Yana and Yenyen

09/09/2025

Someday we wish Yenyen could thrive in an environment like this. 🥹🥰 at the same time we hope we could also join the clinical trials for the treatment 🥹

Way to go kuya, Santi!!!🥰

FIRST DAY‼️ Officially today is Santino’s 1st day of Kindergarten. One week integration 3-4 hours in school. He will be having his one-on-one support aide,Sarah, helping him in school. So, after a week of working with the school, school nurse, school board, everything was completed for his care plan.

✔️Seizure precautions 💉
✔️Transfer demonstrations🦼
✔️Process of feeding and nutrition 🍼
✔️School adaptation 🏫
✔️Bussing and transportation 🚌

In the future we will came across this post.

Sansan, we want you to let you know that we did everything so mag tuon ka maayo. Okay ra 75 basta pasar. God bless you Santi. 💕

This is his first time to be away from us. Wala baya ni mag daycare. We know he can do it. 💪🫶

03/09/2025

To support FOXG1 Research Foundation in bringing the clinical trials this 2026, we recently joined the FOXG1 Fundraising campaign.

The foundation had done so much for us by creating the first treatment to FOXG1 syndrome but we may need a little help from you so the clinical trials could reach Yenyen and other foxes worldwide.

If it's not too much to ask, please share this with your friends or you may also opt to donate to our fundraising campaign. This would mean so much for Yenyen and the wonderful kids living with FOXG1 syndrome.

Join the Mission to Bring the FOXG1 Gene Therapy to Children Worldwide! Support The parent-led FOXG1 Research Foundation.

03/09/2025

"WE’VE LEARNED THAT BEING YOUR PARENTS MEANS WALKING A PATH THAT’S DIFFERENT, BUT NOT LESS—AND DEFINITELY NOT WITHOUT JOY. We’ve learned to be more patient, more present, and more grateful for each day with you.

To Yenyen, there are still uncertainties in this journey, pero just know that you are loved by everyone, especially your Mama, Papa, and Ate Yana.

So tonight is not just a celebration of Yenyen's first bday, but a celebration of Yenyen's life and everything she has overcome. We love you our baby Yenyen!" - Papa Ian

23/08/2025

Thank you, Shine Events by Sunshine Nortega🧡

Papa Ian and Mama Etching, we are so blessed to celebrate Yenyen with you and to witness your vulnerability that’s wrapped in bravery. We are also blessed by your big hearts and by the village rooting for Yenyen and your little family. And now, we are part of that village, and will be with you praying and believing in miracles and what God can beautifully do. 🙌

Padayon, Papa Ian and Mama Etching! You will never be alone in your journey. God is always with you. ✨💛

19/08/2025

How we celebrated our Yenyen’s first birthday 🧡

Send a message to learn more

12/08/2025

Kuya Santi is among Yenyen’s first fox friends. He is a Filipino as well but is in Canada. Please include him and his family in your prayers. 🙏