Sickle Life

23/07/2025

Over the last few weeks, our founder Dr Enam Sefakor Bankas ( ) and her colleague Dr. Ivy-Marie Aggrey ( ) were hosted by Mr. Nortey Dua on on .

They had fruitful discussions addressing topical issues in diagnosis, management and advocacy.
Notable among them were issues on possible errors in diagnosis, debates on the appropriate approach to counselling about and some clinical symptoms and complications such as retinopathy. They also addressed a lot of confusion about differentiating between SCD status and blood groups.

The discussions were very interactive with listeners asking critical questions and some persons living with SCD and their caregivers calling in to share their experiences with the condition.

Listeners were also admonished not to weaponise their knowledge and experiences in their attempts to advice others about the condition, (which fuels stigmatisation and discrimination) but rather, use the insights obtained to lead transformation in SCD management and advocacy.

We will like to thank everyone who tuned in and appreciate all who sent us comments and feedback.

Kindly watch this space. Something exciting is coming soon.
Thank you.

Understanding Sickle Cell Disease
Part 1:
https://www.youtube.com/live/C-DVqv6LlxM?si=VcknZBMeJ6rXAPmv

Part 2:
https://www.youtube.com/live/uKKXToBi37M?si=tpf2hF5YRW65wJPg

14/02/2025

Love is love! Just make an informed decision.
Thank you for the love, community and support.
Love you always.

It is coming…

01/01/2025

Happy New Year!

As we step into a new year, we’ll like to take this moment to express our heartfelt appreciation to you.

May this year bring you renewed strength, hope, and joy.
May you experience fewer crises and much better health and general wellbeing.

May you continue to find comfort, support, and connection with loved ones and our community and may you continue to live each day to the fullest and make it count.

We wish you a year filled with love, laughter, and all the things that bring you joy.

As we keep saying…
Watch the space!!!
2025 promises to be epic!

25/09/2024

Know your Genotype by getting tested!!

25/09/2024

What is Sickle Cell Disease in your local language?

17/06/2024

https://www.linkedin.com/posts/larrymadowo_nigerian-singer-adekunle-gold-was-bullied-ugcPost-7208017955903750144-x3Yq?utm_source=share&utm_medium=member_ios

15/06/2024

04/01/2024

Wishing you all a Prosperous New Year, thank you for being part of our journey.
Enjoy the season.
Watch this space for something interesting soon.

24/11/2023

Sickle Life, in collaboration with the University of Ghana Office of Research, Innovation and Development (ORID) and funded by the Building Stronger Universities (BSU) Phase III Programme, has successfully conducted two significant research projects over the past year.

The first project focused on the distribution of Hemoglobin S (HbS) in the Greater Accra and Central Regions of Ghana, based on data collected from Community-Based Screening Programmes. The second project examined the Sickle Life Sickle Cell Online Support Group and its impact on patients' knowledge and health-seeking behavior.

To disseminate the findings of these studies and plan for the implementation phase, the inaugural Sickle Life Research Conference was held on Friday, 10th November 2023, at the ISSER conference hall of the University of Ghana. The conference aimed to engage key stakeholders in Sickle Cell Disease (SCD), including individuals living with SCD and their caregivers, representatives of various SCD NGOs, collaborators, researchers, and members of the media.

The conference was chaired by Prof. Obeng Adjei, former director of ORID, who commended the quality of our work and expressed optimism about future collaborations. Prof. Felix Ankomah Asante, the Pro Vice-Chancellor (RID) of the University of Ghana, underscored the importance of research, BSU projects, and collaborations with organizations such as Sickle Life in his address. Dr. Ivy-Marie Aggrey, a Haematologist at the Sickle Cell Clinic, Korle-Bu, emphasized the significance of research in SCD management and the role of advocates.

Mr. Nathaniel Delali Seneadza, Head of Programs at Sickle Life, introduced guests to Sickle Life and its diverse portfolio. Subsequently, Mr. Enoch Alabi Mensah, a former Head of Programs at Sickle Life, and Dr. Enam Sefakor Bankas, Founder and Managing Director of Sickle Life, delved into the two research projects and their findings. They also responded to questions from the audience, with full findings scheduled for subsequent publication.

We extend our sincere appreciation to all participants, investigators, and collaborators for the success of these research projects. For further information and potential collaborations, please contact Sickle Life at sicklelifemd@gmail.com.

10/11/2023

A symposium to disseminate seminal SCD advocacy group research findings

28/10/2023

Sickle Life conducted 2 research projects in the past year with the support of the University of Ghana ORID and BSU phase III project.
These were on:

1. Importance of community-based screening for sickle cell disease.

2. Impact of support groups on the health seeking behaviour of patients and their caregivers.

Sickle Life is hosting a conference to share the findings of these two important research projects as follows:

Date: Friday, 10th November, 2023
Venue: University of Ghana-ISSER Conference Hall
Time: 1:00pm prompt

This event is strictly invite only.
Register to participate online: via https://bitly.ws/YfcI

Thank you.

22/06/2023

World Sickle Cell Day 2023