CAH Support group

21/02/2026

🌍 FIRST AFRICAN CAH–DSD SYMPOSIUM
African CAH–DSD Research Network

📍 Nairobi, Kenya
📅 23–24 April 2026

Join leading African and international experts for a groundbreaking symposium focused on Congenital Adrenal Hyperplasia (CAH) and Differences of S*x Development (DSD).

✨ What to expect:
🔹 Expert-led lectures
🔹 Case-based discussions
🔹 Psychosocial & ethical perspectives
🔹 Clinical and surgical management updates
🔹 Community education strategies
🔹 Multidisciplinary care models
🔹 Research collaboration opportunities
🔹 Poster presentations & awards

👩🏽‍⚕️👨🏽‍⚕️ For:
Paediatricians | Surgeons | Endocrinologists | Residents | Nurses | Allied Health Professionals | Researchers | Counselors | Policy Advocates

🎯 Theme Focus:
Strengthening diagnosis, management, community awareness, and multidisciplinary care for CAH & DSD in Africa.

📝 Registration now open:
👉 FIRST AFRICAN CAH–DSD SYMPOSIUM REGISTRATION – Paediatric Endocrine Society of Kenya
🔗 https://paedendoskenya.org/product/first-african-cah-dsd-symposium-registration/

⏳ Early Bird Registration ends: 28th February

📢 Abstract submissions now open!
🎓 Poster awards available

Let’s build knowledge, strengthen systems, and transform care for CAH & DSD across Africa.
Together. Connected. Collaborative. 🌍💚

20/02/2026

Misinformation and social stigma are often as challenging as the medical conditions themselves for those living with .

The stories we tell and the myths we debunk can change lives.

Join us for an insightful webinar as we explore how these factors impact our and how we can foster a more environment.

Topic: How and affect people living with : The stories we tell

🗓️: Wednesday, 25th February 2026
🕑: 2:00 pm – 4:00 pm EAT
🔗 How to Join: Scan the QR code in the image to register! or click the link below

https://lnkd.in/dprdMaWE

Moderator: Dr. Eva Aluvaala (Senior Research Scientist, Kenya Medical Research Institute (KEMRI))
Speakers: Ms. Christine Mutena (Co-Founder, Rare Disorders Kenya) & Dr. Catherine Mutinda (Consultant Paediatrician and Geneticist)

Rare Disease Day RARE DISEASES INTERNATIONAL African Society of Human Genetics Kenya Medical Research Institute (KEMRI) KEMRI - Wellcome Trust

20/02/2026

11/02/2026

This virtual side event was hosted on the sides of the 64th Session of the United Nations Commission for Social Development ( ) on 5 February 2026.

Hosted by CLAN (Caring & Living As Neighbours), (Maximising Access To Essential Supplies for Children) and Lehigh University, this event brought together a broad range of childhood NCD community champions (including Type 1 Diabetes, Sickle Cell Disease, Asthma, Congenital Adrenal Hyperplasia and Epilepsy) and allies to reflect on current progress to achieve the bold 80% x 2030 Target set by Member States in the Political Declaration emerging from the 4th UNHLM on NCDs and Mental Health.

This virtual side event was hosted on the sides of the 64th Session of the United Nations Commission for Social Development ( ) on 5 February 2026.Hos...

10/02/2026

🔄 ,Join us for this year’s World Kidney Day celebrations on Thursday, 12th March, 2026 at Kenyatta National Hospital . We welcome you all for FREE Screening 💯

21/12/2025

Hello MAGIC Family,we wish you all a Magical Christmas and a very prosperous year.

21/12/2025

I had the pleasure of meeting Dr.Paul Laigong (Kenya) Pediatric Endocrinologist and Lecturer at the University of Nairobi, who also serves at KNH, Nairobi Hospital, and Mater Hospital South B.

Dr. Laigong’s commitment to clinical excellence, medical education, and advocacy for early detection of endocrine disorders continues to strengthen neonatal and paediatric endocrine care in Kenya, while mentoring the next generation of healthcare professionals.

We officially handed over the newly translated Kiswahili CAH (Congenital Adrenal Hyperplasia) flyer, translated by Magic Foundation Africa, with tremendous support from the PESK (Paediatric Endocrine Society of Kenya) team — with special thanks to Dr. Prisca Amolo for her invaluable guidance and contribution.

10/12/2025

We are deeply grateful to Dr .Esther Kobel — paediatrician and Co-Founder at CLAN Child Health Africa — for traveling all the way from Uganda to attend our first meeting. Her commitment, time, and expertise in childhood non‑communicable diseases (including conditions like CAH) make her support invaluable.

Dr .Kobel brings years of experience caring for children living with chronic health conditions, and through CLAN she advocates tirelessly for early diagnosis, family support, and community education for NCDs. Her presence at our meeting strengthened our unity and resolve — we truly appreciate your time, dedication and the hope you bring to children and families.

10/12/2025

MAGIC Africa also had the privilege of handing over the translated CAH flyers to the Paediatric Endocrine Society of Kenya (PESK) team at Kenyatta National Hospital.
I arrived at 8:00 AM, and the clinic was already full—doctors moving quickly from one patient to the next, families waiting, and the entire space busy with care. Despite the heavy morning workload, the team still gave us a moment of their time, and I am truly grateful.

Dr. Prisca Amolo, a Paediatric Endocrinologist at Kenyatta National Hospital, worked closely with us in translating both the CAH flyer and the CAH Book for Girls from English to Kiswahili—ensuring families can understand their condition in a language that feels natural and accessible.
Dr. Anjum Omar, a respected Paediatric Endocrinologist and paediatrician, continues to champion early diagnosis and specialised care for children with hormonal disorders.
We also met Catherine Nailaen, a dedicated nurse and diabetes educator who provides practical, compassionate support to families navigating chronic conditions.

Families can find these amazing professionals at Kenyatta National Hospital, Children’s Area:
• Room 23 – Endocrine patients
• Room 22 – General paediatric patients

Paediatric endocrinologists play a crucial role in newborn and neonatal care. They guide early diagnosis of hormonal disorders, support families through treatment decisions, provide emergency plans for conditions like CAH, and ensure newborns receive the best start in life through timely, specialised care.

09/12/2025

📢 Upcoming Webinar!
Join the Community of Practice meeting on Thursday, 11 Dec 2025.
MAGIC Africa will be presenting during the Scaling Newborn Screening session.
⏰ East Africa Time: 12:00 PM – 2:00 PM
Don’t miss it!
https://us06web.zoom.us/j/81758203704?pwd=h1JjxkphFaOQiDqQkE5qbg1izra86q.1

09/12/2025

Today, MAGIC Africa handed over the newly translated CAH (Congenital Adrenal Hyperplasia) educational flyers—available in both English and Kiswahili—to support the work of Hilda Muiruri at the Mental Health Department of Kenyatta National Hospital.
These materials will help patients and families better understand their condition in a language that is accessible and familiar.

Hilda Muiruri is a dedicated healthcare professional whose career spans both nursing and psychology. Now serving as a psychologist in the Mental Health Department, she provides compassionate emotional and psychosocial support to patients and families facing chronic medical conditions.

Her work is especially impactful for children and adolescents who are transitioning into adulthood and struggling to understand the physical, emotional, and social changes brought on by their conditions. She creates a safe environment where young people and their caregivers can explore their fears, build coping skills, and strengthen their resilience.

With her strong foundation in nursing and her expertise in psychology, Hilda bridges medical care with mental and emotional well-being—ensuring that every patient receives holistic support that addresses both their health and their heart.

30/11/2025

💙✨ WE DID IT! THANK YOU, CAH COMMUNITY! ✨💙

What an incredible and empowering Parents–Doctors Engagement Meeting we had today! The room was filled with knowledge, compassion, and true community spirit.
Whether you joined us physically in Nairobi or virtually from around the world, your presence made this event a success. 🌍💙

A heartfelt THANK YOU to our amazing speakers and partners:

👨‍⚕️ Dr. Renson Mukwana – for breaking down CAH management with clarity and hope.
🧠 Hilda Muiruri – for guiding us through the emotional & psychological journey with warmth.
🌍 Dr.Kate Armstrong – for bringing global collaboration and inspiration to the room.
💪🏽 Dr.Heriet Mhondiwa – for sharing powerful lessons in parent-led advocacy from Zimbabwe.
🩺 Dr. Phoebe Amolo – for your continued dedication to CAH care.
👩‍⚕️ Dr. Esther Kobel – for strengthening regional CAH advocacy and family-centered care across Africa.

A big thank you to every parent, caregiver, young adult, and advocate who attended.
Your questions, openness, and support made the day truly meaningful.

🌟 We also celebrated a major milestone — the launch of the new CAH flyer in both English and Kiswahili, making CAH education more accessible to families across the region. 📘📙

💙 Together, we are building a stronger, more informed, and more connected CAH community in Africa and beyond.