Global Cmtc-Ovm Organisation

Global Cmtc-Ovm Organisation For people with Vascular Malformations, their families and healthcare professionals.

The worldwide CMTC-OVM is since 1997 the source for people who suffer from vascular malformations such CMTC. Our commitment is to support the welfare, foster well being of our patients and support the scientific research of vascular malformations. The patients in our organisation have the unique opportunity to get the best research of the causes, diagnosis and the best treatment of issues related.

Someone with a vascular malformation will look different in some way to other people which can lead to negative reactions from within their social environment and can give rise to psychological problems for the patient. Children affected by a vascular malformation often receive questions about this, because their condition is clearly visible. This can have a potentially negative influence on their social development and their performance at school. Other complications can vary from those of a cosmetic nature, visible veins for example, to those with serious and potentially fatal consequences. There are at least six known cases of children that have died as a result of complications thus far.

31/07/2025

Learn about the value of patient organizations for patients! Check out our latest article to see how these organizations provide support and information. Visit our website now:

https://bit.ly/3TsV9Zv

Did you know that there is a wealth of information on the website under "Pedia," and that Pedia is derived from the Greek word "paideia," meaning education?



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28/07/2025

May we be your organization's patient organization? Become a member and help us help you and
others! Membership is € 35 per calendar year and often claimable from your health insurance.

❤️Connect with others patients and their families.
❤️You will have access to the entire website, including video materials and presentations about CMTC and other blood vessel diseases.
❤️You will have access to our global CMTC-OVM conferences such as in the Netherlands.
❤️You will have access to all online conferences.
❤️You will have access to our global online Community where you can safely connect with other patients and their families.
❤️We organize an annual special family day (in e.g. the Efteling) where all members are welcome and can meet each other!

Become a member via: https://bit.ly/3cMN3ZY

24/07/2025

This is why patient organizations like CMTC-OVM exist.

Beyond the medical aspects between patient and doctor, living with a (rare) condition not only impacts the patient and his own life but also the lives of parents, brothers, sisters, grandparents, neighbors and so on.

Join CMTC-OVM. Meet other families at Family Day and get informed at the member conference in October. A (rare) condition is not something you have to face alone.

Read more about our Cloverleaf model on our website: https://bit.ly/3AkwhsI

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21/07/2025

Inspiring story! Read Katie Allen’s latest blog about her experiences and insights. Learn more about CMTC and be moved! Check it out now:

https://bit.ly/40QxTJ5



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17/07/2025

Learn about the search for the genetic cause of vascular malformations like CMTC! Read the article on our website and stay updated with the latest insights:

https://bit.ly/44zWiEV



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14/07/2025

Curious about genes and vascular malformations? Dive into our latest article to learn more about the genetic background of these conditions! Read now on our website:

https://bit.ly/4kFBoJ3



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09/07/2025

A huge thank you to everyone who joined our unforgettable Family Day 2025 at Efteling! We shared such special moments!

Couldn’t make it? Become a member of CMTC-OVM and join us for future events! Learn more and sign up on: https://bit.ly/4eERRw1



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02/07/2025

🎁 Alexandra, Naomi, and Laurens are already busy preparing all the fun for the CMTC-OVM Family Day at the Efteling!

❗Don’t forget, we’re gathering at 10:00 AM at the Kiss & Ride/bus parking lot!

See you on Saturday! 🖐

30/06/2025

💫 Join us on Saturday, July 5, for the CMTC-OVM Family Day at Efteling!

Meet us at 10:00 AM at the Kiss & Ride/bus parking area, head to the entrance at 10:15, and enter as a group at 10:30. Don’t miss this magical day!

See you Saturday!🖐

30/06/2025

Today, we celebrate the birthday of Lex van der Heijden, founder and president of CMTC-OVM! His dedication to improving the lives of people with rare diseases is truly inspiring. Wishing him a fantastic day!

Within a week we have our international Family Day in the Efteling with over 100 participants from Austria, Belgium, Ger...
30/06/2025

Within a week we have our international Family Day in the Efteling with over 100 participants from Austria, Belgium, Germany and the Netherlands!

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Koninksweg, 1
Silvolde
7064KH

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