Fibro and Me/cfs Info Carleton

Fibro and Me/cfs Info Carleton Fibro Info - Southport has now moved to Carleton Poulton-Le-Fylde Lancashire. With a hope that it may help people live a better life with their illness.

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A Community Support Group and helpful information service for Men and Women, Young Adults with FM/ ME/CFS. Fibro & ME/CFS Info Southport has now changed name and address to Fibro & ME/CFS Info Carleton Poulton-Le-Fylde Lancashire. We are a community support group and information service based in Carleton ran by Freddie (Frederica) - a Fibromyalgia and Chronic Fatigue /ME sufferer who volun

teers to help give some positive assistance via supporting others within a support group environment. This page aims to assist not just members of our support group but also spouse's, relative's, friend's or just an acquaintance's who would like to have more understanding of things that may help the sufferer of these misunderstood conditions. The aim is give out some helpful information and some direction to other drop in services. All information on this page is provided by the credited sources. Fibro and Cfs/ME Support Group - drop in, is online via ZOOM MEETINGS. Please contact me for detail's. Hoping to get in my new Community in the near future. email me at fibrofreddie@outlook.com

Please note: I am a volunteer with close contacts to other valuable self help groups, however, due to my chronic illness I may not be able to run the support group some weeks. Please contact me via email or check page for information. Thank you. CREDITS: to my loving daughter for helping me run and maintain this page. Thank you Jessica. DISCLAIMER: Any guidance, Alternative Complimentary Activity, Tips, Paper Information or Signposting by Fibro & Cfs/ME Info Southport. Is not intended nor recommended as a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your own medical Doctor or other qualified health care professional regarding any medical questions or condition. Any alternative complimentary activity undertaken is done at the participants own risk.

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30/07/2025

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Regrettably, many people with ME/CFS experience ‘medical gaslighting’ which is the dismissal or minimisation of a person’s symptoms or legitimate concerns by a health professional. An article published in Medscape looked at the reasons behind medical gaslighting, and provided tips to help health professionals avoid it.

Read more here: https://bit.ly/44Ze974

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30/07/2025

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A study by a research team led by Professor Elisa Oltra, who has previously worked on ME Research UK-funded projects relating to ME/CFS and human endogenous retrovirus (HERVs), has identified that certain markers in blood – including those relating to HERVs – were able to differentiate ‘post-COVID-19 condition’ from healthy controls, those with ME/CFS, and those with fibromyalgia.

Note : ME/CFS is a symptom-based clinical diagnosis not a mechanistic one. It is clear there is a high degree of shared pathophysiology between the ME/CFS and long COVID and the two diagnostic labels are not mutually exclusive.

Read more: bit.ly/4o6g4zv

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29/07/2025

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On July 22nd, England’s Department of Health and xx released its long- awaited national delivery plan for ME/CFS. The plan focused on proposed efforts in thr...

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29/07/2025

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What do we mean when we say IACC?

IACC stands for infection-associated chronic conditions, a term that includes illnesses like ME/CFS, Long COVID, POTS, fibromyalgia, and others that often begin after an infection.

These conditions have been studied in isolation for too long. The IACC framework helps bring them together, encouraging science and medicine to explore shared mechanisms and work toward better care.

In our latest blog, BHC founder and Chief Medical Officer, Lucinda Bateman, MD, (.bateman.1) discusses how this shift in thinking can support real progress.
🔗 https://bit.ly/4kXhQQz

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29/07/2025

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Help Shape Research on Fibromyalgia and Relationships
Researcher, Deniz Altinoluk, is inviting participants to take part in a study exploring how relationships—with partners and healthcare professionals—may influence the experience of fibromyalgia.
The study is currently seeking:

✔️ Couples where at least one person has been diagnosed with fibromyalgia (both partners need to take part)

✔️ Healthcare professionals with experience supporting fibromyalgia patients
Your insights could help improve understanding, support, and care for people living with fibromyalgia. The survey is fully anonymous, online, and can be completed in your own time.

📍 UK-based participants
🕓 Takes around 15–25 minutes
Click the link or scan the QR code to take part.
https://roehamptonpsych.az1.qualtrics.com/jfe/form/SV_6Szensv2z1YM5n0

Fibromyalgia - NHS
24/07/2025

Fibromyalgia - NHS

Fibromyalgia, also called fibromyalgia syndrome (FMS), is a long-term condition that causes pain all over the body.

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23/07/2025

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Introduction Thank you for participating in this Europe-wide survey conducted by Pain Alliance Europe (PAE). The aim is to understand how chronic pain affects mental health and the role of self-management strategies in improving your well-being. The survey will take approximately 15–20 minutes to ...

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