Des has Lupus

Des has Lupus Living with a chronic illness has changed how I move through the world.

This page is where I share what lupus looks like in my body, in my life, and in my quiet moments💜

14/04/2026

💜Living with lupus will humble you in ways nobody prepares you for.

One minute you’re fine, the next you’re learning medical terms like you suddenly enrolled in a degree you never asked for.

This condition will make you curse, cry, and question everything.

Because real talk, fighting your body every day is exhausting… especially when it keeps winning.

So stop making it a war.✨️
Rest. Listen. Adjust.
Survive smarter, not harder.

💬 If this hit home, comment “I’m slowing down” and share it with someone who needs the reminder.





12/04/2026

Infusion day made me realize, we’re not scared of needles.
It’s that small pain behind the “let me try another vein” moments.

I know it’s human. I know it’s care. But 🤬 it hurts.

I know I'm not alone on this.
💬Comment your infusion day experience.





09/04/2026

If this found you, you probably needed it more than you think.

Be gentler with yourself ❤️‍🩹

This isn’t motivation, it’s grace.

Take what you need and save this for when you need the reminder.

07/04/2026

💜It's almost funny saying it out loud and actually hearing the weight behind the words.

Today I’m coping, but on the days I’m not, these same words make me cry.

Lupus has no quick fix, its constant trial, error, learning to adjust...and repeat.





05/04/2026

Respectfully… no💜
I understand the "potate day" assignment!!!





02/04/2026

Meals: low effort, low inflammation.

🍽 Dinner tonight:
Kadila chicken soup pack, pap, salsa.
Mild curry for flavor, veggies from the veggie aunty.
⛔️No kapana spice allowed.

🍨Mango and banana pieces for desert because there was some coins left to spoil myself *small small*

Anti-inflammatory doesn’t have to be bland🤢
And it definitely doesn’t have to be expensive💰





01/04/2026

day one again.

31/03/2026

Normalize cancelling plans💜

You are the only one who will suffer the blow back.

Those plans are not worth a week of recovery.





29/03/2026

Another year. Still glowing. 🤎✨

26/03/2026

⚠️Listen, we didn’t exactly sign up for the "Autoimmune Lottery," but tough sh , here we are!

Between the pharmacy runs and the specialist visits, the bank account is hanging on by a thread—and frankly, so are our joints.

​If you think calming a flare-up requires a "Woolies-only" budget and imported superfoods, I’m here to tell you: I’ve been through it all, and that’s a myth. You don't need a high-end salary to reclaim your health.

We’re going back to basics with local staples that actually love us back, without making us choose between our meds and our meals.

​Low cost. Low inflammation. Low effort.

​💬Like and comment "BUDGET-FRIENDLY" if you want to see what’s actually in my broke-budget pantry!

24/03/2026

⚠️Your doctor’s consultation room is supposed to be your safe space.
Not somewhere you leave feeling dismissed or smaller than when you walked in.

Bloodwork, X-rays, consultations…this lupus journey from diagnosis to maintenance is expensive: financially, physically, and emotionally.

You deserve a doctor who’s in your corner. Period.

Even if they don’t fully understand this disease beyond textbooks and articles, they should still be willing to walk this road with you, not talk over you or brush you off.

I’ve had some truly horrible experiences and eventually I found the one person who will scorch Earth for me when it comes to my health.

Don’t settle. ⚠️You didn't ask for this!!!

💬What’s the worst experience you’ve had with a doctor?

#

31/10/2025

How to protect your income while you are temporarily incapacitated and unable to work with the Sickness Benefit Claim from the Social Security Commission of Namibia 🇳🇦.

Here are the requirements and procedures.
If you have ever utilised the Sickness Benefit Claim please share your experience in the comments.

As usual, click like, share the video with someone who needs the information, save the video or comment with a purple heart 💜 if you found the video helpful. And do like the page☑️

Let me know if there is any topic you would like me to discuss as an autoimmune or chronic pain warrior living in Namibia 🇳🇦

❤️💞❤️

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