13/02/2026
Let’s talk about addressing the cost of disability.
The need to tackle the cost of disability has long been recognised by disabled people and DPOs. That urgency is now reflected in the Programme for Government 2025 and the Human Rights Strategy for Disabled People 2025 to 2030. Article 28 of the UN CRPD also clearly sets out our right to an adequate standard of living and social protection.
The Department of Social Protection is leading the development of a cost of disability scheme and has launched a consultative process. ILMI strongly believes disabled people must be central at every stage of shaping this scheme. Our lived experience is not optional. It is essential.
We want to hear from you. Across two collective discussion sessions, we will focus on two key areas. First, what the upcoming DSP National Strategic Framework Summit on Cost of Disability is about and how disabled people’s lived experience should be reflected in it. Second, how a cost of disability scheme should be designed so it has a real and meaningful impact on disabled people’s lives.
We will explore questions such as who should receive a cost of disability payment, how often it should be paid, and how it supports choice and independent living. Facilitators will share guiding questions in advance.
The first session takes place on Tuesday 17 February at 3 pm and will focus on the structure and content of the DSP National Strategic Framework Summit. A second session will then examine the structure of the cost of disability scheme itself.
To register and get the Zoom link, email michaelseifu@ilmi.ie
IMAGE: poster with text of date time and purpose all detailed above