Keep Olivia Smiling

Keep Olivia Smiling Raising awareness of brain tumours which stole Olivia's vision in 2018. Smiling in adversity. https://keepoliviasmiling.com/

24/07/2025

Life has gone insane over here (mostly in a good way) so I don't have time for a long update (I miss writing so much!) but wanted to hop on and say that we have had amazing news on Olivias recent scan!!!

She is doing FANTASTICALLY and tomorrow we celebrate her 9th birthday 🎂 😍

Double the courage!Olivia and Eleanor, two unstoppable friends fighting similar battles with an optic nerve glioma brain...
19/07/2025

Double the courage!

Olivia and Eleanor, two unstoppable friends fighting similar battles with an optic nerve glioma brain tumour and severe visual impairment.

Both grabbing life by the horns and absolutely smashing it!

Could not be more proud!!! Eleanor's Voice

photo description. Eleanor is standing next to Olivia holding her cane with her arm around Olivias shoulders. Olivia is cuddling into Eleanor who is now much taller! Olivia is holding a teddy to her face and both girls are grinning in front of 'chemo chairs'

Here she is!😍Our Olivia in  !Wasn't she amazing?
03/06/2025

Here she is!😍

Our Olivia in !

Wasn't she amazing?

Olivia has just reminded me that yesterday was the 1 year anniversary of her second brain tumour surgery (a biopsy). Thi...
31/05/2025

Olivia has just reminded me that yesterday was the 1 year anniversary of her second brain tumour surgery (a biopsy).

This time last year my mum and I were in a hospital ward desperately calling for a neurosurgeon to come and assess Olivia because her speech was affected post surgery and we thought it related to a worse complication (such as a brain bleed).

I think I must have somewhat blocked out the trauma as Olivia seems to remembers it better then me (bearing in mind she had just had a general anesthetic!)

Olivia also came out of surgery with a 'face droop' on her left side. This is still there but not really noticeable except for around her mouth as it is still weak on one side. These are the only side effects we have been left with (as far as we know).

The surgery enabled us to find out the mutation of Olivia tumour which is and led us to these targetted inhibitors and the amazing year we have had.

What a difference a year makes!!!!

photo description for and of Olivia wearing a baby blue sparkly costume, a dress with wings, back stage on our last holiday. Her little sister is standing behind her holding the wings up.

This week, we had a consultant appointment and we were shown on screen the results of Olivia"s tumour shrinkage! It is u...
30/05/2025

This week, we had a consultant appointment and we were shown on screen the results of Olivia"s tumour shrinkage!

It is unbelievable and I will never take this for granted! Compared to one year ago the shrinkage is super visible, even to the naked eye.

Our girl is absolutely smashing it on her targeted therapy! Her immune system is still compromised as is her growth but compared to I would take it over and over again.

photo description for and of Olivia laughing on a swing in a bright pink hoody.

24/05/2025

Beau Johnston, 19, risks losing the remainder of her vision after doctors found a new tumour on her functioning optic fibres.

PJ day at school ! Sisters who fight like cat and dog but who are also fiercely loyal of the other and best friends fore...
23/05/2025

PJ day at school !

Sisters who fight like cat and dog but who are also fiercely loyal of the other and best friends forever 💓

photo description for and like our Olivia.

My two girls dressed in PJs and colourful dressing gowns. Olivia is standing behind her sister grinning holding her , her sister Imogen is in the forefront also grinning wearing a pyjama top that says 'In my snacks era' and wearing a colourful cap

01/05/2025

We had good news on MRI number god only knows!

More shrinkage, minimal, but we will take it!
..and breathe (for only three months)

💖

An exceptionally familiar waiting room for us. Yesterday was results and check up/routine tests day. The results weren't...
01/05/2025

An exceptionally familiar waiting room for us.

Yesterday was results and check up/routine tests day. The results weren't ready so we are now anxiously waiting for a phone call. The waiting is the worst. Never gets easier.

The things that you witness in this waiting room are very difficult. People underestimate the toll this can take on your soul.

As an example, just yesterday, I saw a very young girl aged around 4 with a scar across her bald head stretching from ear to ear. I dread to think what type of tumour she is fighting.

I saw a child screaming in fear having his port accessed.

I saw an older teenager with disabilities (likely as a result of cancer treatment).

I saw a clearly newly diagnosed family distraught with news (you can spot a veteran from a newbie a mile off).

I saw multiple parents (including ourselves) trying to work on laptops whilst also keeping the children entertained!

Of course, we also have great moments of happiness too, but sometimes it's important to take stock and realise that this isn't actually a normal way of life.

Kudos to the medical staff that deal with this day in and day out!



photo description for and like our Olivia.

Olivia is on a green sit on swivel scooter laughing her head off. She is wearing matching blue and pink barbie shorts and tshirt and in the background you can see a craft table, a lego table and blue sofas.

Less than 2 weeks to go for me (Olivia's Daddy) to be running the TCS London Marathon  for Children with Cancer UK  . An...
16/04/2025

Less than 2 weeks to go for me (Olivia's Daddy) to be running the TCS London Marathon for Children with Cancer UK . Any donations would be amazing for this wonderful charity, even a simple share would be great!

Olivia is doing really well on her current treatment but without research this all wouldn't be possible.

The maranoia is setting in! (thinking I am injured all the time)

Love Matt x

In April 2025, I will lace up my running shoes, pin on my race bib, and run 26.2 miles through London. I am running the 2025 TCS London Marathon to raise vital funds for Children with Cancer UK, a cha

09/03/2025

When people who are sighted say “Hello” to someone who is blind or partially sighted, a few AWESOME and helpful things happen!


1. When you know our name, it is helpful when you use it to greet or address us. Saying “Hi Gina” lets me know for sure that you are talking to me. Often, many of us who have low to no vision don’t always know it is us that you are talking too.
2. When you introduce yourself to us and tell us your name, it allows us to make a connection with you that we cannot do visually. Example: “Hello, I am Shelly the store manager” or “Hello I am Brian your server this evening. This helps us identify who you are.
3. When you say “Hi Gina, I am Cory we met at the networking event.” you get my attention, I know for sure you are talking to me, and I know who I am talking with. We then have a normal interaction with each other.
4. It can often be difficult to identify someone by voice alone - even if we know you well. Surrounding sounds can interfere with our ability to recognize a voice -- even ones that are familiar to us. The sounds of daily life like traffic, kids playing, coffee brewing, photocopiers printing, people talking, or music playing in the background are distractions that can take away from identifying you by your voice.
5. Being quiet and not announcing your presence to those of us who are blind or partially sighted can feel very unsettling - even scary for some of us because we cannot visually see your intentions. Think of a foggy day when you can only see someones shadow and not any detail. Blindness is a spectrum.
Please use your voice and just say “Hello.” We take your Hello as that nod, smile, or acknowledgement people with sight give each other throughout the day. When you do this, you are treating us like everyone else and that is all we really want.
6. If you want to shake our hand, it is appreciated when you let us know, as many of us may not see your gesture. Saying something like "I'm extending my hand to shake yours" or "May I shake your hand" works just fine.
7. Please do say goodbye, see you later, or "I’ve got to go" when you leave so we don’t continue talking to someone who is no longer there.

So please when you notice us, say “Hello,” introduce yourself, and learn our name so the next time we meet we will know who you are and we can share a friendly acknowledgment together.

“Losing my sight has not changed who I am, it has changed my interactions with the world.” Gina Martin.

Diverse Abilities Programs Inc. offers Youth, Senior’s, Community and Workspace training in people skills, inclusion and accessibility.
www.DiverseAbilities.ca

Photo Description
A shadow silhouette of a person holding a cane off the sand at a beach.

Amazing scan results for my girl yesterday! More shrinkage on her new treatment! Forever thankful for       photo descri...
13/02/2025

Amazing scan results for my girl yesterday! More shrinkage on her new treatment! Forever thankful for

photo description of a fun filter on Snapchat of me and Olivia pouting at the camera with 'besties' written in pink glitter

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