it is now available to watch again: https://behcetsuk.org/conference/2025conf...
14/11/2025

If you missed our 2025 Conference and AGM, it is now available to watch again: https://behcetsuk.org/conference/2025conf/

Choose to watch either the entire morning or afternoon sessions, or if you're short on time, you can watch the individual talks.

Don't forget to subscribe to our YouTube channel as well: https://www.youtube.com/ 👍

[Image Description: A photo of attendees in the conference room at the Pentahotel Reading for the Behçet’s UK 2025 Conference & AGM on Saturday 18 October].

📢 SUPPORT GROUP MEETING THIS SUNDAY 📢Don't forget, Trustee, Amanda Moseley, is hosting a Parents and Guardians Online Su...
13/11/2025

📢 SUPPORT GROUP MEETING THIS SUNDAY 📢

Don't forget, Trustee, Amanda Moseley, is hosting a Parents and Guardians Online Support Group Zoom this Sunday, 16 November 2025, 14:00 – 15:30.

Parents and guardians of children and young people with Behçet’s face challenges—medical, emotional, and practical—that can sometimes feel overwhelming and isolating.

This support group offers a safe and welcoming space where you can connect with others who understand your journey. Share experiences and ask questions on everything from managing symptoms and treatments to navigating school and daily life.

The group is open to parents and guardians aged 18 or over living in the UK who have a child diagnosed with, or seeking a diagnosis of, Behçet’s.

Meeting topic: General meeting
This session will be a general support group meeting, where everyone can chat and ask questions. Amanda will guide the discussion based on your input.

How to join
If you are interested in joining this meeting, please visit our Behçet’s Support Group page and complete the online registration form by 11:30 am tomorrow, Friday 14 November 2025. https://behcetsuk.org/support-groups/

If you are unable to attend this meeting but would like to receive invitations to future meetings, please complete the online registration form at any time.

Frequently Asked Questions
If you’d like to learn more about our support groups, please view our Frequently Asked Questions. https://behcetsuk.org/support-groups/
If you have any other questions, please feel free to email us at info@behcetsuk.org

Remember
Behçet’s Support Groups are run by volunteers with personal experience of Behçet’s or long-term involvement in the Behçet’s community. While Behçet’s UK and our volunteers cannot provide medical advice, we can guide you to reliable information. Hearing about what has worked for others can also support your conversations with your own healthcare team.

Our groups offer peer support – stories and tips shared in the groups reflect individual experiences. What works, or doesn’t work, for one person may not be the same for others. You must never delay seeking medical advice, ignore professional guidance, or stop/change your treatment based on information shared in support group meetings.

[Image Description: Photo of a woman sitting on a sofa and looking at a laptop on a coffee table. Text says 'Behçet's Parents and Guardians Support Group Meeting. Sunday 16 November 2025 2pm - 3:30pm via Zoom'].

📢 The deadline for the 2025 Behçet's Quality of Life Survey is approaching!The survey will close next week on Thursday 2...
13/11/2025

📢 The deadline for the 2025 Behçet's Quality of Life Survey is approaching!

The survey will close next week on Thursday 20 November 2025.

Working in association, the Behçet’s Patients Centres and Behçet’s UK launched the 2025 Quality of Life Survey for patients and members diagnosed with Behçet’s. This will be familiar to the longer-term Behçet’s UK members and patients of the Behçet’s Centres of Excellence, as it is very similar to the questionnaire from 2020.

The 2025 Behçet’s Quality of Life Survey is an online survey; not only will that keep costs of producing the survey to a minimum, it will also allow for the results to be analysed and made available much quicker.

To access the survey, please follow the link below.

https://survey.alchemer.eu/s3/90808107/2025-BEH-ET-S-QUALITY-OF-LIFE-SURVEY

Thank you 🙌

[Image Description: Close-up photo of someone holding an iPad. Text says '2025 Behçet's Quality of Life Survey'. The logos for Behçet's Patients Support and Behçet's UK are shown at the bottom alongside the words 'Working in association'].

If you’d like to order our Christmas cards and/or merchandise, to ensure that your order gets to you in time for Christm...
13/11/2025

If you’d like to order our Christmas cards and/or merchandise, to ensure that your order gets to you in time for Christmas we ask that you order before Thursday 4 December, and send your payment by Monday 8 December.

We can accept orders after this date but cannot guarantee your order will get to you in time for Christmas. 🎅

Order on our website by filling in the order form. https://behcetsuk.org/merchandise/

You will then receive an invoice (usually the next working day), which will contain details on how to pay.

Thank you to everyone who has already ordered. Our cards and merchandise help to raise both funds and awareness. ❤

[Image Description: Photo shows a selection of Behçet’s UK merchandise on a rustic-looking table. There is a keyring, a metal pen, a plastic pen, a round enamel pin badge, and a tulip enamel pin badge on a backing card. Around the merchandise are some festive red Christmas stocking fairy lights, which are decorated with white snowflakes].

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+443451307328

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About Behçet’s UK (formerly Behçet’s Syndrome Society)

Behçet’s UK (formerly Behçet’s Syndrome Society) was formed in 1983 by Judith Buckle (1950-1997).

Behçet’s UK represents all Behçet’s patients in the UK including those yet to be diagnosed. Reducing time to diagnosis is our top priority, reliant upon raising comprehensive awareness of Behçet's amongst all clinicians within NHS primary, secondary and tertiary care.

We strive to secure the best care for all Behçet's patients and assist carers, parents and relatives. We promote research into the cause, effects, treatment and management of this rare, complex and debilitating disease.

Having helped to establish 3 Behçet’s Centres of Excellence in England, we now lobby for proper comprehensive care in Wales, Scotland and Northern Ireland.