¿Qué es el sitio web?

https://www.facebook.com/102935555803683/

Kathy Hart Recovery Updates, Cabo San Lucas (2025)

02/06/2025

Hey everyone! It has been a few weeks but much has been going on. After Kathy had her shunt finally reset to its best setting and having her off amitriptyline I could see some of her issues more clearly and I have also had a few years to learn. I noticed a pattern in her reactions to medicine, her major constant issues in her recovery all stared pointing to a lack of acetylcholine at the muscular junction and obvious dysautonomia where stimulant drugs, especially ones that raise norepinephrine cause her to have large swing in her autonomic tone. This causes vascular issues, BP swings, chronic fatigue, peripheral neuropathy and cold extremities. The Amitriptyline masked these issues to a degree, but also cause weight gain, sedation, cognitive issues and increased memory loss so we discontinued this drug.

My research lead me to mestinon as it could treat the root of the issue regardless of which of the several causes could be (Autoimmune, Neuropathic or secondary POTS, TBI caused dysautonomia effecting the same parts of the brain that controls this process). In a matter of 5 days we have weaned her off Vyvanse and Bupropion and she is functioning better on Mestinon alone. I also added Low Dose Naltrexone, which is anti-inflammatory and works well for many dysautonomia patients.

Now that we see such positive results it means I need to find a specialist to help fine tune this diagnosis and aid in treatment options that may further help this secondary condition. In the mean time it should help Kathy improve over the next 3-4 months or more. She should regain muscle strength in her throat, lungs, hands, legs and trunk. She should have less fatigue, especially when standing and walking. Her memory is already showing some early improvements as well.

We knew something was stopping her from making the progress we thought she can make and now both the shunt and her treatments have been adjusted more accurately for Kathy to make more consistent recovery.

Medical help has been almost useless for treating Kathy. As her husband I am afraid of each of these decisions I make to help her recover and I study them for months or now years to decide, but I am even more afraid to NOT try them. It’s also my job to act on Kathys behalf and she would take almost any chance to regain her best self. That’s always been Kathy.

She is still not walking as well as January, but I think that’s coming soon. Otherwise she is better in almost every other way. We have a long way to go, but feel we can make more steady progress now with these changes and the deeper understanding of her body. We should get a better look at what this may do over the next 2-3 weeks as she withdrawals from Bupropion and the new meds begin to stabilize her ANS and her muscles can start improving.

On the hone front we are moving to Sunny Isles beach this weekend and we will test drive the life down here. I also have TMS therapy setup from mid June to the end of July and I amy take her to a functional neurology clinic in Boca that specializes in dyasautonomia treatment that helps her body recover naturally.

We will update more over these next weeks as changes may be more meaningful and hopefully Kathy can get more engaged with you all as she is using her devices more and starting to type again.

We did make a trip to Key west to see our son Austin and she loved being in the Keys again with her puppy on the trip!!

08/05/2025

Things are getting back on track, but it’s been a hard three months to get through. She is improving almost every day. Her balance is the best its ever been, but her walking is still struggling but we are slowly adding back meds and she is still recovering from shunt changes, amitriptyline withdrawl and stem cell treatment 4 weeks ago, I’m so happy she seems to be functioning without amitriptyline. She needed this for legs tingling and numbness and neuropathic itch that was so bad a year and a half ago, but now she has mild versions of all of them and she seems to be able to handle not being on that med. She has been off a week so for several weeks she will see improvement in memory and cognition as that’s what the med negatively impacts. The shunt pressure also hurts memory function and energy so that’s improving daily at the best setting now. After two years I now know this is the best pressure for Kathy. so its nice to have that off the list of worries.

I have been recovering from a rough illness also and finally feeling better. We had to go pack our Madeira condo so we are moving into our new condo in Sunny Isles beach next month. We are also making updates to both our Cabo house and Madeira house to help them sell. So managing those projects for the past several months too. It’s all coming together and I see the light at the end of the tunnel, but WOW the last 3 months were a test.

I feel like Kathy will have a very good 2-3 months now, but we always need to be patient and see what happens, but I feel the best I have felt in a long time that she is setup for success.

She is the most amazing soul ever. All that wonderful detail in her being that makes her Kathyness is coming back a little at a time and every time a catch some new thing its like Christmas. They are tiny things, but they keep my energy high and they touch my heart.

We will begin reintegrating into normal activities in June to July and end intensive therapy at the clinic and build a new routine around our new condo. Back to yoga, Pilates, weight training in regular gyms and hopefully meeting some new people. She is ready, but it will take time.

With a bit more time and hard work you all will start seeing more and more of Kathyness too. She is using her phone a bit more and starting to concern herself with friends and issues again. As her memory recovers from the shunt and meds I assume that will continue and many of you will be hearing from our girl.

I know we have been more quiet, but we still need your support and maybe in the next months more than ever as we come back out into the world more.

17/04/2025

Its been a crazy month for both of us. After she had her shunt adjusted she had some improvement to her memory and thinking, but still had some issues so we went back and adjusted the shunt again to increase pressure further.

We have also taken her almost completely off meds as they interfere with stem cells when they are delivered and we had another round of MUSE cells on April 8th. This did bring the usually noticeable setback, but not near as much as last time. Kathy is able to function and train the week after and she is actually doing pretty well considering its only a week out and she is still off most of her meds.

Since we removed all meds with the exception of her thyroid medicine I we were able to identify that her levothyroxine was triggering her numb and tingly legs. Its a long story, but she is converting the T4 into reverese T3 and that is causing lots of issues at a cellular level and even with her labs looking ok, her body is still hypothyroid and she gets very numb and tingly.

For now we switched to t3 only to reset her thyroid and we can try NDT (Natural thyroid) or we can stay on t3 only if this is working for her. It is taking a bot to dial in her t3 only dose, but I can see other improvements as well.

She is still not able to walk as before, she is maybe walking 1000 steps a day down from 3000. Her voice is ok, but has moments it fades. I have carried her a bunch more this last month again. Soon we can see how she progresses and we can decide if we want to give her some meds back to support improved ability to rehab and help her be more independent sooner.

Meanwhile, I appear to have had a bad virus that has caused me to have pneumonia. Coughing up some blood and having a hard time breathing, especially at night. Low sleep and high fatigue has been my life for the past 10 days. Its finally letting go and I'm resting where I can, but this can't pass fast enough.

Our time in Cabo was nice for seeing people, but its not a good place for her to move around and I am so happy we are in Miami again. We have leased a new place in Sunny Isles Beach from June until Jan to see if this may be our new home. There are many things I need her for Kathy and its very convenient for us.

We also have our daughters wedding to plan and get ready for in October so we now have a BIG goal to have Kathy mobile for this day.

19/03/2025

She is still a gym rat all the way

19/03/2025

Despite all the trouble she still works.

19/03/2025

Well, pretty much every day after this post was a downhill slog.

Slowly, we were losing the ability to walk. All of her energy was gone. She had severe bouts of cold with occasional bouts of hot. She would have a runny nose when laying down where she couldn’t breathe her numb and tingling legs returned with occasional itchiness between her toes, she was having blurred vision again, she was suffering from vertigo, nausea, and all forms of G.I. issues. She was using the restroom 12 to 15 times per day and 4 to 5 times per night. She was also barely speaking anymore.

After review of all the notes of what had been going on, there were three things to look at

1 withdraw from amitriptyline

2 she started injecting D3 the day before her symptoms really declined more

3 her memory has been declining since September so i suspended over drainage of her shunt.

We decided to go to the ER to get some scans and make sure nothing was wrong inside of her brain and to also see about getting her shut valve raised one setting. Also knew we would get proper bloodwork done there quickly so that we could evaluate the rest of her.

Extremely long day in the ER and some frustration, they finally changed her valve setting, and it seemed to have an immediate impact on her voice in possibly a little bit of her memory. Her nausea seemed better at first, but that was only temporary.

The following day after a meal and a car ride her nausea and fatigue came storming back, so I decided that it may very well still be a lot to do with withdrawal or D3 shot .

Eventually, I found out her calcium levels were fine from the bloodwork, so I felt comfortable continuing the D3 work and assumed the rest of her issues were related to the withdrawal of amitriptyline .

Continue to improve each day, so it seemed like we were starting to put this all behind us us until I gave her an additional dose of the D3 . Did not have the same impact. It certainly made her nauseous again and from what I understand if you are low on magnesium, it can also have this effect. So we got her a quick IV with lots of electrolytes and a bunch of magnesium and Zofran, and she did the rest of the day..

It seems like we are making progress back to our baseline and she’s getting better every day so all of this tough work seems to have brought us to the right result. Her memory is improving daily and sometimes with explosions of old memories in the middle of the night , her system seems to be overwhelmed with all the new sensations and that’s why she has vertigo, but that continues to improve, and she is slowly restoring to her prior ability. In fact her movements are more smooth and more controlled..

Obviously, I want to get her as stable as possible, and on the right track because we are going to Cabo in a few weeks for stem cell treatment and we have laid a lot of groundwork for those to do amazing things in her and I think now it will even be better that we have these blockades out of the way for her brain to continue to heal , especially in the areas that have been holding her back.

I’m really over the next few months as she continues to recover from all these changes with the hopes that they are worth it in the end because I think they are going to allow her to move much further in her recovery than she has been able to .

13/02/2025

YIKES! It’s been a while since we updated you all. So sorry for that, but it’s been the busiest we have ever been working on recovery. So much to update so this will be a summary and we will make more posts soon on more details and some Kathy time.

In a nutshell we have moved to Miami for 6 months on Jan 10th. We have a condo in downtown and Kathy gos to the clinic 4 days a week for 7 hours of therapy. We have been chasing her meds to find the best solution now that we can measure her response in the clinc to changes as well.

I have her on her most extensive peptide stack to date and she started HBOT 4 weeks ago at 90 minutes a day M-F.

Gabby moved here with us and slowly we have realized that it’s time to let Gabby move on with her life and begin our next chapter without her. Today is our last night with it’s bittersweet. She has been the best and she will be missed. It will be yet another big adjustment for both of us.

Starting two weeks from now we will go to the clinic 5 days per week and Kathy will come to my gym here on Sat and Sun for weight training.

When we arrived in Miami 15 weeks ago, Kathy was in her wheelchair almost all the time, but now she almost never uses it. She is walking 3000-4000 steps a day with her rollator. She get exhausted every day doing that. Her balance has gone from a 28 on the Berg balance scale to a 37 out of 54. She can stand on her own more and her arms and hands have Improved as well. Her voice is up and down as fatigue and meds have a big impact on her at any time, but she speaks well enough and her vocab is increasing more all the time. Her memory has been the only downer. It has gone backwards and we think its due to her meds she has been on so we are working her off amitriptyline slowly and that has been hard. It’s the withdrawal that’s killing her, but thankfully the itchy feet and neuropathy have not been a problem yet. It would be Hugh to get her off this med and have her legs working without it.

Her treatment is the most complicated it has ever been, but it’s working. We also plan to go have MUSE stem cells again in Cabo the first week of April and return to MIami until July to maximize the recovery from them.

Our life has no direction or home anymore. We have no idea what is next of where home really is. All we know is work hard for today and hope we get that better tomorrow. We have each other and that is getting us through.

26/12/2024

Sorry about being off line for a while. It’s been intense and overwhelming but we are seeing some gradual results

We wanted to wish everyone a merry Christmas and a happier new year.

I’ll give a proper update soon and try to get a video with Kathy as well

04/11/2024

Before biomodulation, Kathy receives her meds, supplements (including oral peptides and bioregulators) as well as injectable peptides (CereBroylsin, SS-31, Ipamorelin, CJC-1295, Tesamorelin, Cortagen)

The AM routine takes us about one hour.

04/11/2024

Ok. It’s time. We are going to make a BIG push to get Kathy independent. We have spent the last month setting he body up with MUSE cells. Over the past few weeks I have optimized her medicine and over the last week we have added in a stack of peptides, bioregulators and supplements to maximize the upcoming intensive therapy in Miami.

I assume we will need 16 weeks of hard work to make this happen for Kathy, but we will see how it goes and adjust.

I’m am going to try to post a great deal more so you all can really see what she is going through now. Also, so other may see how you can claw back functional use of your body and brain. You will be told you can’t, but that’s NOT true.

I will add many short videos to give peeks into the day. So Today is day 1 of operation functional independence.

Onward

24/10/2024

We have been in Cabo hiding from the hurricane mess at home, but we have been productive and we are ready to go home. It will be short lived as we have plans on hitting the road for Intensive therapy again.

Kathy has had some ups and downs over the past few weeks. We are seeing changes in how her meds work on her and we also had a very advance cell treatment while in Cabo. MUSE cells and Exosomes along with Umbilical cord plasma. This is the best treatment based on science for Kathy she has had to date. She had a typical reaction as she gets a bit worse as the cells target damage in her body. Over the last two weeks since the treatment she has had all of her old symptoms pop back up. Speech issues, swallow issues, dizzy, double vision, neuropathy and itchy feet, urinary issues, sleep changes, agitation and more. All milder, but shes had them all. My guess is the cells are reaching the damaged areas and having an impact, but before they can improve the function they first disrupt these Sensitive damaged areas.

All of her meds do not work well anymore so we have been slowly removing them, which has some withdrawal systems as well. While this is not fun, it’s a good sign she is doing well functionally without them. The whole process is tiring and difficult, but we are hopeful we are setting her up for a good few months of recovery.

I also have plans for peptide interventions to coincide with the stems cells and intensive therapy. We plan on working as hard as possible to push her over the hump to being more fully independent and functional. We have agreed that we will work hard until her birthday next year and we will stop full time recovery and move on to living our new life and having some treatment around a full life doing what we love. More travel, more family time and friends time and relaxing. So part for her to get to her goal of being independent by July 18 2025.

While in Cabo we had the best support. Pedregal ladies and our friends here have been great. We have had dinners almost every night with friends and Kathy has played cards 6 nights while here. We have had so much love here, but we are glad to head back to Florida. It’s hard to move and do things here in Cabo.

We have lots of work ahead once we return including all of our belonging have arrived in Florida so we need to unpack and get ready for our trip to Miami for her assessment for intensive therapy at the new Glavic clinic.

08/10/2024

We evacuated to vacation. We started in Maine to see our friends Frank and Kim for our first of many visits to their new home near Portland Maine. Kathy had her first real break from treatments since the accident. She could eat what she wanted and have some drinks as well. She was a happy clam.

We also went to Cape Cod for the wedding of Christian and Naomi Manetta. We had so many of our friends there. It was surreal to be among so many people and just enjoying someone else’s big day. Kathy still likes a party and now is motivated to get her swag back so she can get back out there with her girls.

After I had to make many choices on travel with Milton coming we decided to change planes and fly to Cabo for the next month or two while things settle in Florida. It’s hard to leave as we want to help, but we just can’t and Kathy needs the best environment to get back to work. We also setup some great treatments for Kathy when we arrive so hopefully we can make some good progress as we get back to work.

Our hearts go out to all those in Florida and also in GA, TN and NC as they all struggle to recover what has been lost and we only hope that Milton does not bring more of the same, but we know its going to be rough. Be safe all and we will update more soon with some video from our girl.

Kathy Hart Recovery Updates

02/06/2025

08/05/2025

17/04/2025

19/03/2025

19/03/2025

19/03/2025

13/02/2025

26/12/2024

04/11/2024

04/11/2024

24/10/2024

08/10/2024

Dirección

Página web

Notificaciones

Atajos

Compartir

Categoría