Heart to heart smile organisation

01/04/2026

It's been years of pain, struggle and frustrations for Caregivers and Parents of Children With Disabilities.
It's been years of no engagement nor inclusion of caregivers and parents of children with diverse conditions in decision making.
It's been years of no legislation frameworks to guide nor to implement issues affecting caregivers and parents of children with diverse conditions.
I myself I have faced and am still facing challenges, exclusion and no representation of my voice to the voiceless. I have personally pushed and faced ridicule but I have never tired up, i have raised my voice loudly to create awareness to the community...
I believe and know I have an identity, identity of standing strong, identity of being a champion, a champion for the disabled I have never judged nor excluded, my passion has been inclusive to all women, men, children, youths, girls, boys,the elderly and even the adolescents with disabilities
Last year 2025;our president Hon William Samoei Ruto signed a National Disability Act of 2025 that is in cognisant of Caregivers and Parents of Children With Disabilities, a legal framework that addresses issues of Caregivers and Parents of Children With diverse conditions.
No more exclusion
No more ridicule
No more stigmatization
No more being judgmental
No more burnout
But
More inclusion
More engagement
More data for planning and ex*****on
More prevention measures and awareness
Adiquate representation

Mark this date 16 of May ,at KISE we need more caregivers and parents of children with disabilities to join in this conversation,we are looking for friends and well-wishers to support caregivers and parents of children with disabilities to join this mega walk that will be one in a history,the time is now ,if not now then never lets come out in large numbers......

Heart To Heart Smile
Jonathan Metet
Heart to Heart Smile Organization.
Heart to heart smile organisation
Ibrahim Adan Ibrahim
Angel Kamande

19/03/2026

https://www.pressenza.com/2026/03/defending-the-rights-of-people-with-disabilities-and-caregivers-a-humanist-mission/

Beast/B2ST Colombia
Green Climate Fund
Heart To Heart Smile
Heart to Heart Smile Organization.
Heart to heart smile organisation
Highlights for Children

Lavina Oduor is a Kenyan humanist social activist, co-founder, and current Director of Heart to Heart Smile, a volunteer-led organization whose mission is

18/03/2026

https://eastleighvoice.co.ke/national/312867/giving-to-gain-how-women-human-rights-defenders-are-transforming-lives-in-communities


100M Followers
Beast/B2ST Colombia
Highlights for Children
Tinada Youth Action Africa
Lavina Melamie

One such is Kuresha Bille from Isiolo County, who began her human rights journey in 2016 after witnessing the devastating impact of land conflicts, which often...

08/03/2026

Message From our National General Secretary
To all men and fathers, please stand strong with mothers taking care of all children with diverse conditions, he is a true supporter of fathers by being present and advocating for the rights of children with disabilities.
Let all caregivers and parents of children with Disabilities speak out , speak up for intervention to happen...

Jonathan Metet
Ibrahim Adan Ibrahim
Heart To Heart Smile
Heart to Heart Smile Organization.
Heart to heart smile organisation

08/03/2026

I celebrate all women warriors, women who stand strong to be present in the lives of their children with diverse conditions, women who beat the odds of choosing their children first.
May God see you through the entire period.
Yours
Kisumu County Coordinator,
Network of Caregivers and Parents
Of Children With Disabilities
Ms Lavina Achieng Oduor
Chairperson Heart To Heart Smile
Beast/B2ST Colombia

08/03/2026

I celebrate all women warriors, women who stand strong to be present in the lives of their children with diverse conditions, women who beat the odds of choosing their children first.
May God see you through the entire period.
Yours
Kisumu County Coordinator,
Network of Caregivers and Parents
Of Children With Disabilities
Ms Lavina Achieng Oduor
Chairperson Heart To Heart Smile
Highlights for Children

27/02/2026

“My Brother’s 25-Year Battle with Schizophrenia Drove Me to Start a Care Organization.”

Lavina Oduor is a co-founder of Heart to Heart Smile Organisation, which focuses on preventing disabilities, fighting for the rights of caregivers, and creating a more inclusive Kenya. In this exclusive interview, she reveals to ROLEX OMONDI insights into her journey. Q: Lavina, thank you for the op...

18/02/2026

📢 PRESS RELEASE
NATIONAL COALITION OF PARENTS OF CHILDREN WITH DISABILITIES – KENYA (NCP-CDK)
Kenya, we speak today not as individuals, but as millions of parents whose lives have been reshaped by disability care.
Behind every child with a disability in this country is a parent who has sacrificed employment, income, health, and dignity to provide lifelong care. Many caregivers are forced out of work. Many live in poverty. Many suffer in silence.
We want to be clear:
👉 We do not want KSh 2,000 survival tokens
👉 We demand KSh 10,000 monthly caregiver support for unemployed parents
👉 We demand tax exemption for employed parents of children with disabilities
This is not charity.
This is justice.
This is social protection.
This is recognition of unpaid national care work done by parents every day in Kenya.
Parents of children with disabilities are voters.
We are citizens.
We are families.
We are Kenya.
No nation can claim inclusion while caregivers remain trapped in poverty.
We therefore call upon:
🇰🇪 Government of Kenya
🇰🇪 Ministry of Labour & Social Protection
🇰🇪 National Treasury
🇰🇪 Parliament of Kenya
🇰🇪 All leaders and policymakers
to urgently adopt policies that guarantee economic dignity for caregivers and protection for families of children with disabilities.
Our message is simple and unwavering:
Nothing for Our Children Without Parents at the Table.
✊🏾 We will speak.
✊🏾 We will organize.
✊🏾 We will be heard.
Eng. Ibrahim Adan Ibrahim
General Secretary (GS)
National Coalition of Parents of Children with Disabilities – Kenya (NCP-CDK)






To Ministry of Labour and Social Protection
Cc
William Samoei Ruto Hon. David Ole Sankok The Global GeoPolitician State House Kenya Sakaja Johnson H.E. Rigathi Gachagua, EGH Kithure Kindiki Aden Duale Dr. Alfred Mutua Hon. Veska Kangogo Larry Madowo Edwin W. Sifuna Hon. Adan Keynan Wehliye Jonathan Metet Angel Kamande Hussein Mohamed The National Treasury and Economic Planning Citizen TV Kenya SIGNS TV National Council for Persons with Disabilities

01/02/2026

HEART TO HEART SMILE ORGANISATION IS DOING A RE- BRANDING, SIT BACK RELAX AND WAIT.

01/02/2026

To: National Treasury, Kenya
Assalamu Alaikum / Good afternoon,
I, Eng. Ibrahim Adan Ibrahim, General Secretary of the National Coalition of Parents of Children with Disabilities – Kenya (NCP-CDK), write on behalf of millions of parents across Kenya whose children with disabilities face daily struggles.
Parents sacrifice jobs, income, and health to care for children with autism, cerebral palsy, and other disabilities. Many children are denied education, therapy, and even basic care, while their families face overwhelming financial burdens.
As GS of NCP-CDK, I respectfully and urgently request that the National Treasury allocate 5% of the national budget specifically to support parents of children with disabilities. This allocation should ensure:
Inclusive education with special units in every government school
Trained teachers, therapists, and support staff
Learning materials, assistive devices, medicine, and essential daily care
Support for families so that no parent is left to struggle alone
Every delay denies children their rights and burdens parents unnecessarily. This is a matter of justice, dignity, and hope for millions of Kenyan families. We urge the Treasury to plan a compassionate and impactful budget, reflecting the true needs of children with disabilities and their families.
With determination and hope,
Eng. Ibrahim Adan Ibrahim
General Secretary – NCP-CDK

29/01/2026

A message from our general secretary

Heart to Heart Smile Organization.
Heart to heart smile organisation

08/12/2025