olivers journey with bws and cdc

olivers journey with bws and cdc Oliver was born with beckwith weidemann syndrome and cri du chat syndrome

A year this month since chemotherapy stopped and today hes been given the all clear for another 3months 🥳🙌 we can now re...
08/10/2025

A year this month since chemotherapy stopped and today hes been given the all clear for another 3months 🥳🙌 we can now relax again for a little bit

Oliver looking so grown up and gorgeous tonight 🥰
24/09/2025

Oliver looking so grown up and gorgeous tonight 🥰

A few pics of olivers little holiday to centerparcs last week 🥰 also his new stander and boots that have arrived
17/09/2025

A few pics of olivers little holiday to centerparcs last week 🥰 also his new stander and boots that have arrived

Oliver finally got his new stander today 🥰
02/09/2025

Oliver finally got his new stander today 🥰

Olivers had a lovely time this afternoon at zoes place baby hospice summer party 🥳
22/08/2025

Olivers had a lovely time this afternoon at zoes place baby hospice summer party 🥳

Some school holiday fun
19/08/2025

Some school holiday fun

Dietician appointment today went well, first time she has seen Oliver since he was discharged in March and she couldn't ...
19/08/2025

Dietician appointment today went well, first time she has seen Oliver since he was discharged in March and she couldn't believe the difference compared to when he was admitted in January, she was happy with his weight, just waiting on his nutritional bloods coming back and his potassium was abit low, we are going to try again to introduce the next stage milk as olivers never managed to tolerate more than the under 1 baby formula so fingers crossed 🤞

Messy flour play for Oliver today 🥰
29/07/2025

Messy flour play for Oliver today 🥰

12/07/2025

Do any of my medical mum friends have tips regarding oxygen tubing overnight?

This morning i woke up to the oxygen tubing wrapped round olivers neck 3times, I had to undo it from the cylinder to unwrap it as it was so tight and left a red mark. I have it wrapped round the cylinder anyway a few times so he has less tubing to cause any problems but it's still happened.

I am going to be on the phone 1st thing Monday to try get a medical team meeting to try help,but I'm dreading bedtime tonight

'Jelly belly' cancer scan and xray done today...both all clear, Quentin is very happy with him and his progress.
04/07/2025

'Jelly belly' cancer scan and xray done today...both all clear, Quentin is very happy with him and his progress.

02/07/2025

Oliver is absolutely full of it lately, laughing at oreo playing with his dog rope. It's so lovely to see him back to his old self 🥰

No updates on Oliver lately, he's doing very well , he has gained weight really well(minus this 2 weeks where he's lost)...
30/06/2025

No updates on Oliver lately, he's doing very well , he has gained weight really well(minus this 2 weeks where he's lost) he's really happy and content again like he used to be which is lovely to see, we do have his next cancer scan/xray this week so the anxiety is creeping back in. He's had his first haircut since his cancer shave last year so he's looking very grown up again 😍

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Thirsk
North Yorkshire

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