Rare Disease Ghana Initiative

Rare Disease Ghana Initiative Rare Disease Ghana Initiative is the National Nongovernmental Organization leading advocacy and coor

Over 300 participants have registered to join us this week for a free CPD-accredited webinar on Congenital Disorders of...
25/08/2025

Over 300 participants have registered to join us this week for a free CPD-accredited webinar on Congenital Disorders of Glycosylation. It's not too late to be part of this amazing learning journey and another wonderful opportunity to improve your knowledge on rare diseases, specifically on Congenital Disorders of Glycosylation (CDG). CDGs are a group of genetic disorders characterized by defects in the glycosylation process, where sugar molecules are attached to proteins and lipids. This webinar aims to raise awareness of CDGs and strengthen diagnostic and management capacities in Ghana and across global rare disease communities.

Date: 28th August 2025
Time: 3pm - 5pm

CPD is accredited by the Medical and Dental Council and the Allied Health Professionals Council.

Registration: 355c62af-3a0d-4b79-b63f-8e954341dd26@fdd176ae-c296-4a63-ada8-af5a9c9399df" rel="ugc" target="_blank">https://events.teams.microsoft.com/event/355c62af-3a0d-4b79-b63f-8e954341dd26@fdd176ae-c296-4a63-ada8-af5a9c9399df

Please join us for a free MDC and AHPC CPD-accredited webinar on Congenital Disorders of Glycosylation. Congenital Disor...
18/08/2025

Please join us for a free MDC and AHPC CPD-accredited webinar on Congenital Disorders of Glycosylation. Congenital Disorders of Glycosylation (CDG) are a group of genetic disorders characterized by defects in the glycosylation process, where sugar molecules are attached to proteins and lipids. This webinar aims to raise awareness of CDGs and strengthen diagnostic and management capacities in Ghana and across global rare disease communities.

Date: 28th August 2025
Time: 3pm - 5pm

Registration: 355c62af-3a0d-4b79-b63f-8e954341dd26@fdd176ae-c296-4a63-ada8-af5a9c9399dfs" rel="ugc" target="_blank">https://events.teams.microsoft.com/event/355c62af-3a0d-4b79-b63f-8e954341dd26@fdd176ae-c296-4a63-ada8-af5a9c9399dfs

14/06/2025

With the WHA's new resolution, rare diseases are finally getting the attention they deserve. This is a pivotal moment for global health and for our community in Ghana.

10/06/2025

The recent WHA resolution on rare diseases is a monumental step towards equity in healthcare. 🌟 Over 300 million people stand to benefit from this global commitment. Read our statement on its significance for Ghana.

07/06/2025

Exciting news from the 78th World Health Assembly! Rare diseases are now recognized as a global health priority. This resolution is a beacon of hope for millions. Discover our insights on what this means for Ghana.

03/06/2025

The 78th World Health Assembly's resolution on rare diseases is a game-changer for global health. 🌍 This decision marks a new chapter for over 300 million people affected by rare diseases. Learn more about how this impacts our community in Ghana.

31/05/2025

A historic victory for the rare disease community! On May 24, 2025, the 78th World Health Assembly adopted a landmark resolution recognizing rare diseases as a global public health priority. This is a new era of hope for over 300 million people worldwide. We are happy to share our statement on this development and how it impacts our community in Ghana.

https://rarediseaseghana-my.sharepoint.com/:b:/g/personal/swiafe_rarediseaseghana_org/EZGyfW1C9MpAuroFSqLTPl8BK68K9nsvOsc0whpltPwqsQ?e=3MLQ79

"

31/05/2025

A historic victory for the rare disease community! On May 24, 2025, the 78th World Health Assembly adopted a landmark resolution recognizing rare diseases as a global public health priority. This is a new era of hope for over 300 million people worldwide. We are happy to share our statement on this development and how it impacts our community in Ghana.

20/05/2025

As we reach this pivotal moment, the adoption of the WHA Resolution is not the finish line,
it is the foundation for the next phase of action. Now, we must ensure it translates into real impact for people living with rare diseases (PLWRD) and people living with undiagnosed diseases (PLWUD).
Rare Disease Ghana Initiative is honored to give a keynote address at the World Health Assembly side-event, uniting the rare disease and global health communities. This event celebrates a decade of progress and looks ahead to the future of advocacy, policy, research, and care.

Happy mother's Day to all mothers in the rare disease community. Your strength and Resilience inspire us ❤️
11/05/2025

Happy mother's Day to all mothers in the rare disease community. Your strength and Resilience inspire us ❤️

Happy 68th Independence Day, Ghana! 🎉Today, we celebrate freedom, resilience, and unity!As we honor this milestone, we s...
06/03/2025

Happy 68th Independence Day, Ghana! 🎉
Today, we celebrate freedom, resilience, and unity!
As we honor this milestone, we stand together in creating a future of inclusion, hope, and better healthcare for the rare disease community.
Let's keep pushing for a healthier and stronger Ghana for everyone! 💛💚❤️🖤

Address

Mensah Anteh Avenue, Ashongman Estate, Ga East Municipality
Accra

Opening Hours

Monday 09:00 - 17:00
Tuesday 09:00 - 17:00
Wednesday 09:00 - 17:00
Thursday 09:00 - 17:00
Friday 09:00 - 17:00
Saturday 09:00 - 17:00

Telephone

+233552716011

Website

Alerts

Be the first to know and let us send you an email when Rare Disease Ghana Initiative posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Practice

Send a message to Rare Disease Ghana Initiative:

Shortcuts

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram