Rare Disease Ghana Initiative

Rare Disease Ghana Initiative Rare Disease Ghana Initiative is the National Nongovernmental Organization leading advocacy and coor

14/06/2025

With the WHA's new resolution, rare diseases are finally getting the attention they deserve. This is a pivotal moment for global health and for our community in Ghana.

10/06/2025

The recent WHA resolution on rare diseases is a monumental step towards equity in healthcare. 🌟 Over 300 million people stand to benefit from this global commitment. Read our statement on its significance for Ghana.

07/06/2025

Exciting news from the 78th World Health Assembly! Rare diseases are now recognized as a global health priority. This resolution is a beacon of hope for millions. Discover our insights on what this means for Ghana.

03/06/2025

The 78th World Health Assembly's resolution on rare diseases is a game-changer for global health. 🌍 This decision marks a new chapter for over 300 million people affected by rare diseases. Learn more about how this impacts our community in Ghana.

31/05/2025

A historic victory for the rare disease community! On May 24, 2025, the 78th World Health Assembly adopted a landmark resolution recognizing rare diseases as a global public health priority. This is a new era of hope for over 300 million people worldwide. We are happy to share our statement on this development and how it impacts our community in Ghana.

https://rarediseaseghana-my.sharepoint.com/:b:/g/personal/swiafe_rarediseaseghana_org/EZGyfW1C9MpAuroFSqLTPl8BK68K9nsvOsc0whpltPwqsQ?e=3MLQ79

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31/05/2025

A historic victory for the rare disease community! On May 24, 2025, the 78th World Health Assembly adopted a landmark resolution recognizing rare diseases as a global public health priority. This is a new era of hope for over 300 million people worldwide. We are happy to share our statement on this development and how it impacts our community in Ghana.

20/05/2025

As we reach this pivotal moment, the adoption of the WHA Resolution is not the finish line,
it is the foundation for the next phase of action. Now, we must ensure it translates into real impact for people living with rare diseases (PLWRD) and people living with undiagnosed diseases (PLWUD).
Rare Disease Ghana Initiative is honored to give a keynote address at the World Health Assembly side-event, uniting the rare disease and global health communities. This event celebrates a decade of progress and looks ahead to the future of advocacy, policy, research, and care.

Happy mother's Day to all mothers in the rare disease community. Your strength and Resilience inspire us ❤️
11/05/2025

Happy mother's Day to all mothers in the rare disease community. Your strength and Resilience inspire us ❤️

Happy 68th Independence Day, Ghana! 🎉Today, we celebrate freedom, resilience, and unity!As we honor this milestone, we s...
06/03/2025

Happy 68th Independence Day, Ghana! 🎉
Today, we celebrate freedom, resilience, and unity!
As we honor this milestone, we stand together in creating a future of inclusion, hope, and better healthcare for the rare disease community.
Let's keep pushing for a healthier and stronger Ghana for everyone! 💛💚❤️🖤

On behalf of the Rare Disease Ghana Initiative and Rare Disease community, we extend our deepest gratitude for your unwa...
03/03/2025

On behalf of the Rare Disease Ghana Initiative and Rare Disease community, we extend our deepest gratitude for your unwavering support during Rare Disease Day. Your commitment to raising awareness, advocating for better healthcare, and empowering individuals living with rare diseases has made an incredible impact.
With your support, we are driving change and ensuring that the voices of those affected by rare diseases are heard louder than ever. Your partnership has truly made a difference in more ways than you can imagine!
Thank you for standing with us, for believing in this cause, and for being champions of hope and change. We look forward to continuing this journey together.

LIVE: Ministry of Health, Rare Disease Ghana Initiative commemorate 2025 Rare Disease DayLINK:
28/02/2025

LIVE: Ministry of Health, Rare Disease Ghana Initiative commemorate 2025 Rare Disease Day

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