Santana Fights Rare Blood Cancer

  • Home
  • Santana Fights Rare Blood Cancer

Santana Fights Rare Blood Cancer My Mother Santana Pal has been diagnosed with Myelofibrosis, a rare type of Blood Cancer.

She needs Rs 19 Lakhs for her Bone Marrow transplant on an urgent basis. This page regarding her health updates an steps to achieving the goal with your support.

โœ… Update on My Mother's Health: Post-Bone Marrow Transplant Recovery and Recent HospitalizationMy mother, a post-bone ma...
08/04/2023

โœ… Update on My Mother's Health: Post-Bone Marrow Transplant Recovery and Recent Hospitalization

My mother, a post-bone marrow transplant blood cancer patient (SCT +10 months) with a history of Primary Myelofibrosis, was recently admitted to the hospital due to hand swelling, eye infection, muscle pain, and recurring fever. The dedicated healthcare team closely monitored her condition and conducted various tests to determine the cause of her symptoms. They ruled out muscle GVHD and Eye GVHD. After further investigation, they concluded that her hand swelling was likely due to cellulitis.

An ophthalmologist diagnosed an eye infection and prescribed a few eye drops to treat it. Thankfully, her eye condition is now improving. The recurring fever has decreased but hasn't fully subsided. The healthcare team at CMC has prescribed oral medications to manage the fever.

Throughout her hospital stay, my mother received various medications, including antibiotics (Magnex, Teicoplanin), pain relief (Tramadol, Pyrilin), and other treatments to manage her symptoms. Her hand swelling began to subside with MgSO4 treatment, and the doctors decided to gradually taper off Tramadol as her hand pain improved. They also addressed her fever with oral medications.

My mother is now being discharged from the hospital, with a plan for bi-weekly outpatient follow-ups to continue monitoring her progress and addressing the hand swelling until it is completely resolved. The healthcare team will continue to support her recovery and ensure she receives the best possible care.

Thank you, everyone, for your warm wishes.

Best Regards,
Arghya

Health Update on My Mother:My mother Santana Pal received a Full Matched Allogenic Transplant for Primary Mylofibrosis a...
28/03/2023

Health Update on My Mother:

My mother Santana Pal received a Full Matched Allogenic Transplant for Primary Mylofibrosis and is now 10 months post SCT. Unfortunately, she has been readmitted due to some concerning symptoms.

She has been experiencing red and painful eyes for the past two weeks, and an ophthalmologist has prescribed medication for an infection. Additionally, she has been experiencing frequent fever and joint pain for the past 20 days and overall feels weak.

The doctor has readmitted her to investigate the possibility of Eye GVHD or musculoskeletal GVHD, though her hematological reports are currently normal.

Please keep my mother in your thoughts and prayers for a speedy recovery. She is a fighter.

Best regards,
Arghya Pal

29/11/2022

Day +207 Update on my mother Santana Pal
Primary Mylofibrosis CALR+ve Full Matched Doner ( matched with her Sister )
๐Ÿ–‹๏ธ Creatinine increased little bit 2.2
๐Ÿ–‹๏ธ Potassium increased slightly 5.7

Checked Vitamin D (26.8)

๐Ÿ–‹๏ธ Doctor stopped Cyclosporine today. Will check the result again after 3 days.

โœ… Attaching the latest results.

Overall she is doing better. But she is having some leg pain issue.

Hg: 8.4
Platelet:31,000
WBC:2200

( Doctor always says it is normal, but good numbers are not coming in result.. waiting for good result)

๐Ÿ–‹๏ธ No Blood or Platelet transfusion required after transplant. (14th May 2022)

๐Ÿ–‹๏ธ In this journey she had BK Virus, Liver GVHD ( major problems)

๐Ÿ–‹๏ธ Ups and Downs were there. In between she had lots of burning sensation over back issues. With Gaviscon Syrup and Pancreatin digestion medicine it is now little stable.

๐Ÿ–‹๏ธ Earlier she used to walk a lot. Recently she feels pain in her right leg. Orthopaedic doctor did XRay. Found nothing. Physiotherapy doctor gave some exercises.

Please share your thoughts.
1) At this time how was your counts ?
( Doctors say as she is on Cyclosporine, platelets will not increase fast )

( She is having different blood group with her sister ( doner ) . So change of Blood group not yet happed. This process takes time. Sometimes till one year. So the increase of number will be done slowly.

2. How was your case ?

3. She is on constant cremaffin ( as she encouters piles issues due to so many anti biotics)

Good to know Facts :
++++++++++++++++++++++
1. She started cooking again.
2. Started doing Yoga. Meditation.

This group helped a lot.

Please share your updates.

For those who are doing treatment in CMC.
23/10/2022

For those who are doing treatment in CMC.

18/10/2022

Day +158

She is improving day by day. Thanks for all of your support ๐Ÿ’ž. In between she had admitted two more times because of BK Virus and Liver GVHD.
Now there is no GVHD and she is having a strong determination to fight back.

It was 22nd February along with my wife Sohini Boral We came to Christian Medical College Hospital . It is indeed a tough journey.

Stem Cell Doner Matched - Bone Marrow Transplant - 32 Days of Admission - again readmission of 39 days due to BK Virus - She was stable around 2 months and again readmitted for Liver GVHD.

As of today because of your support we are able to smile again.

Thanks for all the supporters access the world.

Whole world has stood beside her in this stage.

We do remember the Fund raising journey.

As of today, more than 41 Lakhs of treatment we have done in CMC.

And around 11 Lakhs came as a output of Crowdfunding. Thanks for your huge support. I never thought that people outside India will come and help here.

It is not the end. This will be continued.

Your prayers will definitely help her a speedy recovery ๐Ÿ™. Please keep on praying for her speedy recovery.

A huge salute to all the college students who came for Blood and Platelet donation during this time.

During this journey, I have helped so many people with the strategy of Crowd Funding.

If anyone needs any help on Crowdfunding formulation and steps - I will help.

Thanks to my mentor Rahul Bhatnagar sir as well for your guidance and support ๐Ÿ™.

Thanks to all of you who are reading this message. Please keep on praying for her speedy recovery.

Thanks
Arghya Pal

Few Information that people had requested related to Rooms and Train Ticket Booking.
28/08/2022

Few Information that people had requested related to Rooms and Train Ticket Booking.

Day +59This was what Doctors wrote in diary today.My sister went with my mom for her doctor visit today. Doctor said, co...
12/07/2022

Day +59
This was what Doctors wrote in diary today.

My sister went with my mom for her doctor visit today.

Doctor said, coming Friday they will do 2nd Chimerism Test.

They stopped Prazosine 2.5mg.

๐ŸŸข Health Update: Day +42 ( 25th June 2022)=======================================- Completed 3rd Dose of BK Virus Inject...
25/06/2022

๐ŸŸข Health Update: Day +42 ( 25th June 2022)
=======================================
- Completed 3rd Dose of BK Virus Injection ( Cido fiver)
- Her Counts are little low due to this BK Virus.
- Good thing is She is improving day by day.
- She is still hospitalized , she will be discharged again once she will be more stable.

Post Transplant Complications will cost another Rs 10 Lakhs to save her. We have already done the treatment of Rs 25 Lakhs +

Any help is appreciated.

โœด๏ธ Your little help will bring her smile back to continue her treatment and Post Transplant cost.

โœด๏ธ Each ๐‘ซ๐’๐’๐’‚๐’•๐’Š๐’๐’ is important. ๐‘ท๐’๐’†๐’‚๐’”๐’† donate for a noble cause & share & save a life...

๐Ÿ’ข Almost 25.4 L of treatment done.
Fund Raised 13.1 L
We have spend 12.3 L ( We are almost out of fund to continue...)

Still around โ‚น 10 L can save a life...to continue her treatment
Someone can't help everyone but
Everyone can help someone.....

๐Ÿ”ด Donate & help:
๐ŸŽฏ For direct transfer: ๐Ÿ‘‡ -------------------------------

Arghya Pal : G Pay / Phone Pay / Paytm :
9851 428 795

๐ŸŽฏ Help via fundraiser ๐Ÿ‘‡
-------------------------------------
๐ŸŸข Milaap :
https://milaap.org/fundraisers/support-santana-pal

๐ŸŽฏ All in one Link: ( Medical Documents/Estimates / Total Fund Update) :
https://linktr.ee/santanafightscancer


Post Transplant Complications will cost another Rs 10 Lakhs to save her. We have already done the treatment of Rs 25 Lak...
23/06/2022

Post Transplant Complications will cost another Rs 10 Lakhs to save her. We have already done the treatment of Rs 25 Lakhs +

Any help is appreciated.

โœด๏ธ Your little help will bring her smile back to continue her treatment and Post Transplant cost.

โœด๏ธ Each ๐‘ซ๐’๐’๐’‚๐’•๐’Š๐’๐’ is important. ๐‘ท๐’๐’†๐’‚๐’”๐’† donate for a noble cause & share & save a life...

๐Ÿ’ข Almost 25.4 L of treatment done.
Fund Raised 13.1 L
We have spend 12.3 L ( We are almost out of fund to continue...)

Still around โ‚น 10 L can save a life...to continue her treatment
Someone can't help everyone but
Everyone can help someone.....

๐Ÿ”ด Donate & help:
๐ŸŽฏ For direct transfer: ๐Ÿ‘‡ -------------------------------

Arghya Pal : G Pay / Phone Pay / Paytm :
9851 428 795

๐ŸŽฏ Help via fundraiser ๐Ÿ‘‡
-------------------------------------
๐ŸŸข Milaap :
https://milaap.org/fundraisers/support-santana-pal

๐ŸŽฏ All in one Link: ( Medical Documents/Estimates / Total Fund Update) :
https://linktr.ee/santanafightscancer


Attaching Few Bils:-//All Bills Link :- https://drive.google.com/drive/folders/1EYuUg0eZHwNRP9uqH9tjlHGjuQ_D-q0QBk Virus...
19/06/2022

Attaching Few Bils:-//
All Bills Link :- https://drive.google.com/drive/folders/1EYuUg0eZHwNRP9uqH9tjlHGjuQ_D-q0Q

Bk Virus made her super weak.Still around โ‚น 9.6 L can save a life...to continue her treatment. Almost 25.4 L of treatment done. Help her !

She is admitted in A821 , CMC Vellore.

- There are some medicine which costs Rs 3000 / Per tablet.

How many medicine can one person have at a time !

๐Ÿ™Please pray for her so that she can recover quickly from this BK virus infection.

๐Ÿ”ด Before Transplant We have spent almost 5.9+L

๐Ÿ”ด Bone Marrow Transplant cost Rs was 18.3 L( Till 7th May 2022 to 7th June 2022)

๐Ÿ”ด Medicine for 2 Weeks After discharge costed 1.2L
( She needs costly medicine for next 3 months)
Post Transplant Treatment will surely cost more than 4L+

โœด๏ธ Your little help will bring her smile back to continue her treatment and Post Transplant cost.

โœด๏ธ Each ๐‘ซ๐’๐’๐’‚๐’•๐’Š๐’๐’ is important. ๐‘ท๐’๐’†๐’‚๐’”๐’† donate for a noble cause & share & save a life...

๐Ÿ’ข Almost 25.4 L of treatment done.
Fund Raised 13.1 L
We have send 12.3 L ( We are almost out of fund to continue...)

Still around โ‚น 9.6 L can save a life...to continue her treatment
Someone can't help everyone but
Everyone can help someone.....

๐Ÿ”ด Donate & help:
๐ŸŽฏ For direct transfer: ๐Ÿ‘‡ -------------------------------

Arghya Pal : G Pay / Phone Pay / Paytm :
9851 428 795

๐ŸŽฏ Help via fundraiser ๐Ÿ‘‡
-------------------------------------
๐ŸŸข Milaap :
https://milaap.org/fundraisers/support-santana-pal

๐ŸŽฏ All in one Link: ( Medical Documents/Estimates / Total Fund Update) :
https://linktr.ee/santanafightscancer


Address

Aramagh

712601

Alerts

Be the first to know and let us send you an email when Santana Fights Rare Blood Cancer posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Practice

Send a message to Santana Fights Rare Blood Cancer:

  • Want your practice to be the top-listed Clinic?

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram