01/05/2025
Good day one and all
Well that's been an odd morning. Mum finally binned all the old syringes for Adolfs medicine. Not gonna lie Both of us have ended up emotional over this “Little” thing (And when you consider dad has the emotional range of a brick....)
So in 2024 the wee heathen reached the end of treatment (in March) and rang the bell (in April), this was very emotional for us, but it was nice that we were able to get a few members of the family together to celebrate with him. And a whole host of medical staff that were happy to see the wee dictator (To see him go at least). This was the start of a really hard part for us as parents as we started having to make decisions and choices not only for the wee heathen but for ourselves. I cannot tell you how comforting it was throughout treatment not having a choice. Don't get me wrong you have a voice, but you don't have a choice. And that actually makes it better as it removes some worry and stress as you can focus on getting your child better. No matter how efficient you are at putting your thoughts and feelings to paper you can never truly explain this.
All the way through treatment it's in your head that count down to the end, every time they have a fever a cold anything you have been rushing them to the hospital for antibiotics, you have been feeding them drugs and seeing them injected constantly and all the time there is this ticking clock in the back of your mind. And each step closer to that end of treatment date the clock is ticking louder and louder and all the time over the internet and social media you see other children the same age as your child getting sick having remissions and that ticking gets louder. Then you reach End of treatment and your kid rings the bell. It's a relief it's a weight of your shoulders that you no longer recognised as you have been carrying it for so long. And then you have to start living again as anyone that tells you otherwise is lying to you.
Those years of treatment there has only been one thing keeping you going and it's that ticking clock. Not only you but your child you now have to almost start again. For us we have dived into it. I (Dad) have been working on changing my career so I can have more time with Adolf. For mum she has started teaching Line dancing and is working on her horse riding again.
And for our wee heathen well. He is back riding, has started swimming lessons and is now playing rugby. (Add to the fact he has been lucky enough to get an opportunity from Kids Cancer Charity (Yes that’s the actual charity’s name) to stay at Give Kids the World resort in Orlando with tickets to go to Universal Studios And Disney, so that's another thing we are working towards he gets to go to Disneyland Orlando, where he wants to swim with the dolphins.
So that’s another kidney I am listing on “OrganMarket.Darknet.Org”. Thank the gods the Charity thought our Adolf worthy enough as all they ask for what they Provide is £1000 pounds in fundraised money
And through all of that we have held on to the parts from his treatment. I wouldn't say it has been particularly conscious but it's something we weren't ready to let go of. Well one more step to recovery. (I mean we only held on to them for a year....) So yeah, this is where we are currently, I will do more on this page and do a full Viking style work up of our last year and a bit so please hold on I will get to it (Without being nagged at...... Mostly)
