https://www.facebook.com/419944781206636/

Living with Multiple Epiphyseal Dysplasia and Fibromyalgia

Home
United Kingdom
London
Living with Multiple Epiphyseal Dysplasia and Fibromyalgia

Multiple Epiphyseal Dysplasia is a genetic condition

28/10/2025

Hot baths are awesome !
🛁🛀🫧

17/09/2025

When pain is always there, and people ask you: how are you? And you say: oh I am great, I feel great!
And they think you had no pain in that moment…
It is ok, they don’t need to know, they don’t need to understand…
Some time ago, I used to feel I was lying, but with time I accepted that I am feeling great, it is not great in their point of view or judgement but it is MY GREAT! I don’t have to tell them or explain that my great is with pain in all my joints and brain-fog and IBS issues on a daily basis.
Sometimes I feel fudging FANTASTIC because I have no migraine on that day or I feel less bloated…
My way of feeling amazing is different but it is still amazing! ☺️

26/07/2025

Streching is a challenge.
Don’t know about you guys but I hot hurt and lost part of my mobility from not knowing my stretching limits. So, be careful. Stretching is important but know your limits.
Also, morning/ lazy stretch is dangerous for me. I dislocate something in my neck many times from this. I think it is the tendon. Anyway. I hope you guys are able to find your limits and challenge the slowly not to gee hurt.
Sending love to all.

11/05/2025

Breathe and Bloom

Inflammation isn’t just physical—it’s emotional too.
Breathwork, gentle fasting, magnesium cream, and mindful eating have helped reduce the burning inflammation that often comes with fibromyalgia.

Sometimes the most healing thing you can do is slow down, breathe deeply, and trust your body’s rhythm.

If you’re navigating pain, you are not alone. You can heal gently.

10/05/2025

Nourish to Heal

Managing inflammation has become a big part of my journey with fibromyalgia.
One thing that’s helped me deeply is using food as medicine:
• MCT oil and extra virgin olive oil for healthy fats
• Nigella seeds (black seed) for immune support
• Chia, turmeric, ginger, and spirulina for calming inflammation

It’s not about perfection. It’s about listening to your body and choosing nourishment.
Every step counts.

09/05/2025

Start with One Sip

Gentle tip from my healing journey:
Every morning, I drink warm water with turmeric, ginger, and cayenne pepper. These humble spices are powerful anti-inflammatories and have helped soothe my body over time.

Small daily rituals like this really add up.
If you’re living with chronic pain or fibromyalgia, start with one sip.
You can do it too.

06/05/2025

Not Perfect, But Progress
I don’t always get it right. I still have flare-ups. I still need rest.
But I’ve learned how to care for myself with gentleness.
Fibromyalgia taught me that health isn’t about perfection — it’s about attention.
And when I pay attention to my breath, my food, my nervous system… something shifts.
Hope grows.
Healing begins.
This path is possible. One day at a time.

05/05/2025

Nourishing My Way Forward
I used to feel helpless in my own body some days.
Then I found power in what I could do — like adding chia seeds, turmeric, good oils, and magnesium-rich foods to my daily routine.
I learned that fasting can calm the chaos inside.
And I started to feel… different. A bit lighter.
There’s still pain — but now there’s also purpose.
If you’re lost, try nourishing yourself from the inside out.
Small steps, real change.

04/05/2025

A Letter to My Past Self
Dear Me (from before the pain got big),
It’s going to be hard. But you’ll learn so much.
You’ll discover that even when movement hurts, stillness can heal.
You’ll feed your body with kindness, and it will thank you.
You’ll find moments of peace, even inside the storm.
Don’t give up.
Love,
Me (today — breathing easier)

03/05/2025

My Fibro Toolkit (Natural Edition)
Living with fibromyalgia taught me to listen deeper to my body.
Here’s what I lean on most:
• Gentle fasting (when I can)
• Anti-inflammatory foods
• Natural supplements like magnesium, vitamin D3 + K2
• Breathwork and mindful rest
These aren’t cures. But they’re tools. And they help.
We don’t have to do everything at once. One small change can open a door.
You’re not alone.

02/05/2025

The Power of Small Shifts
Some days, fibromyalgia feels overwhelming. But little by little, I started changing things: how I eat, how I breathe, how I rest.
Fasting gently, adding healing foods, and trusting natural supplements gave me moments of clarity, lightness, and less pain.
It didn’t happen overnight — but it did happen.
If you're struggling, start with one small thing.
Maybe add a small walk to your day, 5 minutes would be good already.
You might be surprised what shifts.
You can do it too.

Address

London

Website

facebook.com

Alerts

Be the first to know and let us send you an email when Living with Multiple Epiphyseal Dysplasia and Fibromyalgia posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Featured

Help Mind Body
Acorn Andrology
Enfield