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Monday 10am - 6pm Tuesday 10am - 6pm Wednesday 10am - 6pm Thursday 10am - 6pm Friday 10am - 6pm

Centre for Health Education and Technology, IIACD

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Centre for Health Education and Technology, IIACD

We are a healthcare not-for-profit with a single-minded purpose of supporting rare and orphan diseases in India. Our mission - No Disease Orphan

18/06/2025

The numbering in SCA conditions, like SCA 12, indicates distinct diseases, each with unique genetic origins and symptoms. While all share ataxia, they differ significantly in how they manifest and progress. For example, SCA 12 is characterized by tremors, unlike other SCAs. Understanding these differences is crucial for accurate diagnosis and management.

16/06/2025

The late onset and slow progression of SCA 12 allow patients to lead normal, fulfilling lives until symptoms appear. With good food, regular habits, and exercise, the disease can be managed effectively. Early planning and gradually reducing responsibilities are essential. A positive mindset and openness about the condition help with acceptance for both patients and caregivers.

13/06/2025

For SCA12 patients, treatment options focus on symptom management. Medications like beta blockers can reduce tremors and improve quality of life. Some Parkinson's drugs may help with balance and dopamine deficiencies. Staying positive, motivated, and engaging in regular exercise, such as strength training and cycling, can also help delay degeneration. Weight management is crucial for better outcomes.

11/06/2025

The first signs of tremors in SCA12 should not be ignored. Early consultation with a neurologist is crucial. Caregivers should observe for voice tremors, walking difficulties, memory issues, and other dysfunctions. These symptoms need to be communicated to the doctor for better management.

09/06/2025

Clinicians should distinguish SCA-12 from conditions like Parkinson's and essential tremor. Look for action tremors, balance issues, and family history, especially in the Agarwal community, as key indicators.

07/06/2025

Spinocerebellar Ataxia Type 12 (SCA-12) can be mistaken for anxiety, essential tremor, and Parkinson’s disease. Essential tremor is often confused with SCA-12 in patients aged 60+. Parkinson’s is another condition that can be confused with SCA-12. However, SCA-12 patients sway on both sides, unlike the slow, stooped walk in Parkinson’s. Family history, especially in the Agarwal community, is a key indicator.

05/06/2025

SCA-12, or Spinocerebellar Ataxia type 12, is a rare neurological condition affecting the cerebellum. Symptoms include tremors, hand shaking, walking imbalance, and speech problems, usually starting in the 40s to 60s. This condition is notably rare and predominantly affects the Agarwal business family.

13/05/2025

Duchenne Muscular Dystrophy (DMD) is a serious genetic disorder. Carrier testing, genetic counseling & early prenatal diagnosis (as early as 10-12 weeks) can help prevent its transmission to future generations. Stay informed, stay empowered. 💙

08/05/2025

With proper care, children with Duchenne Muscular Dystrophy (DMD) can now live into their mid-20s and beyond. Let’s give them a happy, comfortable life filled with love, care, and good friends. 💙✨

06/05/2025

Caring for patients with Duchenne Muscular Dystrophy (DMD) requires more than compassion — it needs the right support tools. 💙

🛌 Assistive devices for easier transfers
🚽 Help with routine tasks like multiple toilet visits
💨 BIPAP machines for comfortable breathing, especially during sleep

Let’s raise awareness and make care easier for those who need it most. ✨

02/05/2025

Caring for children with Duchenne Muscular Dystrophy means regular heart checks, lung care, vaccinations, bone health, and nutrition support to help them stay stronger, longer.

28/04/2025

Our champions with Duchenne Muscular Dystrophy are winning hearts and trophies — from swimming pools to chessboards, from music halls to art galleries — proving that dreams have no limits!

Address

Sapthagiri 30, #SF1 239, 11th Cross & 15th Main Road Sadashivanagar
Bangalore
560080

Opening Hours

Monday	10am - 6pm
Tuesday	10am - 6pm
Wednesday	10am - 6pm
Thursday	10am - 6pm
Friday	10am - 6pm

Telephone

+918023602820

Website

http://www.chetindia.org/

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