MG Snowflakes Warriors - Philippines

MG Snowflakes Warriors - Philippines This Page is for all MGers in PH �

18/06/2025

Not all disabilities are visible.

15/06/2025

Padala ni Aimzyl Operio Tria.

Wag po natin husgahan ang nagpakita ng PWD ID pero hindi naka wheelchair. Hindi po lahat ng kapansanan, nakikita agad. Igalang po natin ang PWD ID.

12/06/2025

Thank you MGA for this!

09/06/2025

Simple (but limited) illustration to help better explain what happens with MG between our brain and our muscles.

06/06/2025

Myasthenia is an umbrella term for all of these conditions. Myasthenia Gravis is the most common of them all. While there are many shared symptoms and overlap in treatment, there are also many distinctions and it’s important to know that each one has its own mechanisms, assessments and treatments.

01/06/2025

☠️Fatal to Fightable: A Look at MG Then & Now🕰️

This ad ran in the 1970s with the headline:
“100,000 Americans have nerves that can’t communicate with their muscles.”
It was published by the Myasthenia Gravis Foundation and it’s a chilling reminder of both how far we’ve come and how far we still have to go.

🩵MG was once considered a death sentence.
The ad reads: “Until recently, MG brought death to 85% of its victims.”

Back then, there were no established treatments, no prevention, and no cure. Most patients lived in fear of respiratory failure, worsening weakness, and the unknown.

📚 MG in Historical Context

🧠 1900s: The first clinical descriptions of Myasthenia Gravis appear. It’s misunderstood and often misdiagnosed.

🧪 1930s–1950s: Researchers begin to understand the neuromuscular junction. Mestinon (pyridostigmine) becomes one of the first medications used to help manage symptoms.

🚫 1960s–70s: MG is labeled as “deadly.” This ad estimates 85% mortality without treatment. Awareness was limited, and those who were diagnosed often lacked access to meaningful care.

💉 1970s–90s: Advancements like plasmapheresis, IVIG, corticosteroids, and immunosuppressants help transform survival outcomes. Life expectancy improves dramatically. 🫶

💚 2000s–Present: New biologics and monoclonal antibody therapies (like Soliris, Ultomiris) are developed. MG awareness grows, but the misdiagnosis, under treatment, and stigma of those struggling with symptoms still remain major challenges.

🤔Why This Still Matters

“There is no permanent cure for Myasthenia Gravis. No prevention. Let’s find one.” – Tony Randall, MG Foundation National Campaign Chairman, 1970s

That quote is still true today.

MG may not be as fatal as it once was, but it remains exhausting, unpredictable, and invisible to most. Awareness isn’t just about history; it’s about the future.

🍋Early diagnosis can save lives.
🥄Storytelling reduces stigma.
🍋Research funding moves us closer to a cure.

This June, for Myasthenia Gravis Awareness Month, I’m sharing this vintage ad as a symbol of where we started and why we continue.

We are stronger, louder, and more informed than ever before. But we’re not done yet.


27/05/2025

Myasthenia gravis affects more than just muscles. Learn more here: https://bit.ly/3GvGYPZ

It can impact vision, speech, movement, and breathing. Share to spread awareness and help others recognize the signs.

25/04/2025

Do you ever struggle to explain myasthenia gravis to others? How about these 3 metaphors: https://bit.ly/443ZCs0

🚗 Forum moderator Shawna explains MG like this: The signals sent from the neuromuscular junction (where nerve cells contact muscle cells to create movement) are like cars going through a toll plaza. When you have MG, there's a major bottleneck!

🔋 MG fatigue is like starting the day with 50% battery EVERY DAY. No matter what, you can't get to 100% full.

🎈Breathing difficulties? Think of the lungs as a balloon and the diaphragm as an accordian pump. There isn't enough energy to press the pump and fill the balloon. How do you explain MG to others? Share in the comments, then read Shawna's full piece here: https://bit.ly/443ZCs0

❄️ love yourself, be kind to your body ❄️
26/11/2024

❄️ love yourself, be kind to your body ❄️

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