BRCA Link NI

10/03/2024

BRCA 2024 Conference: Supporting the BRCA Journey
Open to all family and friends.
Registration link …. Hazel x

BRCA 2024 Conference: Supporting the BRCA Journey This conference will focus on providing information on a range of topics including:…

23/02/2024

10/02/2024

SAVE THE DATE
Friday 31st May 2024
Annual BRCA Conference at the Ivanhoe, Carryduff.

01/01/2024

New Year can often be hard with a high risk gene, perhaps through the loss of loved ones, through the prospect of surgery or the diagnosis of cancer. This morning as I reflect over a coffee and a gorgeous sunrise may be all have strength to do what we can in 2024. Thanks for all your support to each other and may we continue to walk together x

10/11/2023

Next Meet up
Sunday 26/11/23
Chit & Chat
Grand Central 10am

05/06/2023

GRAND CENTRAL MEET UP
Hi all… I know many of you missed the conference and keen to meet others. So this Saturday 10th June as planned a few weeks ago Ashley Hurst and myself are making ourselves available to meet/chat/answer qs High Risk related. This is completely informal and there will be no formal talks as such. Just a coffee and chat. Please bring a friend or partner too.
We will be in the Grand Central Foyer for 9.45am. My very kind brother in law, John Dodd who is the concierge can get us an area off the main reception to chat. Please comment below or PM if attending so we can gauge interest.
Many thanks
Hazel x

18/05/2023

Looking forward to our 12th Annual conference - cannot believe this is the 12th! Thankful for QUB School of Pharmacy and Action Cancer who both support us x

06/04/2023

BRCA conference 19 May 2023- hope everyone can come. Looking forward to seeing you there, Hazel x

22/02/2023

https://www.bbc.co.uk/news/uk-northern-ireland-64724552

It will mean better services and support in Northern Ireland for those in need, say campaigners.

31/12/2022

Thinking of you and your BRCA family here in NI and afar as we look back at 2022 and ahead into 2023. Being a high risk family always has heartache in some way but this often gives a renewed outlook on doing life ..... thinking of you all today and hopefully see you all soon. Thanks for your 'online' and 'in person' support and encouragement which I know is so so valuable to so many!
Haze ###xx

11/09/2022

BRCA?High Risk and in the U30 group.... please PM and we can get you added to our new private group off this one - its for reaching out and supporting each other H x.

27/08/2022

BRCA/HIGH Risk and U30?
We are planning a get together to link with the U30 Group. If interested please join us Friday 9/9/22 10am at Action Cancer, Windsor Avenue BT9 6EE.
See the private group (Brca Link Northern Ireland) for event details or email Hazel Carson at brcani@live.co.uk if you need more information.
See you there H x

28/02/2022

A new section in the Action Cancer website - super information!

This ‘BRCA information hub’ provides informative videos on topics relevant to anyone interested in BRCA or who is a BRCA carrier. BRCA and men Examples of topics included within the video are: – Cancer risks associated with male BRCA carriers – PSA testing – Current research relating to pr...

28/02/2022

Your invitation ....

We are delighted to announce that the 11th Annual joint BRCALinkNI/School of Pharmacy (QUB)/Action Cancer Information Day will be held on Friday 20th May at the Balmoral Hotel, Belfast.
This information day is for people at high risk of breast, prostate and ovarian cancer and their families. This can be due to mutations in BRCA1 or BRCA2 or for as yet undefined genetic reasons.
This year we will focus on areas such as Genetic Testing, Surgical Options, Impact of COVID on services and how to "live with and love the new you".
As always, we will have an "Ask the Experts" session with a panel from specialties including surgery, plastic surgery, oncology, gynaecology, and genetics. This provides a unique opportunity to ask questions on the day or pre-submitted if you wish to remain anonymous. Please submit any questions to brcani@live.co.uk
A more detailed agenda will be released closer to the time.
Lunch will be provided – please register for catering purposes at
https://www.eventbrite.co.uk/e/brcalinkni-11th-annual-information-day-tickets-287865693037

Please note that we are planning for an in person event, but this is subject to relevant COVID restrictions at the time.
Arrival from 9.30 for a 10.00 start, finishing about 15.30.
Please let us know if you have any special dietary requirements or require any further information.
Looking forward to seeing you all then
Niamh, Ruth and Hazel

11th Annual BRCALink NI information day for women at high risk of breast and ovarian cancer and their families.

26/02/2022

SAVE THE DATE - 20th May 2022
Annual Conference Face to Face! Balmoral Hotel. 10 - 3ish. x

31/12/2021

To all our BRCA NI families and friends - a mixed 2021 for so many. Many in our group have received the news they are BRCA positive, some received a cancer diagnosis, some had surgery, whilst others are recovering physically and mentally and many are accessing information to make informed choices for their future. Challenges to our NHS has made the pathway even more difficult!
Going forward - BRCA NI with CCRCB and Action Cancer have made a provisional date for an annual face to face conference in Spring 2022. I am delighted we will get together soon! More details will be posted in the New Year.
May I wish you and your wee families a Happy New Year...
Hazel xx

20/06/2021

Unfortunately this is the reality. The PARP inhibitors are game changing drugs for women with BRCA mutations. Julie cannot access through NHS.
If you are able please support Julie with a donation… also you could share her story with your friends.

My name is Julie, I’m 37-year’s old and I am desperately in need of funds to pa… Julie Lillis needs your support for Help get Life-saving Treatment for Julie

16/01/2021

Also from Ruth at Action Cancer -
Action Cancer is continuing throughout this lockdown to provide online/telephone counselling, Life Coaching, Complementary therapies (relaxation techniques, meditation/mindfulness, Emotional Freedom Technique/tapping, Bach Flower Remedies) and pilates. We also have a group life coaching programme (called Positive Living Programme) via zoom that will be held end of February. These are available to cancer patients and their families. Clients can self refer so if you have anyone who you feel needs support either tell them to give us a ring (02890803344)