Max's Trust

Max's Trust We are a registered charity supporting adults, children and their families.

Max's Trust has been set up, in memory of Max Finnigan, to raise awareness of and provide support and good quality information to the anorectal malformation (ARM) community.

This article highlights the importance of kidney care in Anorectal Malformation
30/04/2026

This article highlights the importance of kidney care in Anorectal Malformation

This article by ERN eUROGEN ePAG Representatives Kate Tyler and Dalia Aminoff reflects the presentation they delivered during the ERN eUROGEN Thematic Session at the European Association of Urology annual congress on 15 March 2026. Drawing on their patient advocacy and lived experience, they explore...

We would like to say a massive thank you for all of your donations for We have raised an incredible £541.34. We could ...
01/04/2026

We would like to say a massive thank you for all of your donations for

We have raised an incredible £541.34.

We could not have done this without YOU!

31/03/2026
31/03/2026

Today is the last day of . Thank you to everyone who is fundraising and donating. Money raised goes towards our conference for families and adults affected by ARM. There is still time to donate or make a one off/monthly donation. https://www.paypal.com/donate/?hosted_button_id=WX6EFCDTXLFMW&fbclid=IwdGRjcAQxNM9jbGNrBDE0t2V4dG4DYWVtAjExAHNydGMGYXBwX2lkDDM1MDY4NTUzMTcyOAABHv9ie9ABXl0OB6FlgcL0GpoMIBk-h8AScjarFeiBXhdw1MKwRvdGy1of0Je6_aem_AvkpEXZek6FFYkn6p0etwQ. Shout out to our mini marcher James

26/03/2026

The annual European Association of Urology (EAU) congress held this year in London from 13 to 16 March provided ERN eUROGEN with an outstanding platform to share our work, connect with the wider urology community, and demonstrate the vital role that European Reference Networks play in improving care...

20/03/2026

🌍 Today is World Anorectal Malformation (ARM) Day — and for the first time, 14 countries are officially recognising this global milestone together.

ERN eUROGEN joins the worldwide ARM community in marking this important day. We know that behind every diagnosis is a patient and family navigating complex, lifelong care — and that access to reliable information makes a real difference.

That's why we want to make sure our ARM resources reach as many people as possible:

🔹 Combined Clinical Practice Guideline – the full care pathway in one consolidated document
🔹 Patient Journey – in full-text, brochure, and audio formats
🔹 Sexual Support Website – in collaboration with ERNICA, in English and Dutch

👉 Download the Guideline: https://eurogen-ern.eu/our-work/guidelines/
👉 Explore the Patient Information: https://eurogen-ern.eu/our-work/patient-information/
👉 Visit: https://sexualsupport.eu

Today, we raise our voices for everyone affected by ARM. Together, we are stronger. 💙

European Commission Jardin Joint Action ESPU - European Society for Paediatric Urology ESPU-Nurses AIMAR - Associazione Italiana Malformazioni Anorettali Max's Trust

20/03/2026

🌍 World ARM Day – March 20 💙
Join us in raising global awareness for Anorectal Malformations! Share our official video tag fellow organizations, and connect worldwide. Together, we support patients, families, and an international community of care. Let’s make our voices heard!

Just in time for our brand new website is LIVE! So much work has gone on behind the scenes to put this together and we...
20/03/2026

Just in time for our brand new website is LIVE!

So much work has gone on behind the scenes to put this together and we are incredibly proud of it.

Please go and have a look:

We are Max's Trust, a dedicated charity for individuals affected by Anorectal Malformation. Our mission is to provide vital information, share personal stories, and foster a supportive community where you can feel confident and understood.

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