abbiesepilepsy

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abbiesepilepsy

My name is Abbie, and I have Epilepsy. This is my journey 💜

02/10/2025

Hiiiiiii has anyone experienced Briviact Rage? Like Keppra, but Briv. Ya know?

05/01/2024

4 years

14/12/2023

So I’ve been through a lot this year. I was diagnosed with obstructive sleep apnea, had my Briviact reduced by 25%, started a weight loss journey and have lost 12kg so far, flew to Barcelona to see Springsteen, discovered a horrendous fear of flying and claustrophobia, got into a relationship that I feel so lucky to be in, had some great moments with my grandparents, had some friendships that went sour, went abroad more than once, turned 30, AND my country went to war - we’re on day 69 and I had to fly back to the UK and have moved in with my boyfriend for the first time at my mum’s house x

The stresses I have felt this year have been astronomical, but the support I have had from my loved ones has outweighed it hugely. The biggest success for me? I went to see my neurologist at Queen Square Institute of Neurology for the first time since my last seizure almost four years ago, and we had some amazing conversations. We discussed my medication, my anger issues, my cycle, my pregnancy concerns (not preg, making that clear), and what my path looks like for the future. We decided to reduce my Briviact AGAIN - drop 50mg in the mornings and another 50mg in the evenings in one month if I am feeling good, and coming off clobazam completely due to increased risks with pregnancy and just general “I want to take as few meds as possible”. I am over the MOON. I still need to see an endocrinologist, which I was expecting and totally fine with, but what I heard last night was more than I hoped.

2024, I am so ready for the challenges you will throw at me. I am expecting a lot of personal growth, both mentally and physically, with a support system around me that I could only dream of. My friends who have been here for me this year through everything, I love you with all my heart and soul and you are my chosen family. To the people I am now distanced from, I truly wish you the best; seasons and reasons and all that s**t.

08/08/2023

I’ve only learnt in the past couple of years *how to say no* because I’m putting myself first instead of my social life. One thing I know we ALL find extremely difficult is opening up to people about our struggles, our confusion, and our pain.

Yesterday, I met someone for the first time (in person, can you believe it?!) who has a recent epilepsy diagnosis. You have NO idea how incredible it was to be able to story share face to face and not just through a screen. We ended up sitting together for around 2.5 hours and I can safely and honestly say that we could have sat there all day.

This is what can happen if we ask for help and put our egos aside. Don’t get me wrong, I know it’s extremely hard doing so. All it takes is one text or call. Just one! You’ll feel like a whole new person, trust me 🤍

📷

05/07/2023

Hi today I’m 3.5 years seizure free 🥹💜 all your support since I’ve started this account has been extremely meaningful, and I hope I’m helping you in the same way you’ve all helped me ###

26/03/2023

Throwback to when my got reduced 💜

13/02/2023

Grateful to those who help me on my journey, and grateful to help you on yours. Our brains may give us a lot of struggles with this disease, but this piece of art by really reminded me that we are who we are and the least we could do is educate others about what we deal with. It’s why I’m here. It’s why you’re here. It’s how we became a community. We’re gonna be ok 💜

06/02/2023

The face of a girl who smashed her Video EEG and had her Briviact reduced by 25% 🥹🥹🥹🥹🥹

06/02/2023

Lol me for the last 24 hours. Actual photo of me all wired up coming soon 😜

05/12/2022

Good (?) morning

Credit:

03/09/2022

Manifesting that I can do all of these things by the end of the year 💫🤍

Repost:
Art:

22/08/2022

Hi, me again, time for a positive post about yours truly and what I’ve been up to recently.

We all know that I had a tough time for the first half of 2022, but that changed at the beginning of June. I started a new job working at Save A Child's Heart , a non-profit organisation providing life-saving cardiac care to children all over the world of race, religion, gender, or nationality who don’t have access to this care. We are based in Israel and all surgeries are performed here by the most sensational medical teams.

I’m constantly having the best time, I’ve made great friends, and I’m meeting the most incredible people from paediatric cardiac surgeons to embassy representatives to our donors from all over the world. I get to spend my days with the most beautiful children and their mothers, and I’m really doing something to change the world (following in the footsteps of my mother when she was my age without even realising I was doing so).

Here’s to SACH and the incredible work we’re all doing, I’m SO proud to be part of this mind blowing family 🤍🤍🤍🤍🤍🤍🤍🤍🤍

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