23/09/2025
1 whole year since my Parkinson’s diagnosis!
It literally only feels like yesterday that I questioned my earlier diagnosis of FND, I still hadn’t really comprehended anything more being wrong either me. But then I often mentioned to professionals it couldn’t just be FND. My symptoms were regular and continued to get worse. When referred back for consultancy checks, I was delighted that I’d finally figure out what was going on, and hopefully get the medical care I knew I needed!
Nothing quite prepared me for this!
Waiting for results felt torturous yet uplifting, the tests ran were depicting if I had Parkinson’s, I knew that yet I did not consider the results to mention that word. I was definitely pushing this far to the back of my head, not through fear, but I just didn’t think I’d have such a disease, that I only knew in older people. I was just chuffed to be considered again for retesting. I didn’t quite know what I wanted to hear, but it wasn’t that for sure.
Autumn & Winter 2024/2025 was the lowest I’ve ever felt in my life. I really was in the middle of a breakdown. Vulnerable, suddenly so unwell with every Parkinsons symptom on the chart, I was a shell of my former self, I didn’t want to socialise, I cried a lot, I depicted my future, and literally began to consider everything and everyone around me when I’m gone. I was killing myself off - that’s it.
This dip lasted an understandable few months, my husband and I felt unlucky, mad and shocked - why me?
Consultants & Parkinsons nurses are fantastic, they helped me truly believe that life isn’t over. The biggest turnaround was an Education program for Parkinson’s, that taught me so much. And it gave me confidence to speak up, to not hold in anything, to socialise and support. I fed my family this information, and we’ve worked together in brightening my future.
Fast forward to now… I have never felt more like me than I do now, with the odd hindrance of course. I actually feel alive, well, happy, comfortable, confident, aligned again. It’s been a real rollercoaster of a ride, full of so much uncertainty and too many questions. But I am medicated, moving my body everyday, working and socialising.
I am more knowledgeable of Parkinson’s, those around me understand more. I’m curious, and i want to protect my future.
So i practice yoga / like all the time!
I divide my time, i no longer run on empty.
I will never EVER give up.
Mindfulness & Motivation are my self discipline, this will be the reason for survival 💪🏼💙
