Amelia's Army of Angels

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Amelia's Army of Angels

Amelia is a sweet 1st grader who loves school & playing with her friends. She puts a smile on the face of everyone she meets.

Amelia was diagnosed with acute myeloid leukemia and needs a marrow transplant to reverse her disease.

16/08/2022

Amelia thinks SCHOOL IS COOL!
Back in the swing of things & enjoying an after school treat of whipped cream.

It’s the simple daily things we take for granted, when given a second chance, that fill our hearts with overwhelming gratitude.

ONE YEAR AGO- Amelia received her stem cell transplant from a generous German donor on 8/17/21, so what's next?…

MONDAY 8/22/22 - she will have an all day hospital appointment to complete a full review and stem cell test.

There have been hiccups along the way, but it’s a really big WIN for her to make it 1 year without going back to the hospital!

Moving forward this is our hope & prayer for Amelia:
1. medication continues to provide relief from her graft vs host disease (GVH)
2. positive test results are provided at the Monday appointment
3. stem cell test remains at 100% donor
4. She continues everyday life activities in her Amazing Amelia way ❤️

12/07/2022

AMELIA’s SUMMER UPDATE:

Amelia continues to have monthly lab reports that show her blood counts are doing very well overall. However, during the spring Amelia was not feeling well, Drs discovered that her body was battling Graft VS Host disease (GVH). She has completed two rounds of steroids & begun tapering off of the drugs. Ultimately we pray GVH subsides and does not return. Doctors will look to a maintenance drug if it remains after this last treatment.

August 17, 2022 will be her 1 year transplant birthday! It’s hard to believe we’re almost there! Our goal is the Post Transplant appointment will reveal her stem cells remain at 100% ❤️

MAKE A WISH:

The Make a Wish foundation granted Amelia a family trip to Disney! Wondering what the Dammen Crew did during the trip????

1. We boarded the plane before anyone else, sat in the cockpit, and received a welcoming round of applause before take off
2. Stayed at Give Kids the World resort which included ice cream shop from 8am - 10pm, party nights-halloween, Christmas, games galore, spa for nails and tattoo, toy fair stopped by everyday we left the grounds, and a BUNCH of friendly volunteers that we still talk about to this day!
3. First stop Gatorland-big gators, big gift shop, big lovies
4. Fast passed to the front of every line at the theme Parks (magic kingdom, sea world, Hollywood & universal studios) and ate lots of Mickey Mouse ear ice cream!

It was a FANtastic time and we are beyond grateful to have went with the Make a Wish foundation. It was very special ❤️.

There are so many generous and kind people in this world and we are so grateful to be receipents of their love. Thank you all!

20/05/2022

Thank you to the Leukemia & Lymphoma Society for honoring Amelia with the Spirit of Tom Landry Award at the LLS Luncheon and Fashion Show on Monday. Congratulations on raising over $550,000 to assist in beating cancer through research and improving the quality of life for patients and their families.

12/05/2022

WOW! what a year!
Today Amelia and Andrew (along with mom and dad) visited Jesuit preparatory school as part of the “Be The Match” donor drive.

Right over a year ago Amelia was diagnosed with AML + 2 mutations. Tom Garrison, principal of Jesuit Prep in Dallas (he himself a stem cell donor) reached out to assist in any way possible. Amelia’s case was presented to 2021 seniors during their annual donor drive & Mr Garrison connected the family with “Be the Match” registry. The family hosted a successful drive at St Thomas Aquinas.

Amelia went through chemo and ultimately a stem cell transplant. A year later, here we are. The family was honored today to walk on campus, Amelia as stem cell recipient, to discuss the life saving impact of being a donor. Mom, Celeste, spoke to the class of 2022 seniors of their journey. Not a dry eye.

Thank you to Jesuit and Tom Garrison for being leaders by example. You live what you preach and for that the Dammens will be forever grateful.

22/04/2022

Well Army, we’ve received some pretty amazing news about our Amelia today…not that her nickname “Amazing Amelia” would ever imply otherwise!

She’s reached 100% donor stem cells!

Right over 1 year ago, Amelia was admitted to Childrens Hospital with AML. A long haul, but this has been the goal. What a blessing ❤️ God is good.

Thank you for your continued prayers and support as the family navigates through the ongoing healing process.

That’s our 100% German Gal! (Don’t forget her donor is German) 😊

25/02/2022

Have you even seen a miracle….
Amelia has received a MAJOR MIRACLE!

Amelia's stem cell test came back at 99% male donor cells. This is off the charts great news!!

Thanks be to God🙌 🙏

Thank you everyone for your strength and prayers during this journey.

27/01/2022

Life is about to change for the mighty mighty Dammen's. Amelia celebrated another successful series of test results and the Drs have requested she return to school! This exciting news was celebrated with giggling, shopping for uniforms, and drinking a Shirley Temple--aka, kiddie cocktail

POW-Dammen twin power activate:
-STA school
-January 31st
-7:30am

Prayer request: Yesterday, the Drs completed a stem cell test, we will be notified within 7-12 days about the results. We know Amelia's Army of Angels have been marching long, hard, and your feet probably ache by now, but we are asking that you continue to pray that her stem cell count rises from 96.5 to 100%. Her donor cells need to continue to takeover.

The power of prayer is real, God has just given us more time to keep the faith!

13/01/2022

Happy New Year Everyone!
We hope everyone had a great holiday- the Dammens sure did!

We have updated news on Amazing Amelia, from her Jan. 10th appointment:

1. test results were solid
2. medications have been reduced
3. NG tube is gone--NO LONGER REQUIRED
4. ability to shower and wash her hair
5. positive attitude never stops
6. prepare for the 1/24 Dr. appointment to be approved for attending school 1/31

So much to be thankful for ❤️
Thank you for your continued support!

06/12/2021

100 day update:
Amelai continues to progress! Her 100 day result came back at 96.5% donor cells. The goal is 98% to 100%.

A medication adjustment has been made (if you’ve been following you know by now this is a process!). The doctors said it could take 6 months to a year, but are hopeful she will hit the 98% to 100% donor cells milestone sooner than that.

Amelia is maintaining a great attitude. Andrew is keeping busy with school and sports. Life is as “normal” as it can be at this stage. 😊

Amelia’s home school is going well, she enjoys bike rides, and today she did some basketball drills (and got some shots up!). Her hair is coming in and her body is strong.

Thank you for the continued support on our journey!

The Dammen Family

30/11/2021

Amelia update!!... When the news is just this good you must shout it from the mountain top—praise the Lord he hears every single one of our prayers!!!

You are probably wondering what Amazing Amelia is doing these days:
�1. Typical Monday is spent at Childrens hospital getting labs, medicine, and results--which all have been heading in the right direction
�2. Extraordinary Monday was today;� a. all her lab work looks fantastic!� b. her immune system is getting stronger � c. hospital visits will be every other Monday � d. she is allowed 2 masked play dates/ week at the house� e. A live Christmas tree has been approved for inside the house (deck the halls/tree for that)� f. approved to eat Scalini's, Thai, and a bold move - Cane's chicken! � g. BIG news, she will be attending a couple hours during Polar Express Day at her school STA!!!❤️❤️❤️
�3. The stem cell test was completed today and results should be provided Friday or Monday. Last test was 95% and she needs to be 98-100%.
�4. Riding her bike-with the wind blowing her new hair, eyebrows, and eyelashes around!
�5. Completing school work daily and meeting with her teacher weekly

6. Hoarding gummy bears!��This first week of Advent, send the prayers up and watch the blessings fall down upon us all ❤️

20/10/2021

MARCH ON PRAYER WARRIORS!

A few weeks back Amelia's stem cell/chromosome test revealed she was 93% donor, which was great news….However, the Drs want to see her at 98-100%.

Another test has been completed and results should be in by Monday.

Of course there is always fun to be had while we wait!

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