Wilchi Paddy Kapin's Retinoblastoma Treatment

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Wilchi Paddy Kapin's Retinoblastoma Treatment

Join us in our fight against Retinoblastoma

19/09/2025

Good Afternoon Family and Friends.

We apologize for the late update as we have had logging in issues with the account and updates were not been posted.

Unfortunately during our trip to Manila his appointment for the 28th August got deferred to 03rd September. Upon taking taking antibiotics for 5 days Wilchi blocked nose turned to runny noise and chesty cough.

The weather in Manila had heavy down pour that affected our appointment to do medical clearance on the 01st Sept but we managed to do a video call with Wilchi's Paediatrician, which he was too sick to undergo the procedures under general anesthesia.

03rd of September we managed to do the genetic blood extraction while Wilchi was awake and ended with a lot of fighting and tears. Blood samples were FedEx straight away to America for testing.

Wilchi was able to do a brief examination only to find his prosthetic eye muscles were infected and needed eye ointment and artificial tears to keep the eye clean.
We have been advised to remove the eye 4x day and clean which me as I mother is unable to do- you can imagine the strength of this 4 year old. Wilchi is also due for a new prosthetic eye soon.

Our next appointment was scheduled for the 18th September which unfortunately we didn't have the funds to stay longer nor did we have the extra money to cover the re booking of flights and visas.

Unfortunately we do not have better news to share but we are grateful for your love and support during this time.
We believe it's God's timing and we trust Wilchi remains healed In Jesus name.

Wilchi's Genetic results will be ready in 2 months and we are hoping to travel by early January to complete his other procedures.

Thank you very much to everyone watching this page and praying with us.

28/08/2025

Good day Family and Friends.

Firstly we would like to say thank you to everyone that purchased dance tickets and donated to Wilchi's healing journey. Your support has made it possible for us.

We arrived in Philippines on the 19th of August and settled in well.
Wilchi did his complete blood count and chest X-ray.

On the 26th August another blood extraction was collected for Creatinine (kidney test) at 8am.
Results were collected at 1.45pm and his next appointment with the Paediatrician was at 2pm

Blood results showed that Wilchi had a very high white blood count which the Doctor suspected a viral infection, upon her test she noticed that Wilchi had a nasal congestion. Having nasal blockage under general anesthetic Is not safe.
Kidney test was normal .

The chest x-ray came out clear with good results.

Wilchi was scheduled for his Brain MRI scan, Eye examination and Genetic testing blood extraction under general anesthesia today. However it got deferred to next Wednesday because he was not medically cleared to undergo this procedure.

Because of the rescheduled appointment we are unable to do the MRI scan with contrast as it's the day we return to PNG.

We were asked to rebook our flights to the following week but it would cost another K3000 to do so.

On that noted yesterday 27.08.25 we visited the Genetic specialist to do some assessment and counseling to understand more about Retinoblastoma. Myself (mother) and Wilchi had eye drops placed into our eyes to view the cause of Retinoblastoma. This medicines opens up the pupils to its extent that the vision becomes blurry for 6 hours.

This test requires both parents to be tested. Unfortunately Wilchi's dad was not able to travel due to funding. But we are determined to make that happen on our next visit so we can understand more if it's Gene mutation or if the cancer is only in the eye and not in other parts of the body.

With faith and trust we believe this is God's timing so our MRI will be booked for our next visit.

We will keep you all update next week.

Thank you once again for your love, support and prayers.

17/08/2025

Hello Families and friends.

This is a shout out to everyone that supported us during Wilchi's fundraising.

Thank you to those who sold tickets on our behalf, to those that attended the dance, those that bought tickets but didn't make it, those that donated,those that shared the flyer and to the ones that kept Wilchi in their prayers.

We are very blessed to have a great support system that continues to help us reach Wilchi's goal to reaching the age of 7 where he will be medical cleared.

We are walking in faith next week for another medical review in Manila which he will undergo a full assessment .

Your support and love is what keeps us going .😇❤

Thank you once again and may you all be blessed in time.

Blessed Sunday to Everyone.

05/08/2025

The count down begins.

Tickets are available if your interested to support our little superhero.

Come Support our worthy cause.

04/08/2025

Goodnight Family and Friends.

We have tickets available for Wilchi's fundraising dance next week. We have 10 days left and need your support .

Wilchi has a scheduled Appointment for the 28th August in Manila so we are hoping to sell as much tickets as possible.

Your support is very much appreciated.

27/07/2025

Tickets are still available .

Please share the word, your support means the world to us.

Direct message if interested or whatsApp the contact on the flyer.

16/07/2025

Hi All

We have fundraising tickets available if you are interested to purchase.

We are hoping to get as much sales done so we can prepare for our travel next month.

Wilchi is scheduled for his appointment for his Genetic testing and Eye Examination on the 28th August so we are expected to be in Manila 1 week before the 28th to do other test like blood, kidney and chest X-ray and medical clearance.

Kindly support our worthy cause by purchasing ticket or sharing our flyer.

We appreciate all the support. Shout out to those that have bought tickets, those that have donated and the ones that are helping me to sell tickets.

We love you all.

20/06/2025

Good morning Family and Friends.

Today we get to acknowledge another year Celebrating life with Wilchi.

It's has been 4 wonderful years watching him grow and heal throughout his milestones in life.

We are very blessed to each and everyone that supported us and prayed for Wilchi.

As we Celebrate his 4th Birthday today we will like to advise you all that we will be hosting a fundraising dance at Lamana, August 15th, 2025.

We were supposed to travel next month July but due to financial difficulties we are hoping this fundraising dance will support us to get his medical review and genetic testing completed by August.

All tickets sold will cover the accommodation, transportation, hospitality and consultation fees.

Please support this worthy cause or kindly share the flyer.

I would like to wish everyone a blessed weekend and God bless.

Happy Birthday Wilchi ❤️.

Another beautiful year Celebrated.

27/05/2025

Good Morning Family. Today is a very special day for someone who has been by Wilchi's side since his healing journey. On this day last year Wilchi had his prosthetic eye fitted on his sister's 7th Birthday. Today Wilchi's sister turns 8 and it's also his 1 year prosthetic eye Anniversary. A Very beautiful journey of a sibling bond. Wilchi will soon to travel for his next review in July so we are praying for the best..Once again Happy Birthday Meagan & Happy 1st Prosthetic Anniversary to Wilchi.

06/05/2025

Good Afternoon Family & Friends

Thank you to everyone that came by on Saturday and biggest Shout out to everyone that purchased a raffle ticket or tickets in Support of Wilchi's Medical Journey.

Below are the lucky winners for the Raffle Draw.

Raffle draw.
1. Grace Goina Whiskey
2. Cynthia Leka Whiskey
3. Ali Aribi sea food tray
4. Andrew Maru 1x 24 SP cartoon
5. Grace Goina 6 Pck chiller
6.Maison Hau Kids Snake and ladder
7.Derrik Launa Red wine
8.Andrew Maru Red wine
9 .Meagan Kapin Chess game
10.Mary Butinga 6pckt chillers
11. Blaise Golu male perfume
12. Sylvia Kapin Female perfume
13. Stephanie Sallun Red wine
14. Maddy lapthorne Happy Nappier
15. Maira Gee size 8 safety boot
16. Maria Lohia vehicle boot organizer
17. Meagan Kapin chocolate
18. Geoff Aisi micro pressure cooker
19. Helen Bure Multi function baking grill
20. Cecilia Golu chocolate
21. Salome Yaot chocolate
22. Stephanie Green C 12 chocolate
23. Geoff Aisi Happy Napper
24. Norman Hau Happy Nappy
25. Abigail Hau Uno kids game
26. Geoff Aisi Happy Nappier

We appreciate you all and pray for God's continuous love to dwell in your beautiful hearts.

Big Thank you to Benso & Alice Sturgess for providing your home and for your family that stepped in to make the day a great one.

And to the beautiful women that made the day possible with the preparations, Wilchi's beautiful Grand mothers Nika IC and Elizabeth.

Thank you once again.

Please call me to collect your prizes at a Central location.

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