Rare Diseases Conference 2025

Rare Diseases Conference 2025 Rare Diseases Conference 2025: Making Rare Care Possible

India Pharma 2023 - An International Conference on Pharmaceutical Industry is a joint initiative of the Department of Pharmaceuticals, Government of India, and Federation of Indian Chambers of Commerce & Industry (FICCI) to provide a common platform where all the participants will get an opportunity to enhance their brand value by displaying their product and the capabilities among the conference delegates and business visitors provided by the event. India Pharma 2023 covers the whole process of Pharmaceutical Manufacturing, from various kinds of manufacturing/processing machinery to Lab Equipment, Analytical Instruments, APIs, and other total solutions.

Honouring excellence in rare disease care: Laurus Labs, Biophore India, Akums Drugs, MSN Pharmaceuticals, and Apothecon ...
21/08/2025

Honouring excellence in rare disease care: Laurus Labs, Biophore India, Akums Drugs, MSN Pharmaceuticals, and Apothecon Pharmaceuticals recognized for their impactful contributions at the Rare Diseases Conference.

"Access, awareness, and affordability must converge to address the rare disease burden. With early diagnosis, sustained ...
21/08/2025

"Access, awareness, and affordability must converge to address the rare disease burden. With early diagnosis, sustained financing, and cross-sector partnerships—we move closer to equitable, lifelong care for every patient." - Session 3 | Rare Diseases Conference, FICCI

“Sustainable access to rare disease therapies requires more than innovation ,it needs long-term policy support, multi-st...
21/08/2025

“Sustainable access to rare disease therapies requires more than innovation ,it needs long-term policy support, multi-stakeholder partnerships, and patient-first financing models.” - Parameshwaran Sitaram, Head – Public Affairs, Sanofi India

“Early diagnosis and timely funding are critical—delays can lead to deterioration. In India, with most care being out-of...
21/08/2025

“Early diagnosis and timely funding are critical—delays can lead to deterioration. In India, with most care being out-of-pocket, we must reduce unnecessary hurdles and focus on supportive care as well.”- Dr. Neelu Desai, Professor, Hinduja Hospital Mumbai

“Education is the first step—treatment comes next. If primary physicians are equipped to identify rare diseases early, w...
21/08/2025

“Education is the first step—treatment comes next. If primary physicians are equipped to identify rare diseases early, we can significantly alter patient outcomes. Awareness efforts by both government and private sector are encouraging.” - Prof. Viswanath Pingali, IIM Ahmedabad

"Rare Diseases are 'rare' because they’re often overlooked. But no disease is too small. It’s time to prioritise researc...
21/08/2025

"Rare Diseases are 'rare' because they’re often overlooked. But no disease is too small. It’s time to prioritise research, orphan drugs, and inclusive treatment." - Dr. Y.K. Gupta, President, AIIMS Bhopal & Jammu

"Corporate contribution begins with awareness at the top. Cross-departmental understanding and targeted therapies are cr...
21/08/2025

"Corporate contribution begins with awareness at the top. Cross-departmental understanding and targeted therapies are crucial to support rare disease care." - Dr. Sandeep Sharma, Chief General Manager, Indian Oil

Ensuring patient compliance and medication access requires focused awareness efforts. National-level outreach and commun...
21/08/2025

Ensuring patient compliance and medication access requires focused awareness efforts. National-level outreach and communication are vital for long-term impact." - Shri Rajib Kumar Sen, Programme Director, NITI Aayog, GOI

"Strengthening Centres of Excellence with trust, transparency & tech, including AI & centralized registries, is key to t...
21/08/2025

"Strengthening Centres of Excellence with trust, transparency & tech, including AI & centralized registries, is key to transforming rare disease care nationwide." - Session 2 Closing, Rare Diseases Conference

"COEs face major referral challenges due to varied diagnostic and operational practices. AI can be a game-changer—and co...
21/08/2025

"COEs face major referral challenges due to varied diagnostic and operational practices. AI can be a game-changer—and countries are already developing tailored models to address these gaps." – Dr. Nishant Kumar Singh, Medical Lead – Rare Diseases, South Asia & India, Sanofi India

"Rare disease care has evolved from crowdfunding and CSR to industry-led collaboration. Innovation, sustainability, and ...
21/08/2025

"Rare disease care has evolved from crowdfunding and CSR to industry-led collaboration. Innovation, sustainability, and equity must go hand in hand—and partnerships are key to making that possible." – Mr. Neeraj Kumar, Head – Public Market, Takeda Biopharmaceuticals India

"Knowledge must lead the way. Rare diseases have long been neglected, but the hub-and-spoke model offers a practical way...
21/08/2025

"Knowledge must lead the way. Rare diseases have long been neglected, but the hub-and-spoke model offers a practical way forward. Centres of Excellence can’t do it alone—collaboration is key." – Dr. Ratna Dua Puri, Professor, IMGG, Sri Ganga Ram Hospital

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India Pharma 2019- An International Exhibition & Conference on Pharmaceutical Industry is a joint initiative of Department of Pharmaceuticals, Government of India and Federation of Indian Chambers of Commerce & Industry (FICCI) to provide a common platform where all the participants will get an opportunity to enhance their brand value by displaying their product and the capabilities among the conference delegates and business visitors provided by the event. India Pharma 2019 covers the whole process of Pharmaceutical Manufacturing, from various kind of manufacturing/processing machineries to Lab Equipment, Analytical Instruments, APIs and other total solutions. Event Overview India Pharma 2019 will cover all the sectors of the pharmaceutical industry starting from finished formulations, APIs, Bio-pharmaveuticals, Fine Chemicals and intermediates, Natural extracts, Excipients and many more. Display of Latest Pharmaceutical Machinery, Plants, Laboratory Equipment, Analytical Instrument and Cleanroom Equipments. Direct Access to Highly targeted Senior Pharma Executives, Buyers, Procurement Managers, Contract Manufacturers. Meetings with Manager and Business Development Managers who are looking for new supplies, Building Strategic partnerships or entering into new ventures.