CVSA By Jess

CVSA By Jess This page is to promote awareness for Cyclical Vomiting Syndrome. This is not an official page. This was created by a cvs warrior

14/08/2022
14/08/2022
14/08/2022
If you have any questions please send me a message
14/08/2022

If you have any questions please send me a message

14/08/2022

I will share the good, the bad and the ugly on this page. No condition should ever have to be hidden. Share your stories. If you have any memories of this (whether it’s about me or someone else) Share it here. Images will be included as I will not do this quietly. Let’s get raising some awareness.

If you have any tips or tricks please feel free to share them here. I will create a separate post for tips and tricks and create folders of information. This may take a few weeks to get completely set up as it’s a one women show ☺️

14/08/2022

I have created this page to create awareness and promote Cyclical Vomiting Syndrome to hopefully one day find a cause and even better … a cure. My name is Jessica Howe. I was diagnosed with this awful condition when I was just 18 months old. I am now 19. I have lived with this condition all my life. It is awful and at times debilitating. At present there is no cure. No one even knows the cause. I’ve tried a cocktail of different medications to at the very least attempt to prevent “attacks” of this sickness. As some may know, me and my family have had a long battle trying to find the right medication for me. One that prevents “attacks” the most. I must take this medication every night without fail. We have tried taking me off this medication twice. But each time a severe “attack” has followed. Consequently , I am back to routinely taking this medication. (Now bare in mind it’s been trial and error with lots of medication to find the best one for me. This can differ from person to person). My school life and my social life have both suffered due to this condition. We know I have a few *things* that may trigger an “ attack” such as anxiety and excitement but in some instances, nothing has been a highlighted factor. With enough support I am hoping to get more awareness raised and to get every gp, doctor and nurse to have knowledge on this condition. I remember when I was younger my mum used to print out pages and pages of information to give to my doctor at the hospital. This is one of my biggest memories. Whenever I am asked what medication I am on (whether this is at the opticians or another setting) I am always asked what it is and have to explain everything. Now I can just laugh at the question and give a very short but informative answer of what it is and how it affects me. I usually say “basically it’s where I can be sick every 5-10 minutes when I’m in an attack for a week. I can’t talk, walk, eat or drink. I’m so weak I require a wheelchair to go outside. I’ve had it since I was 18m months”. I am always happy to answer questions about it as I like that people are interested and want to know more. Let’s raise awareness together. Let’s fight for our voices together. Let’s get answers together.

Address


Alerts

Be the first to know and let us send you an email when CVSA By Jess posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

  • Address
  • Alerts
  • Claim ownership or report listing
  • Want your practice to be the top-listed Clinic?

Share