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Cleft Lip And Palate Association of Malaysia

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Cleft Lip And Palate Association of Malaysia

CLAPAM is the only registered/recognized national organisation on clefts in Malaysia. CLAPAM also functions as a link between members and medical professionals.

Cleft Lip and Palate Association of Malaysia (CLAPAM) is a non-profit, non-government organisation and a support group consisting of volunteers from parents with children born with cleft lip and/ or palate, adults with cleft lip and/ or palate and healthcare professionals who manage such individuals CLAPAM provides various support services including counselling, information on feeding and care of cleft babies, and hospital/house visits.

27/08/2025

Buku “Klef … 1 dalam 700”

Harap maklum buku penerangan klef "Klef . . . 1 dalam 700" edisi kedua telah siap dicetak. Buku ini akan kami guna sebagai rujukan dan panduan dalam sesi penerangan klef. Edisi kedua mempunyai 178 muka surat. Seperti edisi pertama (166 muka surat) ia mengandungi maklumat bersabit klef dari mula ia dikesan (mengandung) sehingga dewasa (berumah tangga, kerjaya ). Ia juga mengandungi 50 perkongsian daripada 15 pasangan ibu bapa, 5 orang anak, 8 orang warga klef dewasa serta 22 pengamal kesihatan.

Edisi Pertama diperkenalkan di International Cleft Congress 2022 di Edinburgh. Buku edisi kedua ini kami berhasrat perkenalkan di International Cleft Congress 2025 di Kyoto bulan Oktober tahun ini.

Kami ada beberapa naskah untuk ahli CLAPAM yang masih aktif keahlian mereka. Buku ini juga boleh dibeli daripada CLAPAM dengan harga RM75 senaskah. Beli sambil menderma.

We are pleased to inform that Edition 2 of “Klef . . . 1 dalam 700” has been published. This book will be used as our reference in cleft awareness talks/sessions. Edition 2 has 178 pages compared to 166 pages of Edition 1. Both editions contain 50 contributions from 15 parents/families, 5 children born with clefts, 8 adults and 22 health care providers. Information covered are from detection (during pregnancy) through adulthood life (career, starting a family).

The 1st edition was brought to the 13th International Cleft Congress 2022 in Edinburgh. This 2nd edition is planned to be brought to the 14th International Cleft Congress 2025 in Kyoto coming up in October this year.

We have a few complementary copies for CLAPAM members whose membership is still active. The book can also be purchased from CLAPAM at RM75 per copy. Purchase and donate.

20/08/2025

Risalah Klef (Edisi Ke Empat)

CLAPAM telah mengeluarkan edisi ke empat “Risalah Klef” (edisi pertama pada Januari 2021). Buku kecil ini telah ditambah baik dan mengandungi maklumat terkini (contoh; caj pembedahan dan senarai Klinik Bersepadu Klef di Lembah Klang). Risalah Klef ini diberi secara percuma dan adalah salah satu isi kandungan “Pek Senyum CLAPAM” yang diberi kepada ahli baharu CLAPAM (ibu baru bersalin atau mengandung).

Buat pertama kali, kami juga mengeluarkan risalah dalam Bahasa Inggeris bagi memenuhi permintaan dalam dan luar negara. Kedua duanya boleh dilihat melalui link di bawah.

We are pleased to share the availability of the 4th edition of Risalah Klef (first published in January 2021). Content was upgraded based on current information and needs. These included updates on charges for surgeries and contacts for CCCs within Klang Valley. The booklet is part of the items contained within “CLAPAM Senyum Stater Pack” which is issued free to new members (parents of cleft babies or pregnant with an indicated cleft baby).

For the first time, an English version is also available in response to requests from many parties (incl overseas). These booklets can be viewed via the following links.

Bahasa Inggeris
https://indd.adobe.com/view/c9ea0bea-a0ac-4fdd-8660-865666d07afa

Bahasa Melayu
https://indd.adobe.com/view/d0f8b8e1-2979-422b-9ed5-19ef6b3ab836

14/08/2025

MIDEC 2025 – Malaysia International Dental Exhibition & Conference

CLAPAM diberi ruang sepanjang berlangsungnya MIDEC 2025 (program antarabangsa tahunan) untuk berkongsi tentang lanskap klef di Malaysia serta pengurusan klef bagi meningkat kesedaran umum tentang klef. Pengunjung juga berpeluang menderma bagi menambah dana CLAPAM.

Pengunjung ke reruai CLAPAM terdiri dari professional pergigian dari seluruh negara serta orang awam. Mereka diberi penerangan tentang klef, kegiatan CLAPAM dan juga berpeluang membawa pulang Risalah Klef (edisi keempat- Ogos 2025). Terima kasih kepada semua yang berkunjung ke reruai CLAPAM dan menyumbang ke tabung CLAPAM.

Tahniah kepada Malaysian Dental Association (MDA) kerana berjaya menganjur MIDEC 2025 dan terima kasih menjemput CLAPAM.

CLAPAM was given a space at MIDEC 2025 (an annual international event) to share the cleft landscape in Malaysia and provide information on cleft management to help create awareness amongst the public. It also provides an opportunity for visitors to contribute towards CLAPAM’s fund.

Visitors to CLAPAM booth included dental practitioners from all over the country as well as the public. They were given information on cleft; activities carried out by CLAPAM and get to bring back the latest edition of ‘Risalah Klef’ (4th edition – August 2025). Thank you to all who visited us and contributed to our fund.

Congratulations to MDA for organising a successful MIDEC 2025 and thank you for extending us an opportunity to share about orofacial cleft in Malaysia.

09/08/2025

Minggu Kesedaran Pembedahan Plastik

CLAPAM meraikan “Minggu Kesedaran Pembedahan Plastik 2025” yang dianjurkan Jabatan Bedah Plastik & Rekonstruktif HKL. Penekanan tertumpu pada kebakaran (“burns”) dan klef.

CLAPAM dijemput berinteraksi dengan pengunjung Hospital Tuanku Azizh (HTA) melalui reruai penerangan klef di atrium HTA. Para pengunjung diberi soalan dan mencari jawapan di poster klef yang disediakan. Ini lah satu cara pengunjung dapat mengetahui lebih lanjut tentang klef. Beberapa ahli CLAPAM berkunjung ke reruai CLAPAM.

Bendahari CLAPAM, Dr Muhammaf Safwan (Pakar Pertuturan Bahasa) menyampaikan ceramah tentang penilaian pertuturan sebelum dan selepas pembedahan. Ia disampaikan semasa Konferens Kebangsaan Pembedahan Plastik ke dua yang berlansung serentak dengan Minggu Kesedaran Bedah Plastik.

Syabas kepada Jabatan Bedah Plastik HKL kerana menganjurkan program ini. Terima Kasih menjemput kami.

CLAPAM celebrated the “Plastic Surgery Awareness Week” organised by the Department of Plastic & Reconstructive Surgery, HKL. Emphasis given was for burns and clefts.

CLAPAM was invited to interact with visitors at the atrium of Hospital Tuanku Azizah (HTA) through an information booth. Visitors were invited to answer questions related to cleft (answers available through the posters put up by CLAPAM). This is a fun way for members of the public to learn more about clefts.

CLAPAM's Treasurer, Dr Safwan - Speech Language Therapist, presented a talk on pre and post operative speech assessment during the 2nd Plastic Surgery Conference which took place concurrent with the Plastic Surgery Awareness Week at HTA Auditorium.

Congratulations to the Department of Plastic & Reconstructive Surgery HKL for organising the “Plastics Surgery Awareness Week” and thank you for inviting CLAPAM.

04/08/2025

Meningkat Kefahaman Pengamal Kesihatan

CLAPAM dijemput memberi taklimat berkenaan klef melalui program CME (“Continued Medical Education”) di Hospital Sultanah Aminah (HSA) Johor Bahru pada 23 Julai, 2025. CME ini atas jemputan Jabatan Pediatrik HSA.

Pembentangan bertajuk “Pengurusan Hari Pertama Kelahiran” (Managing First Day of Life) disampaikan oleh Pengerusi CLAPAM. Penekanan pertama ialah maklumat yang perlu disampaikan kepada ibu bapa supaya mereka dibekal maklumat secukupnya. Penekanan kedua ialah cara penyusuan selamat yang memberi keutamaan pada susu ibu.

Semoga program sebegini dapat meningkat kefahaman klef di kalangan pengamal kesihatan. Terima kasih kepada Jabatan Pediatrik HSA kerana menjemput kami.

CLAPAM was recently invited to present a talk at Hospital Sultanah Aminah (HSA) Johor Bahru 23 July, 2025. The talk is part of the Continued Medical Education (CME) program conducted by the Pediatric Department of HSA.

The talk, entitled “Managing First Day of Life” touches on key messages to be shared with mothers so that anxieties are reduced and the mothers feel confident taking care of the cleft new born. The second emphasis was on safe feeding of the baby with mother’s milk being given priority.

May programs such as this increase the awareness of clefts. Thank you to the Pediatric Department of HSA for hosting this CME.

27/07/2025

Menyerlahkan Anak-anak Kita

Melalui kolaborasi dengan Smile Asia, CLAPAM telah menghantar dua orang remaja, Cik Ariessa dan Cik Danushri mewakili Malaysia/CLAPAM di Asia Student Leadership Conference (ASLC) yang berlangsung di Singapura pada 11-13 Julai 2025. Ini adalah tahun kedua CLAPAM menghantar anak-anak kita untuk program antarabangsa ini.

Selain dari berinteraksi and berkenalan dengan remaja dari negara-negara lain, mereka menghadiri ceramah motivasi yang disampaikan oleh penceramah antarabangsa tentang empati dan kematangan diri. Seterusnya, perbincangan panel mengenai klef yang disertai ibu bapa yang ada anak klef dan pengamal kesihatan. Mereka juga mengambil bahagian di dalam aktiviti berpasukan di mana setiap ahli pasukan berpeluang menyumbang dan menyuara pendapat. Program sebegini menaikkan semangat jatidiri, meningkat keyakinan untuk bersuara dan berpeluang menyerlahkan bakat.

Tahniah kepada Ariessa dan Danushri kerana mewakili Malaysia/CLAPAM. Cerita mereka ketika membesar boleh didapati di buku “Klef . . . 1 dalam 700”

Terima Kasih kepada Smile Asia membuka peluang untuk CLAPAM.

Through a collaboration with Smile Asia, CLAPAM was honoured to send two teenagers, Ms Ariessa and Ms Danushri to represent Malaysia/CLAPAM at the Asia Student Leadership Conference (ASLC). This is the second year CLAPAM participated in this international program held in Singapore, 11-13 July 2025

Apart from interacting with student leaders from other nations, our two reps were also exposed to motivational talks by esteemed international speakers (e.g. approaching issues with empathy and maturity). There was also a panel discussion comprising parents and health care providers managing clefts. A highlight was a group activity which enabled everyone to participate and contribute. This is part of the exercise to let the students showcase themselves.

Congratulations to Ariessa and Danushri for representing Malaysia/CLAPAM, and learning while contributing. Additional story on Ariessa and Danushri growing up can also be found in the book KLEF . . . 1 dalam 700.

May Ariessa and Danushri continue to build their experience and be successful Malaysians.

Thank you, Smile Asia, for the opportunity.

12/07/2025

Bantuan/Sokongan Psikologi
Salah satu perkara dalam rangkaian pengurusan klef ialah psikologi. Ia adalah salah satu dari 8 tapak yang kami beri perhatian (lihat gambar bulatan rawatan klef).

Kami amat berterima kasih kepada Joy Mind Center yang menawar khidmat psikologi secara percuma untuk ahli CLAPAM yang layak. Sila rujuk gambar di lampiran untuk cara memohon dan menempah tempat. Program ini hasil perbincangan CLAPAM dan Joy Mind Center bertujuan membantu ahli atasi cabaran berbentuk psikologi. Psikologi merupakan satu aspek yang kita kurang fahami dan jarang dapatkan khidmat bantuan. Semoga program sebegini dapat bantu masyarakat klef sebaik mungkin.

One of the areas under cleft management is psychology. It represents one of the 8 landing points in our circle of cleft care (see illustration in the attachment).

We are pleased to inform that Joy Mind Center has offered free psychological service for CLAPAM members who qualify. Please refer to attached poster on how to contact Joy Mind Center. This program is the outcome of a discussion between Joy Mind Center and CLAPAM aimed at supporting members seeking psychological intervention. Psychology is an area which is not well understood resulting in not many seeking help when needed. May program such as this helps make cleft support much more comprehensive. Thank you to Joy Mind Center for supporting CLAPAM.

21/06/2025

Larian Amal Ke Tiga - Miles of Hope

Larian Amal “Miles of Hope” telah berjaya diadakan pada hari Sabtu, 21 Jun di Taman Tasek Titiwangsa. Ia adalah larian amal ketiga untuk tahun 2025 yang dianjur oleh siswa-siswi dari beberapa universiti tempatan sebagai usaha murni menyumbang kepada dana CLAPAM.

Program ini adalah anjuran penuntut-penuntut tajaan Hong Leong Foundation dari pusat pengajian tinggi di seluruh Malaysia. Mereka dibantu oleh penuntut-penuntut Fakulti Pergigian UKM dan Segi University untuk melaksanakan program julung kali ini. Program kolaborasi antara universiti-universiti dan dari pelbagai bidang pengajian adalah sesuatu yang kami galakkan bagi memupuk semangat kerjasama dan kesefahaman bagi mencapai tujuan dan matlamat yang dirancang.

Terima Kasih kepada semua yang mangambil bahagian. Tahniah kepada penuntut tajaan Hong Long Foundation, UKM DENSTA dan Segi Dental Society kerana berjaya mengadakan larian ini. Terima kasih di atas sumbangan yang diberi. Semoga program bermakna ini dapat diteruskan.

Cleft Charity Run “Miles of Hope” was successfully held on Saturday, 21st June 2025 at Taman Tasik Titiwangsa. This event is the 3rd charity run for 2025, organised by students from various local universities, aimed at raising funds for CLAPAM.

Miles of Hope was organised by scholars of Hong Leong Foundation from various universities all over Malaysia. They collaborated with students from Faculty of Dentistry UKM (UKM Densta) and dental students from Segi University (Segi Dental Society). We are supportive of such collaboration as it develops sense of common purpose and camaraderie amongst involved parties.

Thank you to all who participated in the charity run. Congratulations to the scholars of Hong Leong Foundation who led this initiative and UKM and Segi University for supporting the program. Thank you also for the fund raised. May programs such as this continue.

15/06/2025

Larian Amal - CLAP Run 2025

Seperti yang dirancang, CLAP Run anjuran penuntut Fakulti Pergigian, Universiti Malaya (UM) selamat dijalankan pada hari Ahad, 15 Jun 2025. Ini adalah kali ke-9 Larian Amal ini diadakan.

Kami amat gembira ramai ahli CLAPAM serta keluarga mereka mengambil bahagian. CLAP Run 2025 dimeriahkan dengan kehadiran krew HotFM dan Kool101 yang turut serta dalam Larian ini dan sebagai rakan media. Terima Kasih kepada semua yang menjayakan program amal ini.

Ini adalah salah satu cara kutipan dana dibuat serta kesedaran tentang klef dipertingkatkan. Sambil itu, ia memberi peluang kepada ahli-ahli CLAPAM dan masyarakat umum mengambil bahagian bersama keluarga. Tahniah kepada DENSOC (Dental Society UM) kerana meneruskan satu tradisi yang membawa erti besar kepada masyarakat klef di Malaysia.

As planned, CLAP Run 2025 was successfully held on Sunday, 15 June 2025. This is the 9th Charity Run organised by the students of Faculty of Dentistry, Universiti Malaya (UM).

We are delighted that many members of CLAPAM and their families participated in the Run. It was made more spectacular with the presence of the crew from HotFM and Kool101. Thank you to all who made this charity run successful and memorable.

CLAP Run is one of the ways funds is raised and awareness is created amongst the public. It is also for CLAPAM members and the public to participate with their families in a fun way. Congratulations to the DENSOC (Dental Society UM) for carrying through this tradition which means a lot to the cleft community in Malaysia.

31/05/2025

Majlis Penutup ‘Bulan Pertuturan, Bahasa dan Pendengaran Kebangsaan’

Majlis penutup ‘Bulan Pertuturan, Bahasa dan Pendengaran Kebangsaan’ selamat diadakan pada 31 Mei 2025 di Balai Seni Negara. Beberapa orang anak-anak ahli CLAPAM turut serta dalam acara yang disediakan. CLAPAM diberi peluang membuka reruai penerangan di majlis tersebut.

Antara yang berkunjung ke reruai CLAPAM adalah sepasang suami isteri yang baharu mendapat anak berkeadaan klef, seorang dewasa memohon nasihat tentang suara beliau dan seorang kakitangan hospital yang ingin tahu tentang penyusuan bayi klef.
Syabas kepada kesemua ahli keluarga CLAPAM yang mengambil bahagian terutamanya kepada keluarga En Gopal yang memenangi tempat pertama dalam peraduan mewarna.

Terima Kasih kepada Fakulti Sains Kesihatan UKM menjemput CLAPAM dan meletakkan pertuturan sebagai salah satu rawatan baik pulih klef yang perlu diberi perhatian dalam Protokol Klef. Syabas kerana menjayakan Bulan Pertuturan, Bahasa dan Pendengaran Kebangsaan 2025.

The closing ceremony for the National Speech, Language and Hearing Month was successfully held at Balai Seni Negara on 31 May 2025. A few children whose parents are members of CLAPAM participated in the event. CLAPAM had an information booth during the event.

Amongst those who visited our booth were a couple who just had a cleft baby, an adult looking for advice on his speech and a hospital staff seeking information on feeding a cleft baby. Congratulations to CLAPAM families who participated, in particular Mr Gopal’s family who won first prize in the colouring contest.

Thank you to the Faculty of Health Sciences UKM for inviting CLAPAM to the event and placing speech as an important element of cleft protocol. Congratulations for conducting a successful and eventful Speech, Language and Hearing Month.

27/05/2025

Simposium Klef Southern Chapter

Jabatan Bedah Plastik dan Rekonstruktif Hospital Sultanah Aminah dan Hospital Melaka telah bergabung tenaga bagi menjayakan Simposium Kesedaran Klef Zon Selatan buat julung kali. Ia berlangsung pada hari Isnin, 26hb Mei, 2025 di Newcastle University Medicine Malaysia (NUMedi), Iskandar Puteri.

Tujuan program sebegini ialah unutk menyampaikan kaedah penjagaan klef secara menyeluruh kepada peserta. Salah satu pengisian khas ialah perkongsian seorang ibu ahli CLAPAM, Pn Nor Farhana membesarkan anak mereka, dan berkongsi sebuah video yang disediakan anak beliau.

CLAPAM mengucapkan syabas pada penganjur menjayakan program ini. Terima kasih mengundang CLAPAM ke program bersejarah ini.

The Plastic & Reconstructive Departments of Hospital Sultanah Aminah and Hospital Melaka joined forces to co-organised the inaugural Southern Cleft Awareness Symposium. The event took place at Newcastle University Medicine Malaysia (NUMedi), Iskandar Puteri on Monday 26th May 2025.

The program aimed at enhancing awareness amongst healthcare providers, particularly advocating comprehensive cleft care. One of the topics included was a special session by a mother who is a member of CLAPAM, sharing her journey in bringing up her children born with cleft condition. It included a video montage prepared by her son.

CLAPAM congratulates the co-organisers for this historical event and express our thanks for including us.

24/05/2025

Terima Kasih USM Kubang Kerian

Tahniah kepada penuntut Pusat Pengajian Sains Pergigian USM atas kejayaan menganjurkan Larian Amal “Miles for Cleft 2025” siri ke 6. Ia telah diadakan pada hari Jumaat, 23 Mei 2025 di Kompleks Sukan 2, Kampus Kesihatan USM, Kubang Kerian.

Terima kasih kerana menyokong CLAPAM. Syabas semua yang mengambil bahagian. Semoga program amal sebegini diteruskan untuk kebaikan masyarakat setempat.

Terima Kasih kepada Prof Dr Wan Azman Wan Sulaiman dari Jabatan Sains Rekonstruktif USM, yang juga ahli seumur hidup CLAPAM, kerana mewakili CLAPAM di acara penutup Larian ‘Miles for Cleft’ ini.

Congratulations to the students of ‘Pusat Pengajian Sains Pergigian USM’ for successfully completing the 6th Charity Run “Miles for Cleft”. As planned, it was held on Friday 23 May 2025 at Kompleks Sukan 2, Kampus Kesihatan USM, Kubang Kerian.

Thank you for supporting and contributing towards our cleft activities. Kudos to all who participated in the charity run. May such programs be continued for the benefit of the local cleft community.

Thank you to Prof Dr Wan Azman Wan Sulaiman from the Department of Reconstructive Sciences USM, who is a life member of CLAPAM, for representing CLAPAM at the closing ceremony of Miles for Cleft.

Address

Kuala Lumpur

Opening Hours

Monday	10:00 - 15:00
Tuesday	10:00 - 15:00
Wednesday	10:00 - 15:00
Thursday	10:00 - 15:00
Friday	10:00 - 15:00

Telephone

+60122283677

Website

https://clapam.org.my/

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