Hirschsprung's Disease Uae

16/09/2025

18/03/2020

These are very trying days, we are holding up our breath, connecting more within the family, making sure the kids are attending their online classes, and we eat healthy, move a bit and play a lot. Mum and dad are talking about world's big event at night and keep smiling during the day.
I would like to welcome all the new families that recently joined the page, which intent is to support in case of Hirschsprung in the family and let you all know that I am available to each of you in case you have questions!

14/03/2020

Dr. Alessio Pini Prato from Pediatric Hospital in Alessandria addresses the concerns from the Hirschsprung's mum in the video. Very interesting to listen to! Please share!

29/02/2020

A.Mor.Hi - Proseguimento di Amici di Francesco

07/11/2019

07/11/2019

31/07/2019

During summer when the temperatures are higher are your kids taking minerals or supplement?

15/04/2019

Thank you for who is passing by the group and staying with us, thank you to the new members. To the others who are visiting, if you are interested in the Hirschsprung Disease or affected by it, STAY with us, help us to grow the community, we are here to share experiences.

24/01/2019

1 day ago Seven Bridges from Kentucky took his own life because he was bullied at school. Seven was only 10 years old and he was bullied over his colostomy bag.
I cannot agree more with the fact that having a colostomy bag or an ostomy bag is hard, but in most cases is a life or death matter. More people should know what our warriors are going through, the difficult lives that many of us have to deal everyday with and parents should be always supported. Our thoughts and prayers are with the family.

24/10/2018

24/10/2018

Talking about skin rush and skin burnt these are some of the creams that actually saved our life right after surgery. And we still use some for daily routine. The Himalaya talc is natural and can be found in supermarkets and pharmacies, the green one is the italian version, the best is when it has no fragrance and no alchool. Same with Vaseline, Herbolene is the most natural version of Vaseline. Ilex is a cream that did wonders for us, it creates a layer between the skin and the nappy/panty so it does allow the skin to grow back and be less sensitive and stay clean. Conveen Protact is a special cream based on zinc oxide which is wonderful when applied on skin rush, it does relief the skin and protect. This is my experience, what is yours?