MG Snowflakes Warriors - Philippines

MG Snowflakes Warriors - Philippines This Page is for all MGers in PH �

28/09/2025

Myasthenia Gravis Lay Forum | Sep 20, 2025

13/09/2025

If only people could see the truth of what goes on inside, they would understand so much more! But that is true of many things in life. We often judge what we fail to recognize with discernment.

12/09/2025

Magandang araw po!

Kayo po ay aming inaanyayahan na dumalo sa aming Lay Forum para sa mga pasyente na mayroong Myasthenia Gravis. Ito ay parte ng Lay Fora Series na handog ng Philippine Society of Clinical Neurophysiology at University of the Philippines - Philippine General Hospital Departement of Neurosciences

Ang ating panauhin ay ating patient partners mula sa Persons with Myasthenia Gravis Society Philippines

Ito ay gaganapin sa Sabado, Setyembere 20, 2025 9:00AM sa pamamagitan ng Zoom

Zoom: https://up-edu.zoom.us/j/93460563197?pwd=8zKMp2XfBypm6SNjWqKYljaIiu527f.1
Meeting ID: 934 6056 3197
Passcode: neurology

Maraming salamat po!

❄️ Alam mo ba? Sa Myasthenia Gravis (MG), stress ang madalas na nagpapalala ng symptoms like difficulty breathing and/or...
11/08/2025

❄️ Alam mo ba?

Sa Myasthenia Gravis (MG), stress ang madalas na nagpapalala ng symptoms like difficulty breathing and/or weakness. Pero may simple steps para ma-manage ‘to:

• Get enough sleep and stick to a regular sleep schedule.

• Plan your most demanding tasks when you feel your strongest.

• Build in rest breaks—and give yourself permission to pause. Listen to your body.

• Modify your home environment—Fix your space at home so that things are easier to reach when you're feeling weak:
✅ Ask someone at home to move your everyday essentials — like your charger, skincare, meds, or remote — to spots that are super easy to grab. No need to stand up, reach, or walk far (when MG is acting up).
✅ Also, transfer your meds to easy-open containers — just in case gripping or twisting bottle caps gets hard.

• Don’t go through this alone. Lean on family, friends, support groups (like Myasthenia Gravis community/groups)—even online groups with people you’ve never met in real life can really help. They get it — kasi they’re going through the same thing, so the support feels more real and relatable.

Through small shifts in daily habits and a strong support system, puwede mong gawing manageable ang buhay mo with MG. We’ve got this, Snowflakes Warriors!❄️💪

(Based on insights from the article “Managing stress with myasthenia gravis” – updated June 4, 2025.)

18/06/2025

Not all disabilities are visible.

15/06/2025

Padala ni Aimzyl Operio Tria.

Wag po natin husgahan ang nagpakita ng PWD ID pero hindi naka wheelchair. Hindi po lahat ng kapansanan, nakikita agad. Igalang po natin ang PWD ID.

12/06/2025

Thank you MGA for this!

09/06/2025

Simple (but limited) illustration to help better explain what happens with MG between our brain and our muscles.

06/06/2025

Myasthenia is an umbrella term for all of these conditions. Myasthenia Gravis is the most common of them all. While there are many shared symptoms and overlap in treatment, there are also many distinctions and it’s important to know that each one has its own mechanisms, assessments and treatments.

❄️ love yourself, be kind to your body ❄️
26/11/2024

❄️ love yourself, be kind to your body ❄️

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