olivers journey with bws and cdc

olivers journey with bws and cdc Oliver was born with beckwith weidemann syndrome and cri du chat syndrome

Our little mandalorian for World book day, thanks to family fund for the adaptive costume
05/03/2026

Our little mandalorian for World book day, thanks to family fund for the adaptive costume

Rare disease day.. a day for everyone to spread awareness of the diseases and syndromes they face everyday. Oliver has b...
28/02/2026

Rare disease day.. a day for everyone to spread awareness of the diseases and syndromes they face everyday.

Oliver has been an absolute warrior his whole life and has dealt with far more than anyone should face let alone a child but he does it all everyday with a smile on his face and we couldn't be prouder,yes he might not make them milestones normal parents can celebrate but we will continue to celebrate the small ones that may seem so irrelevant to any other parent.

Olivers been weighed today and is now 19.8kg (3.1 stone) no wonder my back aches all the time from carrying him round,bu...
27/02/2026

Olivers been weighed today and is now 19.8kg (3.1 stone) no wonder my back aches all the time from carrying him round,but he's so gorgeous 😍

Yesterday was olivers 4th birthday. The first birthday hes ever actually been home for and not stuck in a hospital 70mil...
26/01/2026

Yesterday was olivers 4th birthday. The first birthday hes ever actually been home for and not stuck in a hospital 70miles away. We had a lovely day taking him to the deep in Hull which he really enjoyed.

14/01/2026

Hes absolutely mad but he always puts a smile on your face. Oliver has been to hell and back and yet is still one of the happiest kids I have ever met

And I can breathe again.. all clear on his cancer scan and xray for another 3months 💙 here's to hoping this year is a be...
14/01/2026

And I can breathe again.. all clear on his cancer scan and xray for another 3months 💙 here's to hoping this year is a better one and we can maybe have his first of 4 birthdays at home next week 🤞🤞

03/01/2026

Hes so clever 🥰

Xmas 2025
03/01/2026

Xmas 2025

10/12/2025

So proud of Oliver and how well he's doing with his hand eye co-ordination, he's learnt to stack his rings on the stacker which may not seem alot to many but for Oliver Is a massive milestone to have reached. 💙

Last night we took Oliver to the zoes place Xmas light switch on, he loved all the lights and snow machine. Got to see s...
03/12/2025

Last night we took Oliver to the zoes place Xmas light switch on, he loved all the lights and snow machine. Got to see santa and Mrs claus,donkeys and meet some Middlesbrough football players 🎅🤶

17/11/2025

World prematurity day 2025. Far from the smallest baby in the nicu as he was born at 11lbs but hes such a fighter 🥰

10/11/2025

Oliver loved fireworks at the weekend, laughing away at them all night

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Thirsk
North Yorkshire

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