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Move Forward With Me, Norwich (2026)

29/02/2024

Today is

Over 300 million keen to share more understanding.

Like anything that impacts on your wellbeing, the most prominent thing that stands out for me is the lack of knowledge and understanding around an individual experience.

Each will have such a broad diversity of symptoms that whilst at times common, differ from person to person.

Having recently had a diagnosis radically change from that of an intramedullary c3 spinal cord tumour to cavernoma (rarer than brain cavernomas and symptomatic rarer…) I can fully appreciate the difficulty around access to any treatment or connection throughout the clinical peeps that has impacted and resulted in a much less than holistic approach to handling of my circumstances overall. This recent change was a year from having last been seen and many more years on from first registering odd symptoms.

I am grateful to have come across the Cavernoma Alliance Org and recently attended an online discussion with around 60 others from all over the world listening to a discussion with a neurosurgeon with a specialist interest in a range of brain and spinal disease with expertise in vascular neurosurgery based, UK based. The common thread was evident amongst the broad diversity of symptoms and peoples experience.

While not currently working, I always advocate for those who are struggling with their mental and or physical wellbeing, the broader understanding of the root cause for that and looking for the overall best long-term solution that suit and can fit the individual as no one size fits all in anything, diagnosis or situation alike.

People do and will always unfortunately judge a situation based on a snapshot, and we hear so much nowadays about finding your ‘tribe’. Not always easy to do when others are quick to input without any listening at all. So, I always prefer to say find at least 1, the 1 person who can listen and do their best to understand what you go through, or that 1 place where information is relatable to you because sometimes it is necessary to chunk things down rather than adding any further overwhelm on top of an already overwhelming situation.

Share your hashtag if you have one and let’s raise more awareness and generate more change -

22/12/2023

🎄With Christmas so near, my wish is you enjoy this time of the year, albeit I'm conscious not all shall be able to share such cheer...

It's often a time to reflect and I've certainly done so myself a lot regards this past year. No amount of planning could have had me prepared for such an emotional year.

Tears, scares and usual routines that have disappeared...

Getting diangosed with a spine cord tumour inside the spinal cord near the central nervous system really does fill you with fear. We can all appreciate how the word tumour itself is something we all really do wish we can veer.

For sure it is not something I'd wish on any one person out there.

I cannot fully express how long it's taken me to wrap my head around the news from last year. Living with watch and wait is not an easy game and certainly caused a pause on certain things that's for sure.

But little by little with the help of those closest by that I hold dear, I am finding out as much as I can so I can be clear.

I have stripped things right back, slowed down more as I build on my mental strength even more.

I really do appreciate all the trainings and things I have learnt over the years, otherwise my outlook would be at zero likely on the floor!

I'll just say that whilst people can 'look fine', it's not necessarily the case and I've always done my best to remind myself there is more to a person's story than any single snapshot that may be seen on here.

I wish you all find some joy in the form of whatever you do, whoever you do it with, or don't...however your time is spent when you 'do' or 'not' because 1 thing is for sure, we are lucky to be here.

Merry Christmas from my house to yours x

01/09/2023

Change is a constant and a good thing, yet when many things change in a fairly short space of time it can be immobilising.

I've experienced a lot in many forms over the years and thought I'd gotten used to it, yet as the 1st year approaches of being diagnosed with a very rare intramedullary spine cord tumour located in c3 with haemorrhaphic content and witnessing first-hand the exacerbated NHS restrictions following covid, it has been certainly interesting.

As I come to terms with the news and the way I had been communicated (OR NOT communicated to...) within clinical settings even prior to receiving the news...I've had to pull back and really apply the awareness, tools and strategies I garnered over the years through trainings, applied learnings and teachings that led me to becoming a Coach/Therapist.

It has been/is the biggest learning experience I ever faced.

Long term conditions are often dealt with within clinical settings by offerings of 'this/that pill' over and above anything holistically and realsitically. I saw it way too often in the 5 years working face to face in my wellbeing role within the community as clinical settings do not consider the overall big/bigger picture. A lot of my private clients experienced this themselves too.

I haven't been presented with an ear from anyone within that setting that really wants to understand me, nor my bigger picture or presented with an aspired future...
No biopsy can be done for fear of paralysis. Then there's 'possible' paralysis as time goes on with uncertainty of chances or rate-yet my body has been doing odd things for a while now, AND chances of paralysis with surgery with much uncertainty about outcome and recovery...not exactly painting a positive picture is it?

Close friends have struggled and gone by the by as they fear saying the wrong thing to me. Not 1 in particular though (you know who you are❤️) as I look ok and most assume I'm as strong as my usual.
I DO GET IT, nobody likes to be presented with such an idea of reality, a life with such an uncertain future, even mortality.

For someone whose whole essence is helping others move forward in their best way and loads of physical movement, how I miss the interactions and benefits I reap from that.

Yet, taking the decision to step back is the right thing. My clients deserve the best and I accepted I need to work a little on that for myself understandably.

I just wanted to say you are not alone. I get that living with restriction changes your energy. It's SO understandable and can often result in more stress, anxiety and loneliness going into the mix.
You're reading through all this now so you likely get what I mean what that feels like. But no matter what your 'thing' you are going through, give yourself permission to

💜 Refocus your energy

You are neither weak nor negative when it feels necessary to lessen any stress factors in anyway and reduce any more DIS-EASE to your being.

I'm soon to have a 2nd opinion regards my situation, and I do hope it brings better clarity. In the meantime you
🧡 keep doing what you can do in moving ahead in a way serving you best, because the rollercoaster of emotions we can all feel, are YOURS alone to feel.

Thank you to all sending thoughts and well wishes. Much love Maxine x

18/05/2023

What an appropriate time to update on what's been occurring my end...I've always advocate for those with that consideration of .... . If I can share this and it helps just 1....💜...

I was told of a spine cord tumour, located c3 area inside spinal with haemorrhagic content Oct 22. This was a diagnosis that took over 2 years to get.. Unfortunately, no-one clinically was listening to what I was experiencing. My GP at the time, physio, ortho, gynae...so much I was soooo relieved to finally have something confirmed so I knew I was not going completely mad, yet equally angry I had been so dismissed.
Burning sensation, numbness, tingling...ALL were being put down to with my age and gynae stuff going on.
I'd had major surgery Dec 20, again July 22 which while gynae related, NO-ONE was hearing what I'd said about these other little weird and wonderful things going on BUT I knew things were not right. The GP was telling me talk to gynae, gynae saying talk to GP, physio saying wait until had gynae op done....

Understandably it has been a challenging time. The NHS are in crisis and quite frankly I would be better looked after if it was a well-known cancer or thing they are familiar in dealing with.
When you are told they think bening, yet cannot have biopsy until surgery due to paralysis, yet surgery may result in paralysis, but no surgery paralysis in future...it is a fricking scary thing.

They THINK it is benign but then cannot say even what they THINK it is....they KNOW It's a RARE diagnosis as NNUH put me to Addenbrookes and even Addenbrookes are not so far explaining things well in regard to what symptoms I should be concerned about other than issues, get to A&E...

In the meantime don't do anything that aggravate symptoms. So no exercise then? Who knows. Have asked to see a neuro physio as I would like to but safely understandably. It hits hard to a person who has always been active in life...

I have thus far been told 6 months watch and wait, regular MRI's and bloods, to then have surgery sooner rather than later, to a letter with scant information other than that things seem slightly improved, you're on 1 yr watch and wait. No face to face, no call, no explanation, nor opportunity to discuss.
Yet with a bleed close to the brain area, of course I am concerned all the while as DVLA figure out whether I can drive still.

There is a lot going on I'm not getting straight answers to, quick answers, nor practical help with. I have spent these past 6 months tidying up my life, organising my funeral and doing as much as I can so I can just try to enjoy time with Mum as much as possible.

However, when you live an hr away from the person you are a carer for...that's a challenge in itself too! Effective relaxation...where the heck did that go...I know all about stress, anxiety, relaxation techniques but I ALSO know sometimes the glass can be too full!!!

I don't have money for private as I used my savings to get through these last few years during Covid setting up my full time stuff while helping Mum.

Add to that, I am in which was medically induced July 22 and the problem is seemingly that NO 1person knows quite what to specifically do with me.

I keep getting told I am a complex case, popped from pillar to post.

Pain mngt will not subscribe...yet we also know subscribing long term not the answer, then GP unsure about subscribing HRT...

I had to change GP few months back after reporting them twice to the CQC as he kept telling me he didn't know how to check the system to find out things I had going on...It sound slike a carry on film, yet I can assure ity's not been all that funny for real.

All while I have issues from last surgery, numbness and tingling from SCT, headaches (tension, who knows??) ADD in stress and anxiety (totally unsurprising) and it is hard to distinguish between what is stress related or to do with each thing. Counselling for depression, yes but not sad, numb...angry...frustrated...so many things! You can see why I stepped back for a while.

Add to that being Mums carer and her an hr away. You would think my current housing provider would assist with my request to move to property they have there? No such luck. They have been as unhelpful as a chocolate teapot! Nor can I currently get banding heightened despite medical letters and the fact that psychologically this is impacting in ways one would expect but isn't going away any time soon! I am dealing with a lot as I continue to bid as I have these past 3 years. My OT apparently doesn't look at mental wellbeing!

I am taking each day trying to navigate what I can only describe as extremely unchartered waters when it comes to NHS and other organisations such as Orbit and County Occupational Therapy I am dealing with (are they effective...seemingly not so?) and the only reason I share this is because you cannot always see what is going on for someone.

If by sharing this it helps someone to pause to consider another person's situation, or that person can pause and realise they are dealing with a lot too in their situation so give themselves a break for a while too, then its a good job done.

Mental Health awareness is imperative in this day and age, so do what you can, as much as you can to take care of yourselves - Mental Health Awareness 15-21 '23.

Maxine x

01/01/2023

May your aims be intentional & any goals you may hold sustainable 🧡

23/12/2022

🎄🎄Merry Christmas to you all!

I wish you all so much joy spending time doing all things you love and with those whom you love that can bring as much to your door 🍾🎆

There isn't always a tomorrow, a next week, or even a year. Time can be short lived so I urge you take care.

To do all you can to live life with the greatest of health and to live your best life without fear.

In many ways, whether it's been wealth, physical or mental health affected, it's just been a lot for many these past few years I do hear.

I know for myself having received scary news in the form of a life changing diagnosis and still waiting on neuro to find out news near on 3 months on...it's scary times out there. So it's a time that I've stepped back and concentrated spending time with those I hold dear.

I want to take a moment to say a big thank you to all who've checked in...those I've helped steer...those I've crossed paths with...those I've yet to touch base with...and all that are both very near and further afar.

Whatever your Christmas plans may be, step into the cheer being the best you for you that you can hold dear 💙

24/11/2022

I always advocate with clients how important it is to put your health self-first.

You will have noticed the absence of posts and currently I am unsure when/if I will be able to return to doing what I loved to do.

My health self and Mum's care takes priority during this time of navigating a tumor diagnosis and treatment.

Thank you for your understanding 🙏

10/10/2022

This is true; stigma can still exist & people can be quick to judge without knowing what YOU have truly been through.

Life can be overwhelming & stressful.

Can we talk about it ❓️

I mean REALLY talk about it ❓️❓️

How we're truly heard, is by those who listen.

🔵 Can we talk about having success, or that by being successful doesn't mean not having anything overwhelm you?

🔵 Can we talk about 36% women reporting high stress levels attributed their discomfort in appearance & body image?

🔵 Can we talk about the fact that women are twice more likely to be diagnosed with anxiety?

🔵 Can we talk about the correlation between hormones & low self-esteem & depression? (Menopause, the hot topic!)

🔵 Can we talk about the fact that 51% of adults reporting stress felt depressed & 61 % reported feeling anxious?

🔵 Can we talk about the fact rates of anxiety & depression are 4 times higher than in 2019?

🔵 Can we talk about the fact that in 2020 nearly 1 in 20 adults had serious thoughts of su***de?

🔵 Can we talk about depression being a major contributor to, not only su***de but coronary heart disease?

🔵 Can we talk about the 12% who reported stress, cited needing to respond to messages instantly a stressor?

🔵 Can we talk about the problematic relationship issues?

🔵 Can we talk about the undercurrent of bullying we can be exposed to?

🔵 Can we talk about those that leave us in a mess?

🔵 Can we talk about a lifestyle being assumed, when nothing's really known about you?

🔵 Can we talk about the pressure felt by youngsters re:social media?

❗️ I'm often misunderstood for my passion & focus. Working with people to help them get through WHATEVER their reason life has paused their life momentarily.

❗️ I'm often misunderstood for not appearing 'sociable' enough.
But if I told you past challenges have seen me physically attacked, bullied, rejected by family, sexually harassed by a former boss, too many things to get into...you'd likely understand where my strength & determination were born from.

Now I have care responsibilities to family members, my own health to determine all alongside the work & business I'm growing solo.
It REALLY falls apart if I don't take care of myself.

How we cope depends on YOU, what life throws at YOU.

But no matter how big or small a problem may seem, DON'T wait to set standards that work for you.

💚 It's not selfish
💚 It's not rude
💚 It's imperative

08/10/2022

🧡

All kinds of good feels all round 😀

The process of a client will shift from that darker outlook when we begin, to a lighter perception of all manner of things as their change embeds during their process.

And humour comes into the sessions & email support* (*certain programs) BUT only once the shift has reached a point where it will be well received & of relevance to them 🧡

Move Forward With Me

29/02/2024

22/12/2023

01/09/2023

18/05/2023

01/01/2023

23/12/2022

24/11/2022

10/10/2022

08/10/2022

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