Life with my cerebral palsy warrior (2025)

21/07/2025

My day actually starts after Ikem has been bathed and fed.

And ends after his night bath and feeding.

It's been a lot with his activities of daily living (ADL) , very challenging and exhausting.

I continue to ask God to ease this journey for him and give us all that we need to navigate through and give this our best.

This journey is harrrrrrrrd and nothing prepares one for it.

The journey is hard and challenging but I have many reasons to be grateful and I live everyday because I focus on the gratitude and bright sides of this joruney if not person fit enter depression from watching your first child go through this pain.

In this pain, I have many gains and I will continue to focus on the gains to avoid sadness.

Adi m very intentional about my happiness and determined to use this pepper life has given me to cook pepper soup and chop am.

I don tire, Kachifonu!

Don't give up, keep moving and be happy.

You must find reason to be grateful, focus on that.

21/07/2025

I just didn't feel like getting out of bed this morning.

All I wanted to do was sleep.

But I knew it wasn't right, and if I did it, a lot of things would suffer.

Thanks to Dimanum for influencing me this morning to jump out of bed, even though he's unaware that he did so.

When I saw him changing into his workout gear, I had to jump out of bed and join him.

I influenced him in this lifestyle, but today he influenced me.

We've finished working out, and I'm alright and good for the day's tasks.

Sometimes, you don't have to enjoy doing the right things, but you still have to do them because it's right.

It might not make you happy or work for you at that time, but you still have to do it because it's right.

Have a great day and influence someone positively today.

19/07/2025

Mummies and Daddies, it's the weekend. Please spend some quality time with my tribe members. This stage will pass soon, but the memories you create now will remain forever.

18/07/2025

It's a family tradition to appreciate our children's teachers at the end of every session.

You cannot be our teacher and not feel our impact.

This is not about breaking banks; it's about gratitude and modeling it to the children.

I wrote mine, then guided them to write theirs, plus our little token.

Their teachers were so happy, and Ifechi's teacher wrote hers to Ifechi.

I have documented it for her and read it to her too.

We are grateful to God for the one year we spent with these two amazing teachers.

God bless them.

Don't laugh at our writings.

They were so happy writing these letters and we made a video of them thanking them which I have documented in our private youtube channel.

17/07/2025

This holiday is a long one and I'm not ready to give all my time to the kids and have none to myself, thereby becoming less productive.

I was having this discussion with my friend today.

No matter how valid my excuses are, they won't give me the desired results, so I always like to be intentional.

I have come to the conclusion that the only way I will be able to be productive during this holiday is to sleep early and wake up early.

Once these children are up in the morning, they take my time and attention.

I have young children and I need to constantly keep an eye on them to avoid stories that touch the heart.

I am Ifunanya first before Mama Ikem and his siblings.

None of my identities should be at the detriment of another; the three have to be balanced.

Ifunanya, Nwunye Dimanum, and Mama Ikem na umunne ya.

What's your holiday strategy?

Meanwhile, I intend to take our Igbo classes serious, this holiday and we started today.

13/07/2025

Just because it's Sunday, I didn't go to church and I don't have work.

This is Ikem's second set of clothes for today; I have washed the first set after he soiled them.

I will keep you updated on the number of clothes he wears today.

It's cold and we're trying to keep him warm; he doesn't like the cold at all.

13/07/2025

After bathing, dressing, and feeding Ikem this morning, all the strength in me has left me.

Haaaaa, this journey is harder than I ever thought, but I think I am harder too.

What doesn't kill us makes us stronger, and I agree completely because I never knew I could handle this challenge the way I do.

In this pain, lies many gains for me.

I have been writing a book titled, "IN YOUR PAIN LIE MANY GAINS" for almost two years now, but procrastination has not allowed me to finish it.

The clothes he is wearing in this picture have been changed because he has soiled them already.

It's a beautiful Sunday; make sure you unwind.

Happy Sunday.

10/07/2025

I wanted to download Mercy Chinwo's recent music some days ago, and you won't believe what popped up.

This is gospel music we're talking about. And what popped up was something I had never searched for, so you can't say it was an algorithm.

And it got me thinking about the things children see on the internet with the phones their parents give them.

These people are not joking with what they're doing on the internet.

The cartoons are not innocent anymore. The games your children play are not innocent.

Do you know what your children are searching on ChatGTP and Google?

Have you gone through their search histories?

The skills your children need to thrive in the 21st century are not mainly on the screen.

Do you have media rules in your home?

Did you teach them how to navigate the internet before giving them that phone?

Do you know what they're sending and what their friends are sending to them?

Even the family laptop they use for homework, do you check what's going on there?

Do you even have conversations with your children to know what's happening around them and in their lives, or are you just shouting and giving punishment up and down?

This holiday is a time to connect with your children more, watch them play, observe, and take down your observations and note where you have work.

Have a holiday timetable, get them learning resources from Resourceful Children Hub to engage them.

Make the holiday an interesting one for everyone.

08/07/2025

220

PARENTS!

All you parents who give your phones to your children to play games and watch cartoons, the holiday is coming, go delete all those videos and images that your children are not supposed to see.

Your child should have no business with your phone, yes I said so.

This is not a matter of what works for you and what makes you happy.

Teach boundaries with your phone and they will do so with adult phones.

Teach them to stop going to people's phones or watching anything on people's phones.

Many children saw their first p.o.r.n and bad images on their parents' and relatives' phones.

And from there they graduated to watching with theirs, and it grew into an addiction.

Many adults and parents have these things on their phones, watch them, and yet preach to their children not to.

And your child had already seen them on your phone.

They will just be laughing at your hypocrisy.

And you that want to send your children to another person's home for the holiday so that they will not disturb you, do your values and that of the people you are sending them align?

Have you equipped your child with the skills needed to navigate without you?

It doesn't matter whether the person is your sister or cousin or relative, will your child be safe there?

You better come and get learning resources and books from Resourceful Children Hub to engage them and make the holiday fun for all of you.

This is the time to connect with your children, observe them closely, teach skills, instill values, and have fun.

If you have ones using phones already, use style to go through their phones and see what is happening there.

Go through their search histories on Google and Chat GTP and see what has been happening.

If I were you, I would not send my child to anywhere without equipping them with the skills they need to thrive.

Oya, go now and start deleting all those things you have in your phone.

I know that this post will not go down with a lot of people, especially those who say 'what works for you and what makes you happy', but it won't stop me from writing it.

Shalom!

06/07/2025

God just saved us from work this night, He knows that I am tired to lift a pin.

Ikem was a little restless after he was laid to sleep.

In fact, I noticed the change in his body system after birthing him this evening.

I told Afoma to give him a little pap, so that we don't load him with much food because of my observation.

Yes, we watch him very closely. His body system sometimes changes suddenly.

Fast-forward to this night, after I finished reading bedtime stories and left their room, on coming out of the bathroom, Afoma called that I come to their room.

I already knew that the call was for Ikem, I quickly wore my clothes and ran to their room.

On getting to their room, he had vomited but thank God that Afoma was fast enough to bring a bowl to harvest it.

What he vomited was a lot and the work we would have done this night, God just saved.

You might think this is small, but to us, it is a very big thing and we are very grateful.

Sometimes when he vomits in the nights like this, you will just cry and afterwards start cleaning.

My Afoma shouted, 'Thank God, I was fast enough to bring the bowl because I don't have the strength to clean.'

You can see how happy because na we wey wear the shoe, know where e dey pinch us.

Some minutes after vomiting, he slept.

This happens sometimes with him but not always.

It is one of the challenges that come with Cerebral Palsy.

We are always watching him for any change.

If he had vomited on the bed, I wouldn't be typing this epistle, once we finished cleaning everywhere, na sleep be that because where I go see strength to be awake and be pressing phone.

Please, thank God with us on my testimony.

Kachifonu!

04/07/2025

The girls' school posted a video the graduating class made, inviting us to their graduation ceremony on the school's whatsapp platform.

I was watching with Afoma and my children and something happened.

I was watching and smiling, and all of a sudden my heart wandered away from what I was watching and I remembered how Ikem is supposed to be graduating with them, yet my boy has never seen the four walls of a school.

I couldn't hold back my tears, I went inside my room to cry, dried my tears, washed my face afterwards, and came out.

Nobody noticed anything, but I am sure if Dimanum was around, he would have noticed that something was off, because he pays attention to my mood and face - one of the qualities I love so much about him.

There's always something to remind you about your child's condition; your emotions are constantly on the line in special needs parenting.

You are allowed to cry if you want to, just like I did, but you are not allowed to stay crying.

I know I have other children, but it can never be the same, let alone for special needs parents whose special needs child is their only child. I am sending you all hugs.

Life truly is not balanced.

Regardless, we must be grateful so that happiness will abound, and be intentional about it.

As always, I heal by sharing my journey and also inspire other special needs parents.

I am fine and I feel better after journaling and sharing here too.

03/07/2025

Learning shouldn't be boring, and children can also learn while playing.

Make learning concrete with learning resources. The holiday is coming; have you got the resources to engage your children?

Resourceful Children Hub is here for your children's books and learning resources.

Our goal is to make learning fun, easy, and exciting. Just look at how colourful these alphabets and numbers are; think about how catchy and beautiful they will look to your child.

You can use one resource to teach many things, and it's our job to tell you the skills to teach with the resources you got from us.

You will be amazed at the things you can do with just one single resource.

The skills children need to thrive are not on that screen they are always on, and most of them are not taught in school.

You teach them through structured play.

Send us a DM.

Visit our business page to see the amazing resources that we have.

Biko, like and follow us too.

Have a great day.

Life with my cerebral palsy warrior

21/07/2025

21/07/2025

19/07/2025

18/07/2025

17/07/2025

13/07/2025

13/07/2025

10/07/2025

08/07/2025

06/07/2025

04/07/2025

03/07/2025

Address

Telephone

Website

Alerts

Contact The Practice

Shortcuts

Share