this was made to update everyone on emmas own page
just to give some background info....
emily is 8, she was diagnosed with clear cell carcinoma tumor in her uterus on 9-22-2010. she had surgery to remove the tumor , and her uterus, cervix and a small portion of her vaginia and bladder. (that was a tough paper so sign).surgery was performed at sloan kettering hosp in NYC. on June 2oth she starte
d 10 rounds of radation, in st louis she really did well through all 6 rounds of chemo, the surgery and radation. she is such a brave strong little girl. i hope that some day through research little girls with similiar tumors do not have to go through all the waiting and wondering we did. it really did seem like forever before they came up with a plan. now that we are done with all the treatments i am thankful for the doctors that got us to this point, there is a tumor board at sloan kettering that came up with the plan, emily gyn, oncologist, the radation oncologist and all the nurses that loved emily as much as we do. they all do amazing jobs. someday (i know i love somedays!!) i would like to donate back to the organizations that helped us through this journey, alex's lemonade stand foundation, nccs, southwest airlines, ronald mcdonald house NYC, hope lodge of st louis, and the make a wish foundation. with out all of their help we would have never been able to get to NYC, or st louis, not have a place to stay for next to nothing in manhattan! and a free place to stay in st louis. and at the end of it all a dream trip to florida. just to update, its October 2011 and emily is completely finished with all of her treatments, we now do scans every three months for a year and then 6mo and then down to once a year till she is not a peds patient anymore. she does her last check with the gyn the end of this month and then her first post cancer pap in april. she will do those every 6moths for awhile. i thought that once she was done with the chemo, ratation and checks, we would be done forever. I jsut wanted to be done and away from anything that has to do with cancer, boy was i wrong. I hate to think about a relaps, cause if it comes back where it was i dont think there is anything else to do except for more chemo and radation, but no more surgery. so i have chosen not to ever think aobut it and just go on living life with the beast locked away. ok i think i am done with the somedays, but i also want to thank all of you for praying for emily and our family, i truely belive in the power of prayer. thanks agian and i love you all.