A Butterfly's Journey - Buchik-LWT13

A Butterfly's Journey - Buchik-LWT13



Buchik's life journey with Trisomy



01/08/2018

For updates on , please visit
"A* Butterfly's Journey (Buchik-LWT13)"

Available tshirt designs for our fundraising.Pls feel free to PM if you're interested 😊
21/06/2018

Available tshirt designs for our fundraising.
Pls feel free to PM if you're interested 😊

We were told by our OB that there was a big chance we're going to lose Buchik anytime during pregnancy so we made sure t...
12/06/2018

We were told by our OB that there was a big chance we're going to lose Buchik anytime during pregnancy so we made sure to have lots of memories with her.
With my husband's bestfriend Marky Canios as our photographer on august 6, 2017 just two weeks before Buchik came.

Buchik before she was taken out from Mapu's belly
12/06/2018

Buchik before she was taken out from Mapu's belly

1st sight of Buchik
12/06/2018

1st sight of Buchik

It was time for the gender ultrasound. Me and my husband were in the car doing a playful argument if our baby is a she o...
12/06/2018

It was time for the gender ultrasound. Me and my husband were in the car doing a playful argument if our baby is a she or a he. We were telling each other what would our baby be like growing up, what sports and instruments she would be playing and the academic achievements be like, and who would decide for the name if the baby is a he and who if the baby is a she. We were so excited but everything turned gray when we found out that she has this very rare case. It was just a midline defect at first. A lot added when she came out through an emergency C-section at 37 weeks gestation.

My OB said, "If abortion is legal in our country, that would be my suggestion because she will just suffer." Legal or not, my husband and I decided to carry our baby to full term. "Her heart may give up at any time," she said. "If she reaches full term, she will have a maximum of 24 hours to live;" she added.

When my mom and I went to the mall to buy her clothes, we only bought 3 pairs because of what my OB said.

When she came out, she was only 2.1 kilos. She needed to be on oxygen and had to be on OGT for her feeding.
Buchik is now 5 months and she is 5.1.kilos. She has a dislocated hip. No bone structure for her nose and full lip and cleft palate.
Aside from fighting for her life, she also has a battle with holoprosencephaly and epilepsy.
For her epilepsy, the most crushing moments is when she's having an episode that lasts 5-6 hours straight (when she's doing that jerking seizure). God knows how much we hate this kind of seizure. The painful part is not being able to do anything to stop the seizure; like, we're literally just watching her until the end of this jerking seizure when she has fallen asleep of tiredness.

But God has blessed us with warm-hearted people who had been our prayer warriors from day 1.

12/06/2018

Buchik's life journey with Trisomy 13










Address

Cagayan De Oro
9000

Website

Alerts

Be the first to know and let us send you an email when A Butterfly's Journey - Buchik-LWT13 posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram

Category