The Hypermobile Body

The Hypermobile Body Hypermobile yoga, movement and mindset teacher offering classes, coaching, workshops and 1:1s

Starting soon - free Q&A with OT Jo Southall and Consultant Rheumatologist Dr Philip Bull
17/07/2025

Starting soon - free Q&A with OT Jo Southall and Consultant Rheumatologist Dr Philip Bull

We've some leftover questions from last month's big weekend to cover, and more rolling in, so Jo Southall will be joined this Thursday evening by Dr Philip Bull. We're so excited we've already started collating the advance questions already! Got one? You can drop it in the comments, message us here on social media, or e-mail to info at hypermobility dot org and we'll see our LinkFairy gets them across.

You don't have to ask in advance, you can message us during the stream using the chat function and we'll do our best to get to them all! As usual, this one's a public, free, session for patients, and will be recorded so if you're busy register anyway and we'll send you the replay link when it's up on the website. hypermobility.org/events

From RICE to PEACE & LOVE…I came across this discussion about management approaches to soft tissue injuries whilst resea...
31/05/2025

From RICE to PEACE & LOVE…

I came across this discussion about management approaches to soft tissue injuries whilst researching current thinking on ankle injuries.
Summer typically sees in upswing in injuries as people get out and about more and engage in more physical activities outdoors than during the wet cold weather months.

Footwear related soft tissue injuries are also more common due to the lack of support, little grip or traction from flip flops, slides and sandals.

Approaches to managing soft tissue injuries have changed over the years with a move away from automatically prescribing anti inflammatories, total rest and icing and a move towards approaches focused on restoring functioning, maintaining mobility and building strength.

We don’t necessarily want to suppress inflammation in soft tissue injuries, particularly if inflammation is providing cushioning and protection to a joint, (the body is doing this on purpose!).

Instead we want to prioritise protection from further injury, which could look like taking a break from high risk/high impact activities, wearing supportive footwear, splints or guards to support stabilisation in the short term and avoid further trauma whilst healing.

Supporting lymphatic drainage and blood flow to stimulate healing can be achieved by elevating the injury frequently and wherever possible, as well as using taping and applying compression judiciously in the first days after injury.

We know that muscles need load to build so once the initial recovery period is over prioritsing strengthening for stability with targeted load bearing exercises as well as balance building and re-establishing functional range is key to getting back in action and having full use again.

Surgical options do exist for more serious injuries but are a last resort not a quick fix, and more conservative interventions can bring about surprisingly good results.

For those of us with Hypermobile connective tissues, we need to give ourselves extra peace and love, in the form of patience, as injuries may take longer to heal and need a slower and more steady approach to recovery. Injuries may not fully heal if rushed through and may get worse or become chronic if not given the requisite time to heal.

If an ounce of prevention is worth a pound of cure, training for stability, strength and mobility, including range of movement, rather than focusing solely on flexibility is key to recovery and prevention.

When the body as a whole is supported to be working well together, treated with care and consideration, injuries are less frequent and recovery time is typically reduced.

Functional yoga, pilates and integral movement approaches prioritise stability, strength and mobility as well as balance, ease and freedom of movement and can work wonders as part of a comprehensive injury rehabilitation program.

By Blaise Dubois and Jean-Francois Esculier Rehabilitation of soft tissue injuries can be complex. Over the years, acronyms guiding their management have evolved from ICE to RICE[1], then to PRICE[2] and POLICE[3]. Although widely known, the evidence for these treatments....

03/05/2025

The Ehlers-Danlos syndrome and hypermobility spectrum disorders community is gearing up for EDS Awareness Month. https://buff.ly/pX7EGhi

03/05/2025
07/04/2025

Easter holidays mean revision for some and anticipation of 11+/13+ school selection tests in September for others.

A common question at this time of year is,

Are children and young people with additional learning needs, diagnosed conditions including ADHD and Autism, disabilities, illness, injuries or special educational needs (SEN) entitled to be provided with access arrangements and or reasonable adjustments for their exams or other assessments?

The answer is that, yes, if they have a known learning difficulty or disability that puts them at a disadvantage compared with their non-disabled or neurotypical peers / typically able peers their school, college, tuition centre, tutoring provider or university, should consider providing up to 25% extra time, a separate room to minimise distractions, a prompter to remind to stay on task, rest / movement breaks as needed to mitigate difficulties sitting still for extended periods, (acknowledging for example a need for movement or rest to regulate and maintain engagement and focus, mental and physical fatigue etc.) a reader to ensure they don’t miss instructions, a scribe to record their answers for them or use of a computer, tablet, assistive assistive augmentative communication eg. Speech to text software or device, coloured overlays, ear defenders etc. or whatever other equipment or reasonable adjustment eg comfy clothes instead of school uniform as access arrangements/reasonable adjustments.

This is especially important if dyslexia, dyspraxia, dysgraphia or dyscalculia are diagnosed or identified as present, and or any conditions affecting written output (ability to communicate or record answers, ideas, thoughts, in written form) eg. Hypermobility, Ehlers Danlos Syndrome, other conditions affecting connective tissue joint instability, laxity, or pain eg. Juvenile rhematoid arthritis.

Access arrangements and reasonable adjustments (extra time, separate room, reader, scribe, rest and movement breaks, a computer/laptop/tablet and or any other assistive technology device, overlays, ear defenders etc.) need to be their normal way of working in class and ideally are specified in a professional report eg. Paediatrician, Educational Psychologist, Occupational Therapist, Speech and Language Therapist, Dyslexia Specialist Teacher with post a graduate qualification or assessing specialist teacher.

A DASH handwriting speed assessment can be carried out for example, by a specialist teacher for example to identify difficulties and delays with getting answers down onto the page so if you, your child or young person has these sorts of difficulties whether diagnosed or not, hasn’t been assessed recently it’s worth considering asking school to arrange for an assessment to be done for current, up to date evidence of the need for extra time in exams and any assessed work.

Additionally medical evidence of any conditions, illness or injuries causing pain or affecting attention, ability to demonstrate true intellectual ability is useful to support the need for extra time, rest or movement breaks, a separate quiet room or other accommodations eg. Wobble cushions, bed to rest on if physically unwell, access to fidget toys or sensory stimulation items etc.

If you haven’t already now is a great time to look through any diagnostic reports for recommendations of any specific access needs identified and consider requesting any further assessments you think may be necessary from eg. from Integrated Children’s Therapies - GP can refer. If school or college have overlooked this it’s not to late to raise this with both the school leadership and JCQ (the organisation that co-ordinates access arrangements and reasonable adjustments for public exams).

Getting everything in place now will also really help a student in their secondary school, college, university, job or future career.

I hope that’s helpful.

If you’d like to book a consultation for further advice and guidance about what to ask for and how to get the right evidence in place do reach out. X

21/03/2025

Really useful discussion about POTS

19/03/2025

This time on Thursday (20th) we’ll be well into our Occupational Therapy Q&A with Jo Southall . It’s free, open to the public and you can register at hypermobility.org/events. The session is our last before summertime begins, you can ask advance questions here or by message.

To keep up, scroll to the bottom of the site and add your email to put newsletter mailing list!

18/03/2025

Clear and direct information benefits everyone. And for people with a wide range of conditions and neurological differences, the difference clear information makes is huge. Trying to work out hidden meanings is exhausting - and can be impossible. Clear communication can quite literally make the difference between us being able to be part of something - or not.


Card from our website (link in comments)

I would encourage anyone with a chronic, complex, rare or poorly understood condition to take part in research - it’s a ...
18/03/2025

I would encourage anyone with a chronic, complex, rare or poorly understood condition to take part in research - it’s a great opportunity to learn more about your condition(s), increase your understanding whilst also contributing to improvements in care, diagnosis, management and treatment options for yourself and others.

https://volunteer.bepartofresearch.nihr.ac.uk/participants/introduction

Be Part of Research is a website run by the National Institute of Health and Care Research (NIHR) and is designed to help people find and volunteer for research studies taking place across the UK.

Great quick read guide to nutrition… Protein is particularly important for maintenance, renewal and repair of connective...
12/09/2024

Great quick read guide to nutrition… Protein is particularly important for maintenance, renewal and repair of connective tissue for everyone and especially so for bendy aka Hypermobile bodies as we are more susceptible to soft tissue injuries than the average Joe or Joanne…

Nutrition is something we know is important, but most of us don’t know much about it. While we’re not dieticians, nutrition can play an important role in our

28/08/2024

Researchers at the University of Edinburgh’s Institute of Genetics and Cancer published research, which shows the average timeframe from symptoms presenting to diagnosis of hypermobile EDS is almost 20 years. 12% of Scottish patients have to travel to England for a diagnosis and another 1 in 5 pay to have their condition diagnosed by a private healthcare provider. “Through a combination of surveys and patient engagement events, this project has gathered invaluable insights into the experiences of patients navigating the healthcare landscape in Scotland and focuses on the urgent need for a pathway of care within the NHS. Currently, there is a glaring absence of such a pathway, resulting in prolonged diagnostic journeys and inadequate access to specialist care for patients”.

Please see the output from the hEDS-START Project below:

https://books.ed.ac.uk/edinburgh-diamond/catalog/book/ED-9781912669837
https://books.ed.ac.uk/edinburgh-diamond/catalog/book/ED-9781912669851
https://media.ed.ac.uk/media/1_xw98ft4o
https://www.parliament.scot/chamber-and-committees/votes-and-motions/votes-and-motions-search/S6M-13095

A Bill is a proposed Act of the Scottish Parliament. A Bill that is introduced in the Scottish Parliament is scrutinised and debated by MSPs.

28/08/2024

Scared to rest?

‘Giving in’ or yielding to the need to rest is vital.

I hear from a lot of people resisting their need to rest, even when they are directed to prioritise rest by a health professional.

There’s just so much resistance to taking rest in our highly pressurised lives in a post-industrialised society.

Many people carry on still forcing their bodies to do more than they have capacity for, further depleting their reserves, as if it’s some kind of moral victory to keep on keeping on…

That sort of belief is conditioned by environment - upbringing and society - it doesn’t make it true or real, even though it can feel so.

It’s interesting how often people express fear of rest and what will happen when they finally do allow themselves to…

The irony being that if they don’t rest when their bodies and minds are exhausted they will find out sooner or later anyway, only it will be a big old, full blown, burn out, breakdown or crash that will take much much longer to recover from than giving in to rest.

There’s a whole reframe around rest and what constitutes rest, including constructive rest.

Think back to the Victorians who really formalised the role of the medical profession in treating conditions of the body, mind and spirit when bed rest was regularly prescribed for all manner of ailments, often with good effect.

Water cures, time by the sea or in mountain air etc. were all seen as beneficial for recovery from illness or injury.

Rest is restorative and slows the body to come back to homeostasis, the state of having had all primary needs met so that the body can repair, reset and renew itself, just as it is designed to.

We can change our relationship with rest and see it as a valuable resource building practice, rather than an inconvenience or a luxury.

Rest is vital.

How will you meet your need for rest today?

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