23/04/2022
2022 World Primary Immunodeficiency Week
Date: 22 to 29 Apr 2022
Venue: UKM Child Specialist Hospital
Commonly known as "Bubble Boy Disease"
We are in support for early intervention for PI where the objective to test, diagnose and treat because early intervention not only ensure survival pass infancy, for many it also means a meaningful life growing up.
We believe that children as with all adults have equal rights to proper health and safety information and treatment through proper management, education and support. Most important of all it allow us, parents and caregivers to have hope and provide the care needed for recovery. It also minimise stress.
Symptoms could be as simple as severe cradle cap, severe eczema, infant acne and sometimes bad reflux. If your child has these issues and have had multiple diagnosis or medicinal treatment but have recurrance issue, perhaps head on over for an assessment for a peace of mind.