Doting Beans

02/08/2023

This pic was clicked a few months back when I was just about to fly to another country after having a kidney transplant.

It was indeed a butterfly-in-my-stomach moment where I had mixed emotions - excitement, fear, anxiety, determination! Finally, I hugged myself and decided to believe in myself, prayed to God, remembered how my Mother gave me the strength and the flight took off.. ✈️

05/12/2022

What majority of the people do when they plan to travel -

1. What to see? (Excluding work related travels)
2. Hotel bookings or tour bookings
3. Wander for work or sightseeing (as applicable) and eat wherever and whenever possible

vs

When I plan to travel -
1. Aai making tasty faral and being with me at home every single time no matter what ❤
2. Me finding homestay - Airbnb to the rescue!
3. Is fresh, home-cooked available? Will the host provide it? checking.. checking.. more checking!
4. Looking for shops for bisleri bottle

Not to forget - medicines, mask, hygiene etc

When I finally make it - I get a feeling of victory for the day! ❤
Thanks to my aai, my employers and team 😇🙏 and thanks to my all airbnb hosts as well!

14/07/2021

Glad to be associated with Lyfebulb, USA as an Ambassador! ❤🌻



Lyfebulb aims to engage and advocate patients as well as focus on reducing the disease burden by supporting innovations in healthcare.
Looking forward to working together with the team for the betterment of kidney disease and transplant community.

Thanks very much Dr. Karin Hehenberger (Founder and CEO) and Ann Marie Giannino (Director of Communities) and Lyfebulb team for this wonderful opportunity. It was a great experience talking to both of you. 😇

04/07/2021

Time and dose of our life-saving medicines are very crucial routine of post-transplant life.
Although I am confident most of the times, I get confused at times and keep getting verified from my mother. 🙈
While many of us follow number of tricks to train ourselves, I am going to try this box-method now. (Earlier I had individual tiny-boxes)
1. Phone reminders are really helpful (also showing dose of the medicine)
2. Maintaining a daily record book helps
3. I neither call nor answer anyone's call 10-15 minutes prior to the medication time
4. And this method of filling medicines every night in the assigned spaces.
5. Most important, someone in our family who can remind us ( in my case, my mother ❤)

I would like to know what tips and tricks do you follow.
P.S. : Please ignore my craft skills 😅

23/06/2021

Thanks a lot for this token of appreciation! ☺️🌻




#❤

20/06/2021

Happy Father's Day Baba!! 💐🙏🎉
This year's gift from YOU is VERY PRECIOUS - KIDNEY! ❤😇
Best wishes and love. Stay blessed and take care. 😊🙏

#❤

12/06/2021

Woah! It's the 1st Anniversary of Doting Beans! ❤🥳 It's been a wonderful year since I started off with this blog and support platform. I still remember the day when I decided to start with this and was planning how to go about it. My mother, my source of inspiration and encouragement, was the first to whom I read my blogs. And this will always be the same! Her instant reaction is something I look forward to. 🥰

Doting Beans wouldn't have been possible without love, care, motivation and support of each one of you. I saw this as a dream but your immense support carved it into something beyond my imagination! 💝🙏

I am very thankful to Prasanna Shirol Sir (Founder, ORDI) who motivated me to start a blog and share my journey with the kidney disease. Thanks so much to my mentors who gave me valuable and timely inputs. Thanks a ton to Prachi for designing a super awesome logo and posters! 😍 Thank you Omkar for helping with the website development. 🥰 Thank you so much Varad for developing mobile app of Doting Beans! 🤗 I am deeply grateful to my friends who wrote guest blogs - Aditya, Anomitra, Devashree and Janhavi. You all took this on an another level together. Thank you very much! 🤗❤🙏
Thank you everyone for sincerely and genuinely following all the blogs and giving me feedbacks, comments, wishes, virtual hugs and kisses, love, care and support! 💝😘
With Doting Beans, I got an opportunity to connect to many kind souls across the globe who were going through the similar situation and that indeed helped me to have a great support system around. 😇
Coincidentally I had a kidney transplant within last year that I had never thought would approach all of a sudden. But this initiative and your love gave me enough strength and positivity to face and recover from it. ❤🤗

Last but not the least I am extremely grateful to my wonderful family- parents, all the relatives and the Almighty due to whom I am here today. ❤🙏😇

Kindly excuse me if I have missed anyone inadvertently in the flow of emotions. 😊
Once again, thanks a ton and lots of love! 💖

Starting with the further chapters and informative blogs very soon. Sorry for bearing with me. Stay tuned. 😊

31/05/2021

Completed 5 km of walk as a part of event organized by World Transplant Games Federation World Transplant Games 5K AnyWay and supported by ORGAN India ! 😇
I did 4 km of indoor walking and finished remaining 1 km while walking to the hospital for post-transplant checkup.

Cheers to and thanks a ton to Organ India and World Transplant Games Federation for the organization and support! ❤

With this, I hope we create more awareness about organ donation.

21/05/2021

Glad to participate in World Transplant Games 5K AnyWay 2021 (virtual event)! 🥰
Thanks a lot to team ORGAN India for financial assistance and support! 😇😊🙏

28/04/2021

In conversation with Dee Moore on her amazing Diary of a Kidney Warrior podcast!
Thanks a lot Dee for being a wonderful host and this opportunity.
I have shared my bumpy ride of living with chronic kidney disease and facing failure , myths about kidney disease, as well as thoughts on kidney disease, rare disease and mental health through this podcast episode. Do listen and let me know your thoughts. Thank you. 🤗❤

https://open.spotify.com/episode/4ezWfZJ2rR5M1kGI8sSQNM?si=F5Y52ahBRJKc8HM5rTmmNg&utm_source=copy-lin

06/04/2021

Hello everyone!
Recently, I got a wonderful opportunity to connect and talk to Kyle and Sean, who are inspiring, kind and energetic rare disease warriors from USA, on their Two Disabled Dudes Podcast.
It was indeed a great and enriching experience to talk to them, share my journey with a rare kidney disease and work related to rare and kidney disease advocacy.
Do listen to my first podcast interview on the Two Disabled Dudes podcast channel!
Thanks a lot to Kyle and Sean for being super lovely hosts and thanks so much to all of you for being a great support system always! 😇🥰❤️🤩

Catch our conversation on episode 142 of the podcast. 💝

Here are the links.

Two disabled dudes website- https://twodisableddudes.com/142-a-dedicated-advocate-in-india/

Spotify link: https://open.spotify.com/episode/5QZxcm2EFMWqAw5JyFzo7k?si=v_1SFjxVTnC6rim4mXDI5w&utm_source=copy-link

Google podcast link: https://podcasts.google.com/feed/aHR0cHM6Ly90d29kaXNhYmxlZGR1ZGVzLmNvbS9mZWVkL3BvZGNhc3Qv/episode/aHR0cHM6Ly90d29kaXNhYmxlZGR1ZGVzLmNvbS8_cD0yMjA5?ep=14

You may also listen to it on Spotify and Google podcast apps. Just search for 'Two Disabled Dudes' podcast channel and check for episode 142.
Thank you 🥰

How do we build an effective Global Rare Disease community? It all starts with sharing stories and ideas. Join the dudes as they hear Manish Gore’s story about Alport Syndrome, and discuss the differences between the US and India and the Rare Disease World. Manish’s Resources: Manish’s Blog, D...

02/04/2021

Thanks a lot team for an enriching experience! Looking forward to many more opportunities of working together. 😇❤
This is just the beginning...

Thanks so much to all of you for supporting me in this journey! I hope and wish to receive your support in future too. 🤗❤