10/02/2021
Hey all it’s been a while.
Thought I would check in and give you an update on Angela and how things are. It does seem any post is doom and gloom and yet still there is no positivity to share. Angela has been up and down with pain and no medication now can get on top of it like it used to. We are still yet to hear from a doctor to talk us through her food study back in December (23rd I think?) we have had contact from Jenny twice due to the email we sent and we have a video call set up for next week to go through our second email, concerns and whatever else it throws up. Next week will be coming up to 2 month since we left Oxford, sorry, since we were pushed out and sent home to fend for ourself. We have had to talk to our GP, who is disgusted at the situation and has now sorted out a dietitian - whom Angela will be having a call with in the coming weeks. We have held off other avenues till we can see them face to face but intend to pursue something to hopefully get help/answers.
During this time her pain has been linked heavily to eating and this again points to Gastroparesis that I originally questioned back in December with Dr Silva, which was rubbished. She is finding out foods that she feels can help with the pain, but she is never free of it and this new illness, when it’s diagnosed, is never going to go away! Diet and meds are the only option, so we have taken it upon ourselves to start to monitor and eat recommended foods. Her weight has dropped, but has slowed down and fingers crossed seems to be levelling out... another indication of GP. Her hair is still falling out, but isn’t as bad as the time in Manchester although it could go to that - we have found her wig ready for when it does. She has been trying to get out and walk, the best she can, because this is also something that helps GP. We are in Facebook groups and research and reading around the illness is deepening our knowledge and understanding.
We continue our journey, a journey where we’ve traded one illness for another - this wasn’t the plan and is upsetting; however, as most know we put on that smile and keeping looking forward the best we can.
I hope all our followers are safe and well. The ending to all this seems to keep coming up and then whizzing out of site. In the future we will talk about these tough days as those during the wars did and hopefully make the world a better place for our children’s children to live. The struggles have been hard and all I ask you to think upon in these times, is the special memories we can hopefully take from spending more time than ever with loved ones. Thinking of all that have lost in these times too and those on their own - reach out and make sure family and friends are well.
Stay safe, will inform you all once we’ve had the call
Till then - good night and god bless to our UK followers and a good morning to the followers over the pond.
💜💙
