Hemophilia Awareness

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Hemophilia Awareness

This page is dedicated for hemophilia awareness. Here we try to bring together all fellow hemophiliacs to share their experiences and spread awareness.

http://en.wikipedia.org/wiki/Haemophilia

Hemophilia (from the Greek haima meaning blood and philia meaning friend) is an inherited medical condition where the blood does not clot properly. Essentially, hemophiliacs - people with hemophilia - lack a protein called a clotting factor that works with platelets to stop bleeding at the site of an injury. People with hemophilia tend to bleed for longer periods of time after an injury and they are more susceptible to internal bleeding
There are two major types of hemophilia, labeled type A and type B. Hemophilia A is characterized by a lack of clotting factor VIII (8) and accounts for about 90% of hemophilia cases. Seventy percent of hemophilia A cases are severe. Hemophilia B is characterized by a lack of clotting factor IX (9). As very rare disorders, hemophilia A occurs about once in every 10,000 births and hemophilia B occurs once in every 50,000 births.

02/06/2025

04/09/2024

आई ड्रीम टू ट्रस्ट के एक प्रतिनिधि मंडल (राजन चौधरी जी, पुनीत सिंह जी, शोभित चेयरमैन जी) ने आदरणीय अतुल प्रधान जी ( Atul Pradhan ) (विधायक सरधना) से मुलाकात की और #हीमोफीलिया के मरीजों की चिकित्सा सुविधाओं में सुधार के लिए एक ज्ञापन सौंपा। हमारे क्षेत्र में इस गंभीर समस्या के कारण आर्यन यादव जैसे मासूमों की जान जा रही है, जो समय पर सही उपचार न मिलने के कारण अपने जीवन से हाथ धो बैठते हैं।
्रीम_टू_ट्रस्ट के माध्यम से हमने इस मुद्दे को प्रमुखता से उठाया है और हीमोफीलिया से जुड़ी कुछ मांगे रखी, उम्मीद करते हैं कि जल्द ही आवश्यक कदम उठाए जाएंगे ताकि भविष्य में ऐसी दुःखद घटनाओं से बचा जा सके।

#फैक्टर8

01/09/2024

Hemophilia patients in India are currently facing severe challenges due to a critical shortage of life-saving injections. The lack of timely access to these essential treatments has put their lives at significant risk, with some tragically losing their lives in the past few months due to the unavailability of necessary medical interventions. This dire situation underscores the urgent need for government intervention and support from private NGOs to ensure that those with hemophilia receive the care and treatment they desperately need. Without immediate action, the lives of many more patients will continue to hang in the balance.

13/08/2024

“Meet Mr. Rajan Chaudhary our founder, a true hero who has dedicated his life to helping others despite his own challenges. 🌟
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