Send & the City

Send & the City Blog about life caring for a small boy with severe autism. Serious subject, heartfelt empathy & fun.

Walt did you make this little lamp for Diwali šŸŖ”at school? Don’t have to speak to know- he’s proud of what he did for thi...
21/10/2025

Walt did you make this little lamp for Diwali šŸŖ”at school?

Don’t have to speak to know- he’s proud of what he did for this one. And I can tell you- all he did was sprinkle glitter šŸ˜‚šŸ˜‚šŸ˜‚āœŒļø

Work smarter not harder is your daily advice from our Walt šŸ˜‚

Happy Diwali šŸŖ” my neighbours celebrate and they’ve told me Diwali is all about -
Good over evil, light over darkness and knowledge over ignorance.
Me and Walt can get on board with that message.

Everyone needs light over darkness šŸ•ÆļøšŸŖ”āœØ

to those that celebrate and those learning

Got to see walt in his little class today. I can 100% say me heart is so full. I never even thought we would find him a ...
15/10/2025

Got to see walt in his little class today. I can 100% say me heart is so full.
I never even thought we would find him a place in school let alone go into his class and see his smiling little face- totally calm and happy and then see me and his nanna and his face literally light up and start happy flapping.
We went on a harvest festival Walk to the church with the rest of the little lavenders & donated food for the food bank. All the bairns did amazing.
I never thought I’d get this and I am bursting with pride and happiness.
Well done Walt ā¤ļø
I fought hard for this school for Walt’s place in the world as a child and to see him fit is nothing i can fully explain. I just want every autistic kid to have this.
Thank you to Walt’s school and everyone who helped us fight. šŸ˜­šŸ’•

Walt had a lovely time today getting his photo taken for Awesometistic CIC in the Metrocentre to support the autism comm...
05/10/2025

Walt had a lovely time today getting his photo taken for Awesometistic CIC in the Metrocentre to support the autism community. They are shouting, posting and creating a world in which autism has a voice and showing many people that autism doesn’t have a ā€œlookā€

There were 100 spots for lovely autistic people to have their photo taken, support the cause and be on the big screen in the metro centre.
You can see Walt’s photo and message on the big screen on 7th December at the every ten minutes ā¤ļø little star ā­ļø

02/10/2025

Naughty little elf šŸ˜‚ā¤ļø- when your child is autistic and normally runs away from other kids cause he’s scared - your proud when he dares pull someone’s hair! šŸ˜‚šŸ„“šŸ˜‚
šŸ˜‚āœŒļø

Ok it’s been a while since posting so have two in 24 hours! šŸ˜‚ā¤ļøāœŒļø  please join the campaign or share far and wide šŸ’™šŸ§”šŸ’›šŸ’ššŸ©·D...
30/09/2025

Ok it’s been a while since posting so have two in 24 hours! šŸ˜‚ā¤ļøāœŒļø please join the campaign or share far and wide šŸ’™šŸ§”šŸ’›šŸ’ššŸ©·

Dear Trump. ( I can’t bring myself to address him as the P word or even MR at this point) I wasn’t going to have my say, sometimes it’s better to be silent when faced with such ridiculous comments. If Walt was getting bullied at school the first thing I’d say is ignore it. (Or maybe I’d say punch him back)
However this has gone beyond bullying. This is a man with such a massive world power, standing up and saying things that not only hurt over 50% of the population- the women Trump - in case your not following- but the comments hurt me personally on a deeper level than I ever imagined.
I have no idea how you managed to become a person of power in your country - let alone twice- the best of a bad bunch I’m told- or he’s a really good salesman. For me I think you’re the one with the biggest pot of gold and a good few secrets about everyone who put you in power.
I used to look at America and think WOW, an amazing country with all this history and patriotism. I think of the 4th of July and all it stands for, your freedom and independence of the the American people, as you only move farther from that dream here in 2025 with your crazy leader.

Usually us little people of the UK aren’t expected to wage war on a bully that’s bigger that us- but as Hugh Grant reminds us in Love Actually, ā€œAnd since bullies only respond to strength, from now onward I will be prepared to be much stronger.ā€

As an advocate for my son and all autistic people in the world I cannot just hear what he has to say and not have my own say back. Regardless of who he is and who I am in the world. The fact is Trump has undoubtedly waged war upon the strongest community of all time. Obama only said yesterday that what hes done is ā€œviolence against the truthā€ but we can all wake up and choose violence - what a world that would be.
He probably picked out disabled people as he thought they can’t fight back- but my god he is so so wrong. You see there are a community of us now- as autism figures are only rising- that have unimaginable strength, we are already in the fight of our lives, we wake up with our battle face on - wearing battle scars from yesterday and for some of us that’s actual scars where our children have punched us. We are already in fight mode and we’re coming for you. We not only battle our children into school, into clothes on a morning into eating breakfast, nappy changes and beyond but we battle a system that is broken- we fight endlessly for our children’s rights to a education, to support, to live a better life. We fight to be heard- we use our voice when our children cannot. We fight for services, for funding, for appointments and answers. We fight with anyone who will stand in the way of our sons or daughters calm and happy. God. We fight with the old people in the supermarket giving us the judgement eyes as we try to calm down an epic melt down. We fight our justice system, our councils for the right school, we wage war on our own rules and regs because they are not right for OUR son or daughter. So, Trump. What’s one more fight? To us it’s just a day in the life. We’re used to fighting for our kids, our family, our peace our freedom and independence. Sounds like you’ve forgotten what your own fight should be.
For you to stand up on your world platform and say taking Tylenol, known as paracetamol elsewhere, "is no good" and that pregnant women should "fight like hell" to only take it in cases of extreme fever.
He said after a study conducted in USA there is a direct link between autism and paracetamol.
So first off - his administration did say in April that they were going to find the cause of Autism by September/ so I’m not sure ? Did they just run out of time and blame the first thing they saw?
Second- the ā€œstudyā€ if you can call it that- was based on 46 studies from the review and 27 of those had some link. But another study, published in 2024, found no relationship between exposure to Tylenol and autism. It was conducted by looking at a population sample of 2.4 million children born in Sweden between 1995 to 2019.
Luckily most health organisations and charities responded by saying do not listen to this advice as it’s dangerous and has no weight at all. Thank god I didn’t see one organisation agree with him in the UK. Trump is moving forward telling doctors not to prescribe Tylenol for pregnant ladies but another old school drug that used to treat cancer patients which sounds a lot more scary if you ask me.
In April, I blogged about the administration saying they were going to look into autism and the cause/ to see if there is any treatment and I still think there should be some degree of this- but you can’t announce your finding a cause in April and magically have a cause and cure by September. It’s not an epidemic it’s a neurological disorder. It’s not covid. From the man who wanted to inject bleach to cure covid his opinion already doesn’t hold much weight. Not for me at least and hopefully everyone else too. While I do believe we need some sort of scale for autism we need more research and more support but most of all this is not the way.
Trump is literally lying to the world/ there is no link between pain killers and autism. The experts in this field who’ve dedicated their lives to the science must be so angry. The time and effort that people with an actual medical or science degree put into the very small amount of research we can afford and one little speech from Trump and years of their hard work is questioned. What Trump is doing is fear mongering - scaring current autistic people, blaming mothers and putting people at risk by giving out false information.
The time we spend shouting to say you are wrong is time wasted that we could be shouting for support.
Personally, the fact that you can sit on the biggest platform in the world and talk about people like my son as if you want to eradicate them from the world makes me feel physically sick. The fact that you have probably spent less than 24 hours with a profoundly autistic person, you cannot even have scratched the surface on what they go through and what we as carers go through every single day. Last but not least- a group of old men standing blaming women, shaming us that we might have had to god forbid use a pain killer in the one of the most painful times of our lives speaks volumes for where you stand on the emotional well being of women and their place in our society against a man.
America must be a scary place to live right now.

The National autism Society in the UK have started a petition against your very words and we as a community are looking for signatures for our government to stand up against what Trump is saying and support us. Over 25000 people have signed in 36 hours. - I did tell you, you’ve picked a fight with the wrong people.

Click on the link for more info and to sign.

https://act.autism.org.uk/page/178427/petition/1?fbclid=PAVERFWANIJ2ZleHRuA2FlbQIxMQABp8jFlCEZTqpD01Qb0ZLpekrVMzc_GN5ak9vDf9xVnNkKCrwZmUZrCNNbdPDX_aem_WpNCubWI3dwENXjyb21L1

I've signed the National Autistic Society's open letter because I won’t let baseless claims distract me from the real issues autistic people are facing. Will you join the campaign and sign it too?

29/09/2025

Apologies, I have not posted much since the start of the summer holidays. Truth is I’m going through a lot of crap right now and I needed to rest. I’m not well with an auto immune disease attacking my joints, I’ve been diagnosed with fibromyalgia and apparently it’s very likely I also have endometriosis. The joy of being a woman.
The auto immune disease was truly enough to cope with alongside looking after Walt but over the summer my pain increased and has not really gone back to normal. As most of you know I’ve tried so hard this past 6months to get off steroids and I managed it! Woohoo. But the consultant is just trying to put me back on them now with everything I’ve got going on. I have never felt this exhausted in my life. I can sleep for hours and wake up drained - I never knew what fatigue meant until recently - it’s more than tired it’s not being able to keep your eyes open. Literally.
What with all that and getting Walt’s peg fitted and learning how to be a nurse as well as a parent of autism has been a lot.
Most people who have a ā€œwaltā€ with profound autism in their lives will tell you, how they lost friends along the way, no one understands so it’s too hard, friendships come and go and it’s this time know your life ā€œyou will find who your real friends areā€ is a phrase I often hear from m**s at the school gates.
Don’t get me wrong I have these friends on the side , who have no idea what my life is truly like- they don’t mean badly or treat me badly but they do not understand my life at all. But honestly , people usually tell you - you need to go through a huge break up, a loss, a traumatic event, a disabled child a massive life change to really know who your real friends are.
I could’ve listed my real friends - I didn’t need any traumatic event or massive life change to know who would show up. These girls have known each other since school. 25 years of friendships to span a life time. We’ve lived through stupid boyfriends, school drama, nights out, sleepovers, moving away to uni or staying at home, getting jobs, losing jobs, baby loss, weddings, rainbow babies, miracle babies, insane country moves, massive moves to London and beyond, amazing jobs, terrible jobs, losing jobs, illness, and picking ourselves up again. The weather of life is wild, wet and windy and we’re only in our 30s but myself and these girls have been through it all. We have known each other the best part of our whole lives and nothing any of them could say would shock me. If one of them rang me in the night to say they’d killed someone I’d be there to hide the body.

Personally I’ve been through so much in the last 7 years since having Walt and figuring out autism , profound disability and my own illness has been seriously tough. Some of these girls have txt me every god damn day. They’ve got their own dramas of life but they’ve always been on my team.
A lot of these wonder women have amazing jobs, kids, husbands and whirlwind lives and we don’t see each other half as much as we used too , yet nothing feels different when we do. I could still sit and chat for hours on end with any one of them.
Recently I’ve realised even more so that people don’t often get to keep friends from school let alone still trust them endlessly years and years later.
The memories I have about these girls are literally crazy. Everything from dancing in a bath tub in a nightclub, drawing diagrams in history because they had no idea what the teacher was going on about, supporting a few of them when they’ve done fancy dance or drama shows, more recently one of them wrote a play that was performed in Newcastle, one of them I used to leave school with on a Friday and religiously make cheese slice sandwiches before going out to hang about in bus stops, we all ordered Chinese to the bus stop once before right? I have raved the night away with them, one of them I have seen stop traffic to lean on a car bonnet and kiss a stranger meanwhile the rest of us are trying to stop traffic while pi***ng ourselves, celebrated hen do’s, baby showers, I remember going to our schools induction at 11 years old and being made to dance to reach sclub 7. šŸ˜‚ two of them I speak to every single day without which I couldn’t live. One of them I’ve called bellend for most of her adult life just because her last name is bell and yet somehow she still loves me. I dyed my hair before ones wedding and it was legit yellow. I was the most glow up ever 🄓 in the worst sense of the word šŸ˜‚
I’ve been on endless Disney holidays with one of them who buggered off and lives in France, though I manage to see her at least twice a year it’s not enough. One of them I walked to school with every single day and I was the worst, always late and my mam used to talk her ear off everyday but she never left me. Not once not ever. One of them is a breast feeding specialist and literally man handled me to show me what to do, one of them was there in my life at a school art trip with a full different school before we officially became friends and she’s worked so hard now she’s a big shot designer and I am SO proud of her my heart could burst. A few of them now have TWO kids and while I think they are insane I couldn’t be more amazed at you.

The memories of these people will last a life time but it’s what they do now that I’ve had the ā€œbig life changing eventā€ of Walt thrust into my life. They still include me, they give us space when we need it, they ask questions, they txt and support, even though I can never attend or when I do I spend most of the time not speaking to them and running after Walt. They have supported me through illness, through Walt and more recently my life turning upside down and inside out.

I appreciate them more than I can ever say. More than i can ever repay them. More than I can write here to make you understand the love I have for them.
They are family. My crazy family for which I will always have their back.

Friends do come and go but these bi***es are for life āœŒļø

Living in a war zonešŸ’„Ok, so before I start this one I want to say 100% not a single part of my illness I want to blame m...
09/09/2025

Living in a war zonešŸ’„

Ok, so before I start this one I want to say 100% not a single part of my illness I want to blame my son for. Being a carer has meant my life is stressful and sometimes insane and yes that’s down to Walt but NO I don’t blame him- it’s no one’s fault and as you all know I love him so much.

So this time I’m going to talk about my own illness and health. I figured the best way to do that was via photos so Youl find my story below in a series of photos.

What made me think about this is I saw one of those posts ā€œthere has been studies that show parents of neurodivergent kids have similar if not more stress to that of a combat soliderā€ I see these things and usually roll my eyes. How can anyone say that unless they’ve been a solider AND are now a neurodivergent parent. Seems mental to me, I thought. I certainly don’t dodge bombs, gun shots or fear for my life everyday…. Or do I?

It got me thinking. The stress of having Walt alongside all his health issues, if I’m completely honest with myself - I’ve never felt a normal or none stressed moment for him since we brought him home from the hospital. It feels like we live in this place of crisis most days and there’s been no ā€œOk we can breathe and relax nowā€

Started with allergies, reflux disease, covid, autism, profound mental disability and learning difficulties. Nursery was a whirlwind, we fought every day to figure out what was causing him to react, to help him settle, then came anaphylactic shock, unconscious,999, kicked out of any and all education for a year and a half. Court case to get into the right school. Even in school he’s loved most of it but the fight hasn’t stopped. He had anaphylactic shock the year he started, he was in and out of hospital for various things, he started hitting us, hitting himself and self harming, he stopped eating , stopped growing, hasn’t grown since he turned 4. A 3 night stay and operation to get a peg, the drama of the peg, learning to be nurse mam and carer with an open wound every single day. He turns 7 and though sleep is better it is still all over and we never go a full week without nights, hours awake.

My consultant flat out said the stress of my life has caused my autoimmune disease to rear its head. My illness was managed very badly from day 1. I will never ever return to north tees hospital. Every hospital has good and bad but I should never have been left on steroids that long and you can see via the photos I’m paying dearly for it.
So maybe yeah we have got that stress, I don’t believe it’s the same because soldiers go to war, they fight and live in war zones. It’s different but it is much of the same- I’ve been living in a war zone walking on gr***de egg shells since 2018, waiting for the next reaction, illness, problem. All while trying to enjoy Walt and give him the best life. Trying to have some fun of my own if my pain will allow.
I haven’t shown how bad it is day to day/ but Gav has helped me a lot with day to day things and my mam and dad help so so much. I have crutches. I’ve had to cancel nights out because I couldnt walk. I’ve had to leave work because I can’t do work and Walt with this illness. The pain I am getting used to, but now as I sit and type with a fairly new diagnosis of fibromyalgia and endometriosis under investigation I can’t help but wonder what’s next.
It makes me terrified to my core and I would take he**in if it would allow me longer with Walt. Back to that age old worry what will happen to him when I’m gone.

I asked if he**in would work and they said not unless I cut my very bone open and rubbed it on so I won’t be doing that don’t worry! Haha
I have got many other pain killers- but as I sit here feeling pain in almost every joint with no pain killer left to take it makes me worry that steroids are only around the corner.

I have tried it all. H**p cream, voltarol, I’m told this won’t work because the pain is being caused by my inflammation inside. They were right it doesn’t work/ but you keep trying anything for relief. I see pain management, I see a psychiatrist, a consultant and have injections I give myself now every 2 weeks. My names on a list for surgery. I will do ANYTHING.

The importance of self care when you’re caring for a disabled person especially when you live with them - is massive. I used to say things like he’s my son and I can’t do that because everything in your soul screams you can’t leave them you can’t do respite but maybe if I’d done that a bit more maybe I’d be less ill now? My consultant says no but he is an advocate for self care people often tell me to rest or get more sleep- but you wake up like you haven’t been to sleep and still in pain. It is so hard to describe to people who can’t see it that you would rather take medication that makes you blow up like a balloon rather than suffer through the pain. When I’ve been in those situations I would do anything to make the pain stop. All sense goes out the window, you can’t think straight because all you can think is what can I do to stop it.
Now I don’t take many breaks from caring but I am definitely working on that , I try to plan things in because if I don’t I never get a break and that’s so much worse. Even now writing that I need a break from my beautiful son makes me feel guilty. It makes me feel worthless like I can’t look after him. The fact is I would be with him every second of my life and be happy - but when days and nights are hard, your experiencing pain like you’ve never felt before, your exhausted and Walt decides he will start hitting and kicking and head butting you- you feel like the world is crumbling - Walt gets over it instantly but your left feeling like he doesn’t see your love and he wants to actually hurt you- he doesn’t of course he’s just trying to communicate but if you don’t take a little break after things like that happen it can eat you up. Most parents put their kids to bed and have some time together, a shower and tv or even a meal. We race to bed not knowing if he will be there 30mins or 8 hours and when he does wake it’s full steam ahead from eyes open. Even sleep is stressful. Your tense all the time, there is no space to breathe.

If you’re a parent carer like me there are things that can help. Respite, direct payments, school, disability social worker. Prioritise seeking that help, because our war zone doesn’t end. You’re in it now with no foreseeable light at the end of the tunnel. They need you more than anything so you have to take that time to look after you. You’ve heard the saying your oxygen mask on first/ it’s the same here. Saying no or asking for help is the hardest thing to do and I struggle everyday with that. But I Have to so that I get to be in this magical boys life as long as I can. ā¤ļø

Ps, apologies for the moon face pics- Any questions on my story just ask šŸ’•

Made a little display of Walt’s work from this year he came home with - I told him already I’d seen it and I was so prou...
25/07/2025

Made a little display of Walt’s work from this year he came home with - I told him already I’d seen it and I was so proud but I thought if I display it proudly I might get a reaction and he’s done nothing but smile and happy stim.
My heart is literally burst. šŸ’„ šŸ˜‚ā¤ļø

It’s probably nothing to you. But until this year he never sat and did an activity at a desk- even these he didn’t do on his own the teacher got his hand dipped it in and pressed it down for all of these - but he’s NEVER allowed that before now and as small as that is. It’s progress. And to us it’s HUGE. Well done rockstar āœØā¤ļø

Autism abroad! I will be clear - I can tell you our story of autism abroad but I cannot guarantee that your experience w...
24/07/2025

Autism abroad!

I will be clear - I can tell you our story of autism abroad but I cannot guarantee that your experience will be the same. Will do my best for tips though. šŸ’•

For years now we have gone back and forth over whether to risk Walt on the plane. There’s only one destination we really want to go to - Florida- obviously. I think if I could get Walt there he would love it. Its the getting there right? 10 hours on a plane actually gives me nightmares. Florida is also massive and sensory overload but we probably wouldn’t do Florida as we have done in the past and new certainly wouldn’t do all the parks. Anyways! That’s a future holiday- this time we’re heading to Greece…

We took him on 2 hour plane ride back when he was 3 to France Disneyland in Paris - he was fine on the way there but really struggle on the way home. He was also so poorly we spent the first 3 days of 7 mostly in the room asleep. It was a mare and we need to redo!
It’s 4 years later from the PTSD and we’re ready to try again. We also have reason to celebrate! My mam is 60 this year and we want to go away to the sea view and sunshine!
My mam isn’t 60 until August- but we decided to go a little earlier in May- as we think it would be far far too hot for us all in August.
The planning took - time. ALOT of time. Finding the right place took us months.
For walt to be happy he needs his own space to retire too when he needs a break, he needs mostly calm large areas where he doesn’t feel closed in and he loves the outdoors. Now that might change as the years go on but right now that’s how he is happiest.
Pretty quickly we ruled out all inclusive and a hotel at all - though we did look at a few in Majorca and Ibiza - it would’ve been nice to not think about food and drinks but ultimately it might have been too busy for Walt with kids around the pool and also we didn’t want to be stuck in one room for a week it’s not enough space for Walt- he doesn’t like to sit with us always !
Because of Walt’s Arfid he doesn’t eat with us or like to be next to us when we are eating/ or anyone for that matter. It makes things really hard for meal time logistics. We think with a villa we will have more space so we can all eat in peace. So we set out looking for a villa.
Majorca and Ibiza villas are literally 4K to 30k and beyond for a week and I’m about to give up. When I think I’m going to look further afield !
I type Greece into the air bnb and narrow it down to zayknthos.
The only reason I chose there is because it has a McDonald’s / Walt only eats - sausages from aldi(safe due to allergies) McDonald’s fries, bread (a special one for without milk or soya), one type of biscuit and one type of crisps. That’s it. So I know self catering is the way forward but I think we’re never going to get the sausages so we are going to have to have McDonalds within 10mins.
McDonald’s is infact on the strip (which we don’t want to be near but needs must)
Eventually I find a villa that fits all 5 of us with a sea view 10mins drive to maccies - it has its own pool, 4 bedrooms and a lounge /kitchen, with sea view and own private beach! Can’t believe my luck I literally get scared after I’ve paid and think it’s AI. 🤣 struggle is real. Anyway! I book the villa - Gavs in charge of flights - it’s too late for us to get extra leg room but in the end we didn’t need it and it didn’t matter however I would try for this or the front row next time. Basically because Walt likes to stand up and play with snakes - he just prefers standing and rarely sits. So for us more room to mooch is always better.
So we were booked and I have 4 weeks to address -
Allergies and food for Walt
Autism
Medication we need to carry
Taking his wheelchair pram

Doesn’t seem like too much but the first point alone. So first I rang the airline to tell them he has serious allergies we will be carrying Epi pens. They have to stay on you but also spares can’t go in the hold because theyl freeze and not work. The airline were really good we flew with jet2 and I would again. I also explained Walt only eats five foods due to an eating disorder associated with his autism. It’s fine they tell me we can have an extra 10k luggage for free/ this is standard with anyone bringing food for medical reasons. Good start- cause we also have nappies to bring - I would get them there but he’s in the biggest size 9 and only one brand sell them and not in Greece! On to the next one/ allergies will be announced on the flight. His food- so I find out because we are going slightly out of season that maccies may be closed- I search endlessly on social media Zante groups but no definite answer so the alternative is to take his sausages- Greece 100% do not do British style sausages and not without milk and soya/ there are a few options in the UK but we buy from Aldi - only because he’s had them likes them and no reactions! Taking meat into the EU is a big no no and everyone tells me I won’t be allowed. So I research and I speak to the Greek consulate. If we get letters from the consultant and proof of allergies and eating disorder we can take them on the plane in a cool bag. I don’t have this in writing so it’s a risk but 7 days worth of sausage risk I’m willing to take. I get the letters, I get the cool bag I get medical keyrings to out in the cooler .
Allergies and food - check!
Autism- means I have to explain to the flight attendants and anyone in Greece that my son doesn’t talk understand you or can’t cope with this situation. I’m told get a sunflower lanyard- which I do and it did help in the airport. We did get fast tracked through most queues. Zante airport is also autism friendly they’ve just all done training and are certified - which helped.
So for this one I can’t possibly tell everyone everything and every little autis. Quirk Walt has. So I write the flight attendants a letter for both ways with his picture on- it tells them a little about him and how he might react - it says what our worst moment might look like and how to help us. It says thank you and apologises in advance- we’re going to do our absolute best but even all the best laid plans sometimes go to s**t 🤣 I put in the bag some sweets and some little Taylor swift style bracelets that say grateful 4 u. Because I am grateful- more than I can say for anyone who will help me help my son to see the world. I also buy something that says my son has profound autism please be patient and attach it to my sunflower lanyard that I wear for him. We buy a sign for his wheel chair pram to say it’s for safety and to respect his disability. I rent a plane pal so that Walt can sit with legs up instead of dangling and it makes him a make shift bed- I tell the airline about this in advance too.
We buy enough toys for a new toy every 15mins to take out of his bag. And we speak to his consultant who advises we get some phenergan medicine incase we need to calm him down.
It’s an old fashioned antihistamine that’s also slight sedation. Now I thought and thought about this because it feels so wrong but ultimately I wanted something in my back pocket just incase I needed it- we didn’t have to use it but if he was in full meltdown and distress I would have and it made me feel calmer to have it in the bag just in case. I never want him to feel that distress- and of course you hear these horror stories about people on the plane sat on the runway for hours before they even take off. Over prepare and my anxiety is eased haha I will say we couldn’t buy phenergan from a regular pharmacy it was an independent one/ I think people abuse its sedation power and as a result boots Asda etc don’t sell it. We used an independent one that had no issue. - advised by Walt’s consultant I was happy to buy it.
Autism sorted.
Next medication- I bought a bag for his meds and we took prescriptions . We were never asked for them - the only thing they stopped me for was to check the liquids were under 100ml for the in flight meds - we had antihistamine, epi pens and calpol. All fine. We bought bright red keyrings to show where Walt’s epis were kept in the bag and that was that.
Wheelchair/ we were allowed to take this free of charge as part of his fasttrack disability support. We kept it with us as Walt sat in it most of the morning (we had a early flight and the airport was rammed) we took it right to the gate and handed it over and picked it up soon as we stepped off the plane - easy! However… when we travelled to France we did the exact same and somehow they lost it. Luckily Disney helped us but Greece we would’ve had to buy a new one. My advice would be ask as soon as you get to the front of the plane.
In the airport ( we travelled from Newcastle) they have a small sensory area in gate 31. The sensory things are really neither here or there but the room is big and empty and the we were the only family there- Walt happily ran around here before boarding and i was so happy to have the space because restaurants and food places are a no go for us.

Trouble we ran into of course was Walt’s sausages. They allowed them through with his medical letters but we got the cooler bag ice blocks taken off us because they had no measurement on them. They were tiny and no way 100ml but because they didn’t state 100ml they wouldn’t let us keep them. We improvised and when to Starbucks for ice over and over until we boarded and then the air stewards helped us and kept them cool and then gave us loads of ice for us to get to the accommodation! It was a right carry on but I was so glad we had the sausages because he ate both fries and sausages once a day and was happy with that! I think it would’ve meant going to the strip on a night for chips and that would’ve been horrendous. Because the roads are dirt tracks with no lights. You drive the wrong side of the road and the car and the gear stick is in your other hand.

I did drive on the holiday but it was scary to say the least. There was a Lidl and of course Greek supermarkets but sausages were like chorizo/ yum for us but not for Walt haha

The villa was perfect the view the calm the rooms for Walt the space everything was just perfect. The villa owner also owned a taverna next door with a sea view to die for, all we had to do we walk along the beach ten steps to get there.
Our only problem was the pool wasn’t heated and I thought it would be. So unfortunately Walt wouldn’t get in as it was too cold for him. He doesn’t do sand so he wouldn’t do the sea either BUT he had the best time playing exploring and having all his people in one place.

He did so good on the flight and jet 2 staff were out of this world amazing they couldn’t have done more. He had 10mins cry on landing at home but other than that he was a star.
I would still be nervous getting on a plane jsut cause he’s an outside boy who never stops moving never sits and has to stand up to p**p. So it would still terrify me but i wouldn’t not go. Walt deserves to see the world and experience the world the same as anyone else. Just because the journey might be hard doesn’t mean you won’t enjoy the destination.

Never ever say you’re not travelling because you’re worried about other people. We only had a few eyebrows and rude people but honestly couldn’t care lesser. We had more love than hate and it would never stop me.

We’re also doing caravans this year but I won’t be waiting another 4 years to get on a plane!

Happy 6 weeks. Good luck and any questions or help let me know! If Walt can do it you can!!!

šŸ’•šŸ›«šŸļøšŸ—ŗļø Newcastle Airport Zakynthos Jet2.com & Jet2holidays &thecityabroad!

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