Campaign for FND Sufferers in Fife

07/03/2024

After posting a tiktok having a seizure it's kind of went wild 🤯 now I'm fluent in German 😂😂😂

03/11/2023

Hi, how are we all ? Sorry I've been absent from this page. Life has been hectic !
FND has been a come back and when I say come back WOW 😳.
I have been completely fine.. a few weeks hiccups but in all fine.
Then BOOM. Here comes the nerve pain.. burning.. throbbing
My speech... Slurred....
Concentration... No where to be seen.
The tiredness... That's another level. So visit to the doc man yesterday and prescribed Pregablins 🙄. Start them tonight. Yey

14/09/2023

Hi everyone, sorry I haven't been as active as I wished.

Hope your all doing well ❤️

08/08/2023

Don't think theres much of a difference with being tasered and having these 'electric shocks' absolute hell of a pain 😭😭

05/08/2023

01/08/2023

Interesting article...

The FND (Functional Neurological Disorder) guide provides further information about symptoms, diagnosis and treatment.

30/07/2023

Always🤍

28/07/2023

Interesting......

26/07/2023

A weird & complicated disorder. That the NHS has no program for & very little if any funding. And a little to no knowledge on it by doctors & nurses. Long waiting lists for physiology and neurology. Frustrating symptoms and then came along seizures for me - wow that was an experience.
The mental & physical exhaustion. It can get too much for sufferers. But we are Warriors. And I hope we can get a clinic/programme put in place for this disorder. It's becoming more and more popular now. Apparently new trainee doctors will now be educated on this disorder - which is a step in the right direction (hopefully scotland).

24/07/2023

How are well all this evening 🙂 What did you do today that you didn't do yesterday ?

23/07/2023

Hi Everyone. Let me introduce myself. My names Kayleigh, I'm from Fife and an FND sufferer. I was diagnosed in 2020 after 10 years of going back and forth to my GP with symptoms. Eventually my boss referred me to my works OHSAS where I was told to go back to my GP and demand a referral to which they did to Neurology. An MRI was taken of my Brain and Spine - which was normal. I eventually got seen by my a neurologist and was diagnosed with FND. I was then referred to a Physiology to which I phoned to see where referral was and was told I was taken off the list ! With no appointment. Now I've done some research and it looks like we don't get the treatment we deserve and I want to try and change that for all of us. If we can try and do all this together then it will be amazing. Please share any stories relating to being diagnosed and how well you were treated afterwards. Thank you
Kayleigh ❤️