Lets Talk HAN

26/04/2024

Good morning Tubies and Foodies...
Hope everyone is doing as well as they can.

Stay Strong Stay Focused

Not long now until my first challenge of 2024..

Final preparations this weekend..

12/03/2024

Morning Tubies n Foodies

Well this will be my 14th day without vitamins. Hopefully get them today as I rang up yesterday, if I hadn't of rang up my next delivery is March 21st, this means I wouldn't had no vitamins for over a month.

Complained to homecare and had no response. 22nd & 27th Feb

Complained to LRI LIFT team who said they would contact the homecare team. 27th Feb

11th March I rang the homecare team to enquire if LRI LIFT tram had been in contact with them, I did say I was never going to ring the homecare team ever again, buy needed to know if LRI had contacted them. The answer was NO they haven't been intouch.

27th Feb Homecare team was rude and unprofessional when I asked to speak to a manager I was talking on the 21st Feb who assured me my delivery on the 22nd would be OK, which it wasn't, missing items and items I said I didn't need.

I have been feeling chit for the last 6 months however I've had this headache now since Saturday, its not lifting and I'm unable to take medication.

I am now going to contact CQC as I want a different care team.

I'm sick of calling the homecare team and LRI LIFT team.
For the last 6 months my deliveries have been messed up. And I found out yesterday, that the Homecare team had messed my prescription up in Feb after spending an hour on the phone going through it.

My vitamins bags I have to dilute them in are 250ml for some reason after going through the list with them its stated 100ml bags.

Just frustrating and your being told make sure you take the vitamins as my bloods have been all over the place since September.
I've lost all confidence with it all now, and for those who know me, know I really hate being on this feed bo****ks and I'm sick of being stressed and the anxiety it is causing me.

21/02/2024

What a constructive telephone conversation I've just had with Llyods Homecare.
Finally someone listened to my concerns.
Hopefully things can move forward and I've been assured that the company is still working to improve the PN service and hopefully make it more easier for them.
They have had a new system put into place and now the CQC 2023 report is all good but Llyods have told me that still want to improve.

21/02/2024

So the NHS knows our homecare isn't fit for purpose.

https://www.nhs.uk/services/independent-sector-provider/lloydspharmacy-clinical-homecare/AW6/ratings-and-reviews
This is what I've been complaining about for over 2 years. No Mps or Medical ombudsman or the media have been interested.

Never had my first delivery yet, and still awaiting that. Despite several conversations that they've had my prescription since 7th Feb, and a duplicate on 13th Feb, they now say they can't find it. Really seriously worried after reading these reviews. Had no medication for my pain for months, and st...

21/02/2024

Morning Tubies and Foodies
Well another day, hopefully I've connected right this time. No distractions..
Well today i will be taking on one of the feed company.
On how they do their logistics as im sick of us tubies not getting the right deliveries. If this was Tescos or Asda and your deliveries were keep being messed up, you would leave suppliers, unfortunately Tubies can't do that as there is only 3 major companies that deliver our feeds and ancillaries who are contracted to the NHS.
It's always down to that patient to chase up these deliveries.
It's stressful enough having to watch everyone eat food and then having to connect to your feed for 12 hours minimum. Me personally I hate ever second of it.
Looking at new pathways to make it easier on the Tubies and their families.

13/02/2024

Good Morning Tubies and Foodies
Hope you are all well.

03/02/2024

30/01/2024

https://www.facebook.com/share/JD6CcrqzfffCSepy/

Our national carer card & app supports you when caring for someone. Discounts, Wellbeing, and more.

25/01/2024

Morning Foodies and Tubies
Had a lovely cuppa and chat today with Kaz Pickering.

New Year, New Approach.

Calling all Tubies and their family members in the Leicestershire area, I'm planning a group meeting within the next few months.
Do you or a loved one have a spare 2 hrs a week?
Looking for new pathways to hopefully get support for those who are unable to eat food, come and share your journey with us.
So if you know anyone who depends on Artificial Nutrition or a family member who is supporting their love ones please could you share this post as this would be much appreciated..

16/01/2024

With God as my witness
I walk through the valley of the shadow of sickness
I fear no evil
I need no forgiveness
"Deliver me from temptation" – he never listens