Sue's Lyme Disease Fight

09/10/2025

Kevin Jonas’ wife Danielle Jonas shared that she was diagnosed with Lyme disease after experiencing hair loss: “They tried to tell me it was anxiety.” More details in the comments.

04/10/2025

Awareness is everything when it comes to Lyme Disease. Thank you for sharing your story 💚

A 27-year-old who has been bedridden for two years after being diagnosed with Lyme disease urged others to “educate yourself” on tick-borne illnesses, as she now faces an uncertain future. It is thought Maia Pavey, from Erith, south-east London, was bitten by a tick during her teenage ye...

30/09/2025

Article from The Guardian

I write about nature, but when Milly got sick with a mystery illness, it never occurred to me that a long-forgotten tick bite could be the cause

18/09/2025

💚

Yolanda Hadid shared an emotional writing to her daughter as she battles chronic neurological Lyme disease. 💚

“As you will understand watching my Bella struggle in silence, has cut the deepest core of hopelessness inside me,’ began the mother to Bella as well as Gigi Hadid.

The invisible disability of chronic neurological Lyme disease is hard to explain or understand for anyone.

‘I try to lead by example on our Lyme journey but my own pain cannot compare to watching my baby suffer.

‘After many years I stopped sharing my personal story because I needed an energetic shift, time to focus on my healing rather than absorb other people’s opinions about my journey.”

Thank you for sharing your journeys so openly with all of us 💚 We are sending you our love and healing.

Full article available here: https://www.dailymail.co.uk/tvshowbiz/article-15111551/amp/Bella-Hadids-mom-pens-note-amid-daughters-health-struggle.html

18/09/2025

So many of us suffering with chronic Lyme disease knows how this feels. We can have are good days and then there’s the bad. It’s so unfair that so may of us are left to suffer.

'I'm sorry I always go MIA I love you guys,' wrote the cover girl in her Instagram caption as she shared a collection of images from her trip. Her sister Gigi Hadid was quick to comment: 'I love you!'

14/09/2025

06/09/2025

02/09/2025

Lyme disease “left me bed bound and turned my head to mush’

Dan Duerden's ordeal began when he was bitten by a tick while shearing sheep on his family farm.

31/08/2025

Billie Shephard sharing her experience with Lyme Disease on the This Morning show.

18/08/2025

As a Lyme disease fighter for many years now, I can still remember been told by the doctor. The fear, why me, sadness, and the so many questions I needed answered. Lyme disease can be life changing but if your lucky enough to know the symptoms and to be Tick aware your chances are greater. This is why sharing my journey and awareness of Lyme disease means so much to me. Awareness is key

06/08/2025

Climate change is contributing to the global rise of Lyme disease. But many physicians are struggling to recognise its symptoms.

03/06/2025

The Daily Mail - UK - TERRIFYING' ‘Perfectly healthy’ girl, 4, left paralysed after family camping trip due to giant critter feasting on her scalp

A dime-sized female Rocky Mountain wood tick was hidden in her hair, latched onto her skin and feeding on her blood

Isabel Shaw, Health reporter
Published: 12:08, 29 May 2025Updated: 16:55, 29 May 2025

TAYLOR Justice was "terrified" when her "healthy" daughter Madeline Tuckwiller woke up paralysed after a camping trip - all because of a tick.

"She couldn't walk and she was crawling on the floor," the 31-year-old mum said.

It was only when a neurologist asked about the family’s outdoor activities that he decided to examine her scalp.

They found a dime-sized female Rocky Mountain wood tick hidden in her hair, latched onto her skin and feeding.

It had been releasing a neurotoxin into Madeline’s bloodstream, triggering a rare condition called tick paralysis.

The tick was carefully removed, and within hours, Madeline’s mobility began to return.

She was able to walk again about four hours later,” Taylor said. “It was such a relief.”

Ticks can hide anywhere and the earlier you catch it, the better.

The youngster was also given antibiotics to lower the risk of Lyme disease, which ticks can carry and which can cause long-term complications if not treated early.

Taylor, a salon owner, said she had never heard of tick paralysis before.

“It’s frightening how something so small can do that kind of damage,” she said. “I’ll be so much more careful now.”

Madeline has started to recover but still wakes up with some stiffness in her legs in the mornings.

Thankfully, she’s regained full movement during the day and is back to her usual self.

Taylor says the experience has changed the way she thinks about outdoor safety.

She now checks all her children thoroughly after time outside and keeps tick repellent in her bag at all times.

“Parents need to know about this,” she said.

Check their heads, their hairlines, behind their ears, waistbands, even their socks.

"Ticks can hide anywhere and the earlier you catch it, the better.”